Re: Confused about my illness

[Guest guest]

Joyce

Your internist is limited in her knowledge and naturally scared too. She

was looking for you to be well when that just wasn't realistic. But the

fact you're stable, not progressing currently, and know the cause is

very very good news. Reversal isn't realistic but of the realistic

possibilities you got the best one you could. As to one oxygen reading,

you follow it and know how you're doing. Don't overreact to one reading

at the doctor. The fact is you're feeling pretty decent, you're upbeat,

you're enjoying life, watching your health and diet, you get some

ridiculous gas mileage on trips over the mountains. Sounds to me like

you're doing well.

>

> I saw my Internist today and she asked me what Jewish said and I told

her that they said I am stable. I have stopped scarring but I show the

potential to start again.

> She became very serious and she said:That is not good. " I said " Why

not? " seriously she said to me: " It means you are not well. Have you

rehomed all your birds? Gotten everything bird out of the house? " I tod

her that I had and she said " good " but she looked very concerned. I

thought it was a good thing that I have stopped scaring! Also, I was

sitting in the office and when the nurse took my oxygen while at rest it

was 93 on 3 lpm and that is low for me. Usually I am up at 96-97 on 3

lpm at rest. Anyway, should I be concerned? Joyce Rudy AZ Birds Also my

doctor was much pleased at my weight loss and health on becoming a

VEGAN.

>

[Guest guest]

Oh Thank you Bruce! I needed such words! I am feeling good and I am happy and having fun...and,yes, I do get good milage going over those mountains! So Jewish was pleased and that is it. They understand the illness and my doctor who is so very nice just doesn't understand and she is a bit scared. She scared me too. Joyce Rudy AZ birds

Re: Confused about my illness

JoyceYour internist is limited in her knowledge and naturally scared too. Shewas looking for you to be well when that just wasn't realistic. But thefact you're stable, not progressing currently, and know the cause isvery very good news. Reversal isn't realistic but of the realisticpossibilities you got the best one you could. As to one oxygen reading,you follow it and know how you're doing. Don't overreact to one readingat the doctor. The fact is you're feeling pretty decent, you're upbeat,you're enjoying life, watching your health and diet, you get someridiculous gas mileage on trips over the mountains. Sounds to me likeyou're doing well.>> I saw my Internist today and she asked me what Jewish said and I toldher that they said I am stable. I have stopped scarring but I show thepotential to start again.> She became very serious and she said:That is not good." I said " Whynot?" seriously she said to me:"It means you are not well. Have yourehomed all your birds? Gotten everything bird out of the house?" I todher that I had and she said "good" but she looked very concerned. Ithought it was a good thing that I have stopped scaring! Also, I wassitting in the office and when the nurse took my oxygen while at rest itwas 93 on 3 lpm and that is low for me. Usually I am up at 96-97 on 3lpm at rest. Anyway, should I be concerned? Joyce Rudy AZ Birds Also mydoctor was much pleased at my weight loss and health on becoming aVEGAN.>

[Guest guest]

Joyce

It's funny....I joke around with my pulmonologist, my pulmonary

hypertension doctor, my nephrologist, my neurologist and others who all

talk about how well I look and am feeling. Meanwhile, I keep needing to

tell my rheumatologist I'm ok and not to worry as the whole thing just

horrifies him.

> >

> > I saw my Internist today and she asked me what Jewish said and I

told

> her that they said I am stable. I have stopped scarring but I show

the

> potential to start again.

> > She became very serious and she said:That is not good. " I said "

Why

> not? " seriously she said to me: " It means you are not well. Have you

> rehomed all your birds? Gotten everything bird out of the house? " I

tod

> her that I had and she said " good " but she looked very concerned. I

> thought it was a good thing that I have stopped scaring! Also, I was

> sitting in the office and when the nurse took my oxygen while at

rest it

> was 93 on 3 lpm and that is low for me. Usually I am up at 96-97 on

3

> lpm at rest. Anyway, should I be concerned? Joyce Rudy AZ Birds Also

my

> doctor was much pleased at my weight loss and health on becoming a

> VEGAN.

> >

>

>

>

>

>

>

>

>

>

>

<http://www.smileycentral.com/dl/index.jhtml?partner=ZSzeb098_ZSYYYYYYYY\

US & utm_id=7926>

>

[Guest guest]

Hi Joyce and Bruce!

