Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009 - no you are not alone! Rinsing dishes takes me forever...I get up and rinse afew thenh I have to sit and rest and then I go back and do more...etc, etc....taking dishes out of the dishwasher seems harder then putting them in! My mind also tells me this should be a snap and it turns out that it isn't..and I too feel guilty and I feel like I'm lazy and then I write to the group and realize I am not lazy and I am not faking and want attention...I have a problem and I find ways of doing what I wanted to do....I've gotten better over the year I've been DX but it is still hard for me to not think I am lazy and faking it! When you feel that way just come on and say it and we will reassure you! JoyceRudy AZ birds  .... it took me a long time to face my mental monsters and accept what I cannot change. I know now that my self worth was tied into what I DID. When I couldn't 'do' certain things anymore I felt helpless and worthless, even tho' I am ill with a disease that is fatal. If we could have a leg in a cast, that is something others can SEE and know then there is a reason why we don't do more. Others cannot SEE our disease (unless we are using O2)until we become more and more dependant on others for assistance. I was always feeling guilty... In all honesty, I still fight those guilt feelings. Like when Rich is getting dinner and I'm more or less sitting! I have that damn fibromyalgia and arthritis that also limit me. Rich will be 80 and he takes care of me. (I'm 71). We've worked out a pretty good system, he does a little of a task and I do a little and we get the task finished. I'm going on and on. Anyway, you aren't alone! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009  .... it took me a long time to face my mental monsters and accept what I cannot change. I know now that my self worth was tied into what I DID. When I couldn't 'do' certain things anymore I felt helpless and worthless, even tho' I am ill with a disease that is fatal. If we could have a leg in a cast, that is something others can SEE and know then there is a reason why we don't do more. Others cannot SEE our disease (unless we are using O2)until we become more and more dependant on others for assistance. I was always feeling guilty... In all honesty, I still fight those guilt feelings. Like when Rich is getting dinner and I'm more or less sitting! I have that damn fibromyalgia and arthritis that also limit me. Rich will be 80 and he takes care of me. (I'm 71). We've worked out a pretty good system, he does a little of a task and I do a little and we get the task finished. I'm going on and on. Anyway, you aren't alone! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Scared & Fatigued Beth that answer you gave Joyce about fatigue hit the nail on the head for me. I get so darn fustrated when I cant do things that I did 6 months or a year ago. I find myself wanting to nap in the middle of the afternoon and thats hard to do when your working. I keep getting mad at myself cause I cant do this or that and that really puts me in a bummer mood. I cant even walk my dog like I used to. My sats are in the mid to low 90,s most of the time. Any incline does me in. It is hard to accept this new "normal". Not on O2 yet and I hope not for awhile. For some reason going through a rough time right now. Well thats enough. Merf dx05 62 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.