Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 *********** I recently took my son to an experienced allergist who is au fait with the casein/gluten issues, but claimed that there is no evidence that the effects of gluten can take months (some say up to a year) to leave the body - he says it would happen much more quickly. Does anybody know where this theory originates from and whether there is any scientific evidence to back it up? Thanks Anne ********* Hi Anne, I don't know what that guy is talking about! My son has Celiac Disease and it too him more than a year(because he was so sick, the doctors(many) didn't catch it when they were doing all the testing) he was almost beyond recovery when they finally did the test for Wheat( Our country is very far behind with this issue and very far behind but moving along on the whole GF/CF issue too. Mothers and fathers know more than most doctors I know).Slip ups take taime to leave the body too! Thant is why it is not a good idea to cheat! I hope this helps some. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 We have found and have reported that the peptides do take a long time to come out of the system. We do not know the structures of some of them or how they are stored in the body. For example, in the case of Coeliac Disease, some of the products appear to bind to antibodies produced by the sufferer and these are stored away where they can do no mischief. There is evidence for them being there 7 years after the removal of gluten from the diet. Your allergist has used the dreaded phrase " There is no evidence...... " Perhaps (s)he could provide us with evidence that it is removed more quickly. Our experience suggests that the levels drop quite rapidly in young children (and we assume there has not been time for high levels to accumulate) but for adults who may have been eating gluten for 30 years or so the stored amounts may be higher. At least, it seems to take longer to get improvements and the levels appear to drop more slowly. Shattock There is also considerable variation between individuals. > I recently took my son to an experienced allergist who is au fait with the casein/gluten issues, but claimed that there is no evidence that the effects of gluten can take months (some say up to a year) to leave the body - he says it would happen much more quickly. Does anybody know where this theory originates from and whether there is any scientific evidence to back it up? > > Thanks > > Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 At 07:06 AM 10/9/2001 -0400, you wrote: >I don't know what that guy is talking about! My son has Celiac Disease and >it too him more than a year(because he was so sick, the doctors(many) didn't Remember that gluten has different ways of affecting people as seen in ASD and Celiac and while it's possible that people can have both, it's probably a good idea to remember that they are not exactly interchangeable. Celiac recovery can take more than a year, but this is not generally due to the length of time gluten takes " to leave the body " . Rather, it is due to the time it takes for the damaged and atrophied villi in the intestine to heal. However, as Dr. Shattrock points out, the gluten proteins can still be found in the body long after being gluten free even in " fully recovered " celiacs (ie. no apparent damage to the villi on follow up biopsies.) ---------------------------------------------- Jay Bigam Marketing and Information Technology Manager Kinnikinnick Foods Inc. www.kinnikinnick.com Toll Free: 1- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I have to add a few questions to this: My son has been GFCF since May. The Dr. ordered anti-indomisial antibody, anit-gliadin antibody, Rast for casein sensitivity(R10), chromosomes, fragile X test, and a lactose breath test. Will any of these be accurate since he has been without for so long??? TIA, Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I have to add a few questions to this: My son has been GFCF since May. The Dr. ordered anti-indomisial antibody, anit-gliadin antibody, Rast for casein sensitivity(R10), chromosomes, fragile X test, and a lactose breath test. Will any of these be accurate since he has been without for so long??? TIA, Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 , I called the company and asked them. After some research they called back and said they were dairy free but the machines for casein free were too expensive for them. They cannot test for casein. They thought there might be an ingredient that had casein, but did not want to test for it. They said if my child was really sensitive to casein, then we should not use it. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 We discovered recently that the rectal suppository we have been giving our son for 2 years contains gluten. We removed it right away. Since then we have tried miralax as well as bisacodyl and neither of them has worked. our son has gone 2 weeks without a bowel movement before I felt so horrible that i had to give him the suppository again. We upped the dose on both other laxatives and still got nothing. He is going a week now at a time without a movement and is so uncomfortable. does anyone have a remedy that works? I have tried raisins and popcorn. He is allergic to so many things. I got the yummi bear fiber supplements and found out they are not casein free. HELP!! Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 We discovered recently that the rectal suppository we have been giving our son for 2 years contains gluten. We removed it right away. Since then we have tried miralax as well as bisacodyl and neither of them has worked. our son has gone 2 weeks without a bowel movement before I felt so horrible that i had to give him the suppository again. We upped the dose on both other laxatives and still got nothing. He is going a week now at a time without a movement and is so uncomfortable. does anyone have a remedy that works? I have tried raisins and popcorn. He is allergic to so many things. I got the yummi bear fiber supplements and found out they are not casein free. HELP!! Phyllis Quote Link to comment Share on other sites More sharing options...
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