Re: To Grace & a question for everyone

[Guest guest]

Hi Grace,

I'd love to hear about your son, as I have an 11-year-old boy with RSS & we have

not

gotten an adult male perspective on RSS, as all the adult RSS people on this

listserve are

women. Alos, your post sparked a question for me. Does anyone know how old the

oldest RSS person is with a g-tube? I fear that my son will have one his whole

life.

Kim C.

im wondering what the oldest person with rss is known to date ..my son is now

22 and i

would like to meet others his age and ask their advice about coping with rss.

thanks grace

[Guest guest]

Hi Grace and Kim C.

THere are male rss adults on the adults rss site so maybe some of us rss ladies

could encourage them to post on this site for you to quiz them about boys issues

that we don't know much about. P.S. One of the rss men has just become a father

to a girl and the baby doesnt appear to have rss, from talking with dr.r

..stanhope i didnt think it would have rss as the doc told me he knows of 2 other

rss men who fathered children and they also ok.

Kacey171 wrote:

Hi Grace,

I'd love to hear about your son, as I have an 11-year-old boy with RSS & we have

not

gotten an adult male perspective on RSS, as all the adult RSS people on this

listserve are

women. Alos, your post sparked a question for me. Does anyone know how old the

oldest RSS person is with a g-tube? I fear that my son will have one his whole

life.

Kim C.

im wondering what the oldest person with rss is known to date ..my son is now 22

and i

would like to meet others his age and ask their advice about coping with rss.

thanks grace