Migraines

[Guest guest]

Ok Carol. I want to dunk my WHOLE head in a bucket of Botox!!!! Think it

will get rid of the wrinkles as well as this darn head ache I have had for

three weeks now????? Heck, I would do it for the wrinkles even if the head

ache stayed. LOLOLOL

Debbie &

in Gig Harbor

(170cm medial)

ladybostons@...

http://www.cafeshops.com/copsstore

http://www.marykay.com/debbiemcneice

-----Original Message-----

From: tuesdynite@...

Since the topic has appeared here several times, tho't I'd just pass on this

nugget from " Bottom Line Health Daily News " (an online service):

BOTOX AND MIGRAINE RELIEF -- POSITIVE EXPANSION

Botox was originally used to treat muscle spasms and later approved to

diminish facial wrinkles. However, people who received Botox injections

began to

observe that their migraine headaches -- as well as their wrinkles -- were

disappearing. Doctors responded by instituting clinical studies to look into

the

situation further. Botox is currently under FDA review for this use. It may

also

be prescribed for people who suffer from chronic headaches and migraines and

fail to respond to other preventive treatments.

----------------------------

Carol A

[Guest guest]

Hi guys! Sorry I am away so much these days. Life has me quite busy

right now. I am writing to ask if any of your kids have migraines.

Our ped. thinks Storm is having magraines and has prescribed Elavil

(aka Amitriptylin), as well as a trip to a neurologist! This is a new

one for us! Anyhow, if any of you has any experience with this med,

please email me and let me know. If you all have any other ideas to

help Storm handle these headaches and the throwing up that would be

great too! He is currently on, Reglan, Prevacid, flovent, albuterol

(prn), nutropin (gh) and now Amitriptylin.

Thanks all!

Carmen, Mom to Storm, RSS etc.

[Guest guest]

Any suggestions for a 15 year old who is on this diet and who just got off of lexapro. Once that happened, dizziness/light headedness kicked in. We've been dealing with this since April.

She's been totally off lexapro for 2 months. She now has migraines.

From what I'm understanding, Lexapro masks migraines, so it all makes sense that once we started weaning her off the lexapro, migraines kicked in.

So, any suggestions for help with migraines. It is keeping her out of school at this point.

Marla P.

Subject: CoQ-10To: BTVC-SCD Date: Wednesday, September 1, 2010, 9:47 AM

Anyone have a SCD-legal CoQ10 they can recommend? My doctor wants me to start taking this.

Thanks,

[Guest guest]

I can't provide a whole lot of help since I've had migraines several times a

month since I was a child, and none of the migraine medications work for me, for

various reasons. In addition Lexapro caused severe side-effects when I tried it

two years ago, so I stopped taking it after 6 months... I have read in several

places that it can take several months for the body to wean completely off

Lexapro and other SSRIs.

Anyway, hormonal changes are one of the major causes for migraines, so your

15-year old might now be dealing with that type of trigger. In other words,

might not be the after-effects of Lexapro. After I had a hysterectomy seven

years ago my migraine frequency dropped in half, which was a nice benefit.

You might talk to a neurologist about trying some of the medications

specifically used for migraines. There are 5 or 10 different ones, if I recall

correctly, so it may take some experimenting to find the right one for your

daughter.

Since none of the migraine meds. work for me, I've learned what my triggers are,

and I just cope. Usually they last 24 hours, but I remember 3 to 5 day-long

migraines when I was a teenager [sigh].

By the way, I use an anti-anxiety med. that boosts GABA not serotonin, and that

works better for me. I don't use it every day, but on an as-needed basis, about

once a week. I haven't had migraines as frequently this past year -- headaches,

of course, but not a full-blown migraine. I've wondered if it is because I'm

boosting my GABA levels more regularly in the past 2 years.

Wish I could help more. I know, so well, how debilitating migraines can be. By

the way, my digestive disorder, Sphincter of Oddi dysfunction, affects

middle-aged women who suffer frequent migraines. Just an FYI, in case your

daughter continues with the frequent migraines, although I certainly hope she

grows out of them, as many do.

Kim M.

SCD 6 years

>

> Any suggestions for a 15 year old who is on this diet and who just got off of

lexapro. Once that happened, dizziness/light headedness kicked in. We've been

dealing with this since April.

> She's been totally off lexapro for 2 months. She now has migraines.

> From what I'm understanding, Lexapro masks migraines, so it all makes sense

that once we started weaning her off the lexapro, migraines kicked in.