As usual Bruce has nailed it head on.

You know best how you feel and being positive is a LOT of how you are. My ER

doc about 10 days ago said he looked at my history and it scared him to death!

Scared him? Yeah, OK. We have to remember these doctor people actually are

responsible for trying to do the best medically for us with " well " being the

objective. And we can't do that.

And Bruce was also right last week when he mentioned half of the doctors out

there were in the bottom half of their class. So which half do we get and how

many of that half are truly familiar with every possible combination of stuff

that could go wrong with our bodies? Every once in a while even Dr House throws

out Pulmonary Fibrosis as a diagnosis. LOL

I am blathering on but trying to say that our bodies are a wonderful mystery

even to our doctors. Congratulations on the weight loss and your well-being of

spirit. Attagirl.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

> > >

> > > I saw my Internist today and she asked me what Jewish said and I

> told

> > her that they said I am stable. I have stopped scarring but I show

> the

> > potential to start again.

> > > She became very serious and she said:That is not good. " I said "

> Why

> > not? " seriously she said to me: " It means you are not well. Have you

> > rehomed all your birds? Gotten everything bird out of the house? " I

> tod

> > her that I had and she said " good " but she looked very concerned. I

> > thought it was a good thing that I have stopped scaring! Also, I was

> > sitting in the office and when the nurse took my oxygen while at

> rest it

> > was 93 on 3 lpm and that is low for me. Usually I am up at 96-97 on

> 3

> > lpm at rest. Anyway, should I be concerned? Joyce Rudy AZ Birds Also

> my

> > doctor was much pleased at my weight loss and health on becoming a

> > VEGAN.

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> <http://www.smileycentral.com/dl/index.jhtml?partner=ZSzeb098_ZSYYYYYYYY\

> US & utm_id=7926>

> >

>

[Guest guest]

Ahahahhahahaah I asked my internist where she fell in her class and she said she was the top 10% and I believe it! She is the smartest doctor. She is caring and compassionate. She is the head doc in hospice too. But she has had only one patient in all her career with pulmonary fibrosis and she only lived 6 years...but she had IPF and I have birds. But, both you and Bruce are right. Right now I feel wonderful! Having as much fun as I can and just plan rejoicing in the fact that the scarring is no more. I guess she scared me when she reacted that way. Joyce Rudy AZ birds

Re: Confused about my illness

Hi Joyce and Bruce!As usual Bruce has nailed it head on.You know best how you feel and being positive is a LOT of how you are. My ER doc about 10 days ago said he looked at my history and it scared him to death! Scared him? Yeah, OK. We have to remember these doctor people actually are responsible for trying to do the best medically for us with "well" being the objective. And we can't do that.And Bruce was also right last week when he mentioned half of the doctors out there were in the bottom half of their class. So which half do we get and how many of that half are truly familiar with every possible combination of stuff that could go wrong with our bodies? Every once in a while even Dr House throws out Pulmonary Fibrosis as a diagnosis. LOLI am blathering on but trying to say that our bodies are a wonderful mystery even to our doctors. Congratulations on the weight loss and your well-being of spirit. Attagirl. S, Lubbock, TXNSIP w/PF 12/2006 et al> > >> > > I saw my Internist today and she asked me what Jewish said and I> told> > her that they said I am stable. I have stopped scarring but I show> the> > potential to start again.> > > She became very serious and she said:That is not good." I said "> Why> > not?" seriously she said to me:"It means you are not well. Have you> > rehomed all your birds? Gotten everything bird out of the house?" I> tod> > her that I had and she said "good" but she looked very concerned. I> > thought it was a good thing that I have stopped scaring! Also, I was> > sitting in the office and when the nurse took my oxygen while at> rest it> > was 93 on 3 lpm and that is low for me. Usually I am up at 96-97 on> 3> > lpm at rest. Anyway, should I be concerned? Joyce Rudy AZ Birds Also> my> > doctor was much pleased at my weight loss and health on becoming a> > VEGAN.> > >> >> >> >> >> >> >> >> >> >> > > <http://www.smileycentral.com/dl/index.jhtml?partner=ZSzeb098_ZSYYYYYYYY\> US & utm_id=7926>> >>