Re: Update on Colin-'s G-Tube/Nightmare

[Guest guest]

Hi

What Colin- went through sounds horrible, must of been tough on

you guys too??

Just a thought, if he pulls it out can you not put it back in? Liam

has a mickey button and when his has fallen out in the past and we

didnt have a spare, we washed it and put it back in, that time the

balloon had broken so we taped the button to his stomach till we

could get to the hospital, at least we could keep the stoma open.

Hope he keeps this one in a while.

jody(mum to Liam RSS and Cameron)

>

> Hello Everyone - Well we survived Colin- pulling his button

out

> of his stomach which lasted for two weeks when he decided to do it

> again. Since my husband and I knew that Valley Hospital would not

be

> able to help us, we had to wait until the morning when his Dr. at

> Columbia Presb. was available. This would be over 8 1/2 hours that

> his hole would be open. Apparently, the Dr. never gave us another

> button or syringe to inflate the button once we got it back in -

we

> were helpless. When we arrived in NYC I had to say that what I

> witnessed to get the button back in was worse than his

complications

> to the surgery a year ealrier. I would never wish this upon even

my

> enemy to watch their child suffer this way. Needless to say, the

> buttin was put back in. It is such a shame that Colin- has not

> made the connection between the pain and pulling the button out.

> Thankfully, he has been drinking the Pediasure since we got him

back

> home from the hospital and so far we have not had to hook him up

at

> night. I hope it never happens again. Thanks for listening. PS -

He

> has a check up in two weeks with his Endocronologist to see how

much

> he has grown.

> M.

> mom to Colin- 4 RSS/g-tube/growth hormone and Gillian 8 months

> non-RSS

[Guest guest]

Hi ,

Did you know that ANY needle-nose syringe will work with the button??? Since

Colin- has a g-tube, you should have a supply company, right? They can

be ordered through there. I use either a 5cc or a 10cc syringe. has

an 12F 2.0cm AMT Mini button.

Another idea. If you're able to deflate the balloon right away with a

needle-nose syringe, but still have problems getting the button to pop back

in the stoma, try using KY jelly. We have always just used Vaseline, but

when we visited the Ped Surgeon, he recommended the KY.

We tried it for the first time when demonstrating the button change at

's school, and the button popped in MUCH easier than normal!! We put

a some on the button and then globbed (great medical term here! LOL) it over

the stoma, and the button popped right in!

The Ped Surgeon also said that you can use liquid dish soap if nothing else

is available. In fact, he preferred the dish soap to the Vaseline that we'd

been using!! I was VERY surprised!!

Hope this helps!!

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

[Guest guest]

Pat,

We always use KY Jelly when changing 's tube. The reason you should not

use

Vaseline is because it is petroleum based. Petroleum destroys latex, and can

irritate the

site. KY Jelly is a water-based lubricant, which is much safer to use for

insertion of a g-

tube. Using a silicone-based lubricant might make it easier to insert a g-tube

as it retains

lubricating properties better & longer, but this can harm tubes made from

silicone.

Kim C.

> Hi ,

>

> Did you know that ANY needle-nose syringe will work with the button??? Since

> Colin- has a g-tube, you should have a supply company, right? They can

> be ordered through there. I use either a 5cc or a 10cc syringe. has

> an 12F 2.0cm AMT Mini button.

>

> Another idea. If you're able to deflate the balloon right away with a

> needle-nose syringe, but still have problems getting the button to pop back

> in the stoma, try using KY jelly. We have always just used Vaseline, but

> when we visited the Ped Surgeon, he recommended the KY.

>

> We tried it for the first time when demonstrating the button change at

> 's school, and the button popped in MUCH easier than normal!! We put

> a some on the button and then globbed (great medical term here! LOL) it over

> the stoma, and the button popped right in!

>

> The Ped Surgeon also said that you can use liquid dish soap if nothing else

> is available. In fact, he preferred the dish soap to the Vaseline that we'd

> been using!! I was VERY surprised!!

>

> Hope this helps!!

> Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

> G-Tube)