>  

> So, any suggestions for help with migraines. It is keeping her out of school

at this point.

> Marla P.

>  

>

>

[Guest guest]

> Any suggestions for a 15 year old who is on this diet and who just got > off of lexapro. Once that happened, dizziness/light headedness kicked > in. We've been dealing with this since April.> She's been totally off lexapro for 2 months. She now has migraines.> From what I'm understanding, Lexapro masks migraines, so it all makes > sense that once we started weaning her off the lexapro, migraines kicked > in.>  > So, any suggestions for help with migraines. It is keeping her out of > school at this point.> Marla P.>   ______________________________The herb feverfew helps immensely for my migraines. When I feel one coming on (which can be quite sudden) and take a feverfew immediately it works pretty much as quickly as it dissolves in my stomach and gets into my blood stream. I guess it doesn't work for everybody, but they do for me, and a lot of people. And I feel no side effects from them (including intestinal ones; I've had Crohn's for 30 years).nA funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

Marla,

I also would be interested in some natural remedies for migraines--my son who had IVIG 2 weeks ago for his PANDAS is now suffering greatly from debilitating migraines as a result.

His PANDAS tics have diminished, but the trade-off is the migraine.

He had always had minor cluster/migraine HA in the past, but now he is having bad ones. I have been giving him Motrin and the doctor prescribed Fioricet, which is helping.

I read that Magnesium helps reduce vascular spasm:

http://altmedicine.about.com/cs/headachemigraine/a/Migraine.htm

Some of these remedies may not be SCD legal, I don't know. My son does not follow SCD--but your daughter does, so please be careful.

Terry

[Guest guest]

Hi n-

Which brand do you use? How much do you take?

Thanks,

Joanna

> The herb feverfew helps immensely for my migraines. When I feel one coming

> on (which can be quite sudden) and take a feverfew immediately it works

> pretty much as quickly as it dissolves in my stomach and gets into my

> blood stream. I guess it doesn't work for everybody, but they do for me,

> and a lot of people. And I feel no side effects from them (including

> intestinal ones; I've had Crohn's for 30 years).

>

>

>

> n

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> A funny, touching gift book for cat lovers. Signed copies, free shipping

> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the

> 10 Cats Who Caused My Addiction by n Van Til

> www.wordpowerpublishing.com

>

[Guest guest]

Just me again.

I'm the one whose 15 year old daughter is on this diet.

She got off of Lexapro that she was on for 4 years for anxiety. and then dizziness/faint feeling started. She has been off of lexapro for 2 months. and now migraines have been diagnosed and it's all because of the lexapro. I just wondered if anyone has ever experienced this. My question is : for those of you that deal with migraines: is the dizziness/faint feeling/hard to concentrate stuff part of the migraines or the lexapro withdrawals.? Just wondering.

Marla P.

Subject: Re: breakfast recipeTo: BTVC-SCD Date: Saturday, September 18, 2010, 12:31 PM

hi michelle i fry them boil them or microwave i have done almost everythin u can lol!> >> > >>> > >>> hi has any1 got a nice breakfast recipe that dosnt include cottage cheese or yogurt. or eggs as im sick ov those lol! thanx > >>> > >>> Tammy> >>> > >> > >> >

> > >>

[Guest guest]

My sister and I don't have full-blown migraines but visual migraines (the aura

and a minimal headache). We've both correlated them with mold allergy -

fungally-related food and drink particularly when the mold count in the air is

high. I think she'd benefit much from this diet but can't make that horse

drink.

Have y'all considered the above?

Artful Carol

Former me: From babyhood - CFS, Depression, Candida, Severe Chemical, Inhalant,

and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled

past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet,

SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits

A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids

recovered from serious developmental problems which I believe were

fungally-caused.

> > >>

> > >>>

> > >>> hi has any1 got a nice breakfast recipe that dosnt include cottage

cheese or yogurt. or eggs as im sick ov those lol! thanx

> > >>>

> > >>> Tammy

> > >>>

> > >>

> > >>

> > >

> > >

> >

>

[Guest guest]

I’ve

had frequent migraines since I was a child. In my experience, the other

symptoms are more severe than the dizziness, feeling faint, and drop in

cognitive functioning, but they are usually part of the response. It probably

varies somewhat with the individual, though. By other symptoms I’m

referring to head pain, of course, but also severe nausea, sensitivity to light

and smell, and the optical distortions.

