Re: Our First Dr. H Visit

[Guest guest]

Hi ,

I live in Ohio between Dayton and Cincinnati, where do you?. I

totally understand what you mean when you say you feel lost. RSS

explains a lot, then you're told that's not it. For us, RSS seemed

to put together all the pieces of a puzzle in Autumn's life and

explained everything. It is strange does have many features

yet it is totally excluded.

Autumn's traits are a higher, broad slightly bossed forehead, far

hairline(covered with her new mop of locks), slight triangularity,

head size in the 50%, body under the charts, she has the curved fifth

finger, (but that is hereditary on my side of the family, we all have

it)was IUGR no catch up growth...her geneticist thinks she looks it,

but not 'textbook', but he says they don't have to be. I don't know.

If it was excluded, I'd be clueless because what else could explain

it?

I feel for you...

Good luck to you with everything

mom to Autumn

> > >

> > > Well, we had a first Dr. H visit. We got into the

> > city fine. We

> > > had a 9:30 a.m. appointment and was seen at 10:00

> > and spent until

> > > 1:30 with Dr. H and her assistant. Sorry for

> > whoever was behind

> > > us. She did a very thorough examine. She said

> > that she does not

> > > consider is RSS or SGA. She said her

> > diagnosis is growth

> > > failure. She said that she has some

> > characteristics of RSS such

> > has

> > > the broaden forehead, high palate, the finger

> > curve (she said

> > > slight) and the webbed toes. However, she said

> > that 5% of the

> > > popoluation has the curved finger and about 8%

> > have the webbed

> > toes.

> > > She didn't think had a small chin.

> > >

> > > When I heard her say early on in the appointment

> > " Who thinks this

> > > child is RSS? " at that point I figured what that

> > diagnosis would

> > be

> > > and we told her the geneticist and local endo.

> > >

> > > She was not happy at all over the fact that we

> > used an estrogen

> > > cream on (twice) because her concern was it

> > could advance

> > her

> > > bone age.

> > >

> > > So from here we will be going back to see Dr. H in

> > 3 months to

> > check

> > > her growth and take it from there. It was nice to

> > know what she

> > was

> > > putting in her report since she types her notes

> > into the computer

> > > right into her report and she gave us a copy as we

> > left.

> > >

> > > B

> >

> >

> >

> >

>

>

> __________________________________________________

>