Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Sorry that I'm late in responding to this post (I just came across it last night). We also took our sons to the Pfeiffer Center in August and I had a few thoughts after reading your note. First, I think that they are without a doubt the highest possible caliber in the area of research and treatment of mental disorders. They are, however, new in the area of autism. They have done some really, really siginificant research, but I think they are still fine- tuning translating that into a treatmtent plan. I think they will get there eventually and are working hard with families to fine-tune their program and understand these kids systems. Second, as far as the cost (you mentioned that your ped. had several families that thought they were pricey), only $125 of the entire cost is their fee. All the rest of the fees are lab costs (outside labs) which they DO NOT add on to (we checked this out). Pfeiffer is non- profit and I think they really do keep the cost reasonable. We were there for approx. 2 1/2 hours. An initial visit for Dr. Amy is more like $300. As for the results for our boys, we have not seen a substantial change for our 3 year old that is autistic but they did uncover some things and they are working with us to fine tune dosages. Based on this, I really can't say I would recommend parents of autistic kids to travel there. We also took our 4 year old son, however, who is not autistic but has always been more " difficult " . Transitions were always harder for him than his brother, more pronounced mood swings, etc... Pfeiffer uncovered a genetic chemical imbalance in him that is being treated with high levels of zinc and B6 and within one day on their supplements our son was markedly improved. After two days his preschool teacher called to report a siginificant improvement in his attention, behavior, etc... Now, three weeks later it is like we have an entirely different child living with us - it has completely changed his life and ours (and comparatively it wasn't that bad to start with!). Sorry to be so lengthy, but for us the trip to Pfeiffer ended up being worth every penny, but again, if the only problem you're dealing with is autism, I'm wouldn't really recommend it. A good DAN! doctor could probably do more. For someone with bipolar or a related disorder it could be life changing. Hope this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Hi , Thanks for your great response. I just went to a conference that Pfeiffer sponsored on November 9th called " Choices for the Challenged Child " . Among others, Walsh (Pfeiffer head) spoke and Doris Rapp was the keynote speaker. They clearly work with children - and adults - with all types of issues, not just autism. In fact, a nutritionist who was one of the main speakers introduced herself as a " Pfeiffer Success Story " and told how they helped her beat chronic depression. I thought the Pfeiffer people were very candid about being fairly new to the field of autism. They seemed confident that they have figured out what causes autism - and now they are working on what to do about it. (They even said they are now doing research on permanently CURING the leaky gut but are not ready to announce their findings yet). They stressed that they are keeping very current on the latest research being done by others, and will recommend any treatments they feel are appropriate. Like you, we have had an interesting and unexpected outcome so far from our trip to Pfeiffer. We still have not gotten my son's test results back yet so he hasn't started any of the " real " treatments. However, since my son has had a lot of Gastrointestinal problems since birth, Pfeiffer recommended that we have him take AbsorbAid enzymes with meals to help his digestion and help improve absorption. He has done that for the last two weeks, and they have helped SO much already. Within half a day of starting the enzymes he was noticeably happier - and has stayed that way. His OT and ST have both separately commented on how much more social and verbal he has been for the last two weeks (they don't know about the enzymes) and how great his eye contact has been. Its actually amazing. So, so far...it's not what I was expecting, but they have really helped us already! Thanks again for sharing your experience.... Catie > Sorry that I'm late in responding to this post (I just came across it > last night). We also took our sons to the Pfeiffer Center in August > and I had a few thoughts after reading your note. > > First, I think that they are without a doubt the highest possible > caliber in the area of research and treatment of mental disorders. > They are, however, new in the area of autism. They have done some > really, really siginificant research, but I think they are still fine- > tuning translating that into a treatmtent plan. I think they will > get there eventually and are working hard with families to fine- tune > their program and understand these kids systems. > > Second, as far as the cost (you mentioned that your ped. had several > families that thought they were pricey), only $125 of the entire cost > is their fee. All the rest of the fees are lab costs (outside labs) > which they DO NOT add on to (we checked this out). Pfeiffer is non- > profit and I think they really do keep the cost reasonable. We were > there for approx. 2 1/2 hours. An initial visit for Dr. Amy is more > like $300. > > As for the results for our boys, we have not seen a substantial > change for our 3 year old that is autistic but they did uncover some > things and they are working with us to fine tune dosages. Based on > this, I really can't say I would recommend parents of autistic kids > to travel there. We also took our 4 year old son, however, who is > not autistic but has always been more " difficult " . Transitions were > always harder for him than his brother, more pronounced mood swings, > etc... Pfeiffer uncovered a genetic chemical imbalance in him that > is being treated with high levels of zinc and B6 and within one day > on their supplements our son was markedly improved. After two days > his preschool teacher called to report a siginificant improvement in > his attention, behavior, etc... Now, three weeks later it is like we > have an entirely different child living with us - it has completely > changed his life and ours (and comparatively it wasn't that bad to > start with!). > > Sorry to be so lengthy, but for us the trip to Pfeiffer ended up > being worth every penny, but again, if the only problem you're > dealing with is autism, I'm wouldn't really recommend it. A good > DAN! doctor could probably do more. For someone with bipolar or a > related disorder it could be life changing. > > Hope this helps! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2001 Report Share Posted November 22, 2001 Where do you get Absorbaid? My older son takes ZymePrime and he does very well with these enzymes, but I always like to consider other options. My younger son doesn't do well with the ZP, but seems to be ok with EnzymeAid from Kirkman's. I can't seem to tolerate either one so nevermind me. Thanks for your help. ( & Malachi's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 How do yu test to see if your child is missing the MT protein that the Pfieffer Institute has just finished the study on? Quote Link to comment Share on other sites More sharing options...
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