In

many ways it is my other neurological and metabolic issues that cause the worse

dizziness, shakiness, feeling faint and deterioration in my cognitive

functions. For me, anyway. Orthostatic hypotension is the more

usual cause for me for this group of symptoms – has your daughter had a

tilt table test? Low electrolytes is another cause for me, followed by hypoglycemia.

In other words, I often experience dizziness, faintness, headaches and

deterioration in my brain functioning but not develop the severe head pain and

other typical migraine symptoms.

When

it comes to our nervous systems, however, there are still a lot of unknowns and

plenty of individual variation.

Kim M.

SCD 6+ years

Sphincter of Oddi dysfunction 7 years

neurological & spinal deterioration 4 years

>>>>>>>>>>>>>>>>>>>>>>>

..

I just wondered if anyone has ever experienced this. My question is

: for those of you that deal with migraines: is the dizziness/faint

feeling/hard to concentrate stuff part of the migraines or the lexapro

withdrawals.? Just wondering.

Marla P.

[Guest guest]

Kim

as far as withdrawals from lexapro being over, - one neuro said it can take 3 months. We are only at month 2 right now.

A friend of mine was on a med for years and got off of it, and had withdrawals for 8-12 months.

Everyone is different. We're just praying that Rach will respond soon to a med for migraines (she's on atenolol- a beta blocker) and be able to get back to school soon.

Thanks for the feedback.

Marla P.

Subject: Re: migrainesTo: BTVC-SCD Date: Monday, September 20, 2010, 6:06 PM

It can be so complicated dealing with neurological issues. I'm learning from my own experiences that neurologists haven't made much progress over the years in identifying all the problems that can occur, much less being able to test for things. Have you found other patterns to 's bouts of dizziness, etc.? Certain times of day, after she's been standing for a while, after a certain amount of physical activity, after a meal, etc.? How about her blood sugar levels, is there a connection to her metabolism, perhaps? Just trying to think of all the possibilities that can cause dizziness plus faintness plus cognitive function deterioration. I'm just beginning to research metabolic disorders and the neurology connected to metabolism, and still trying to make sense of neurotransmitters and neuromuscular communication, areas where I'm deteriorating. So many complexities. Definitely difficult. I do hope things improve for .

Seems like the withdrawal from Lexapro should be over by now.Kim M.SCD 6+ years> > >

[Guest guest]

, your episodes sound much worse than mine. Only once did I have to pull over while driving because there was such a large gap in my visual field; that lasted less than half an hour. I don't remember--have you talked to any of your docs about this? If you type optical migraines into your search engine, you will find a wealth of information. That might give you some ideas for a doctor visit.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis ; neurosarcoidosis From: keith@...Date: Sun, 5 Dec 2010 12:15:55 +0000Subject: Re: Migraines

Hi Rose,That's exactly it. The worst one I had was in Indianapolis - and I had to drive up to Kokomo with it. Fortunately, it was a straight road. It knocked me out for the next twelve hours.I lose vision and ability to think straight as well as having the sparkles. And I feel apprehensive.Best regards,Sent from my HTC

----- Reply message -----To: <neurosarcoidosis >Subject: MigrainesDate: Sun, Dec 5, 2010 03:15

, sounds like you're having optical or aural migraines. Some people get the visual "aura" that often precedes a migraine without getting the headache, or getting only a mild headache. I've had them for years. The first one scared me--it was like bright, glittery zigzags with a gap in my vision. I seldom get a headache, but if I do, it's very mild.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > CC: neurosarcoidosis > Date: Fri, 3 Dec 2010 08:17:23 +0000> Subject: RE: Next Remicade> > Rose,> > Thank you very much for the useful articles. I still need more time to> study them fully, but first reading was very interesting. Thank you> also, Marla, for your kind thoughts.> > The second infusion went fine on Wednesday. I felt good and don't> appear to have had any sytrange side effects. In fact I slept better> that night than for a long time.> > One matter I discussed with the neuro concerned the migraine attacks> that I have. They are a bit strange, in that there is no pain. When> they happen, which is occasionally and when under stress or tiredness> (more than usual, they start as twinkly triangles in a circle at the> centre of ! vision in both eyes, expand outwards and then contract back to> the centre. Because it's in both eyes, it's brain, rather than optical.> I usually have a slight headache afterwards. Anyway, he has put me on> Topiramate, which is primarily used to prevent epileptic seizures, as> well as migraine prevention. I took the first last evening and feel> quite calm this morning, but will be interested to see how it pans out. > The drug can be called Topamax, which may be the US name.> > Best regards,> > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarco! idosis/database > >