H1N1

[Guest guest]

Bob and Beth:

First of all I am in Holland, Mi. Ph . Call me any time.

I hope I was only being sarcastic about my government. However, Please consider the following. The powers that be--perhaps only misguided bureaurcrats--and not political appointees have selected out an age group that were exposed to the swine flu in the 1970s. Perhaps this is not based on a lie and only on a very bad assumption. One has to assume that every person living in the United States in this select age group had to either had swine flu or enough contact with swine flu to have built an immunity to swine flu. Think about this. Today's swine flu is not reaching everyone so they might build an immunity for some future swine flu outbreak and many folks in the select age group were not exposed to swine flu in any way during the 1970s. I never heard the name swine flu during the 1970s; however, I am classified as immune to this flu. So I will live like house bear this winter.

I would urge any citizen of the U. S. to study what happened to the volunteers at ground zero following 9/11. I am told most of these folks are suffering severe pulmonary problems at this time. Our government turned their back to any responsibility for their health care. The same government told them the air at ground zero posed no health risk.

Burns

To: Breathe-Support Sent: Sun, November 1, 2009 4:15:20 PMSubject: Re: H1N1

Beth,

Very well said, much better than I could do......We have a great moderator! I can not say that for the CDC. Hope you are all having a great time......I' m sure you are, i wanted to be there but wasn't able to this time. Hope its as beautiful a day there as it is here in Grand Rapids Mi. Of course, to me, every day is beautiful as long as I am above ground.

Bob IPF 1/09 5, bypasses 2001

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

,

I am 69 years old so I fall into the same group as you. I don't like it either. I'd love to get the shot just as much as you. Try to look at it this way, we are ALL in this boat together and its leaking, unfortunately not enough life boats have arrived yet....So lets let the pregnant women and children go first and we'll unfortunately have to wait for the next boat. It will come,it should already be here but, its not. So we'll just have to wait and hope and pray it will get here in time...... Its not comfortable, but its something we must do. Then, we should do what ever we can to make sure it doesn't happen again.

you are right about the ground zero stuff and we can go on to discuss other times of goverment coverups have taken place, nucular in the 50s, agent orange, etc., etc but to what end?

Bob 69 IPF 1/09 ,Mi

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Bob

i like the way you compared this to the "titanic"

i am more concerned about my pregnant daughter and my grandchildren than myself regarding h1n1

some people from ground zero have already died from pulmonary issues

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: H1N1To: Breathe-Support Date: Sunday, November 1, 2009, 7:06 PM

,

I am 69 years old so I fall into the same group as you. I don't like it either. I'd love to get the shot just as much as you. Try to look at it this way, we are ALL in this boat together and its leaking, unfortunately not enough life boats have arrived yet....So lets let the pregnant women and children go first and we'll unfortunately have to wait for the next boat. It will come,it should already be here but, its not. So we'll just have to wait and hope and pray it will get here in time...... Its not comfortable, but its something we must do. Then, we should do what ever we can to make sure it doesn't happen again.

you are right about the ground zero stuff and we can go on to discuss other times of goverment coverups have taken place, nucular in the 50s, agent orange, etc., etc but to what end?

Bob 69 IPF 1/09 ,Mi

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

To All:

I am new to the group and this is my first message so bear with

me please.

My wife is recuperating from lung cancer. It left her with

radiation and chemo damage to her lungs so she is on oxygen and two

inhalers. I have IPF and am participating in the Phase III Bosentan

experimental drug trial. We live in Arizona and are both 77 years

old. In previous years we went to the head of the line for flu shots but

this year discovered that while we could get the normal flu shot we were to go

to the end of the line for the scarce H1N1 shot since we are over 65. Our

pre-existing conditions offer no priority as far as H1N1 is concerned.

I discussed this with our pulmonologist. He explained that

the H1N1 virus was much different than the other “normal” flu viruses.

Other viruses are seasonal while H1N1 is not. It occurs during all 12

months of the year. We know little about it. We have observed that

it mainly attacks infants and younger people. It has been observed that for

some unknown reason people over age 65 very rarely get the disease. The

best theory is that at some time in our past we were exposed, perhaps more than

once, to a flu bug that was so similar to HiN1 that it conferred immunity on

us. This being the case, we no longer fear for our well-being and are

content to see our grandchildren in line ahead of us. We have had our “normal”

flu shots, per the doctor’s recommendation, and will get the H1N1 shots after

the supply is sufficient, probably by the end of November. But the fact

that this is “normal flu season” is meaningless because H1N1 has

been active all year long.

Jack McVickers

From:

Breathe-Support [mailto:Breathe-Support ] On

Behalf Of Burns

Sent: Sunday, November 01, 2009 4:34 PM

To: Breathe-Support

Subject: Re: H1N1

Bob and Beth:

First of all I am in Holland,

Mi. Ph . Call me any time.

I hope I was only being

sarcastic about my government. However, Please consider the

following. The powers that be--perhaps only misguided bureaurcrats--and

not political appointees have selected out an age group that were exposed to

the swine flu in the 1970s. Perhaps this is not based on a lie and

only on a very bad assumption. One has to assume that every person living in

the United States in this select age group had to either had swine flu or

enough contact with swine flu to have built an immunity to swine flu.

Think about this. Today's swine flu is not reaching everyone so they

might build an immunity for some future swine flu outbreak and many folks in

the select age group were not exposed to swine flu in any way during the

1970s. I never heard the name swine flu during the 1970s; however, I am

classified as immune to this flu. So I will live like house bear this

winter.

I would urge any citizen of

the U. S. to study what happened to the volunteers at ground zero following

9/11. I am told most of these folks are suffering severe pulmonary

problems at this time. Our government turned their back to any

responsibility for their health care. The same government told them the

air at ground zero posed no health risk.

Burns

From: ROBERT L SCIBA

To: Breathe-Support

Sent: Sun, November 1, 2009 4:15:20 PM

Subject: Re: H1N1

Beth,

Very well said, much better than I could do......We

have a great moderator! I can not say that for the CDC. Hope you are

all having a great time......I' m sure you are, i wanted to be there

but wasn't able to this time. Hope its as beautiful a day there as

it is here in Grand Rapids Mi. Of course, to me, every day is beautiful as

long as I am above ground.

Bob IPF 1/09 5, bypasses 2001

From: Beth <mbmurtha (AT) yahoo (DOT) com>

Subject: Checking in from Chattanooga TN

To: Breathe-Support@ yahoogroups. com

Date: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe

arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane.

(well Jane just came down for a couple of hours to chat this evening but she'll

be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report.

I'm so happy to be here!! Off to bed shortly, I'm really tired but

once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

It all comes down to money. Doesn't it?PJ in OH, 54, IPF 09, Sjogren's 95 Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Very well said !

Your analohy is good.

Geeta

>

>

> From: Beth <mbmurtha (AT) yahoo (DOT) com>

> Subject: Checking in from Chattanooga TN

> To: Breathe-Support@ yahoogroups. com

> Date: Thursday, October 29, 2009, 8:45 PM

>

>

>  

>

>

>

>

> Hi all!

> After a longish day in the car I'm happy to report the safe arrival in

Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just

came down for a couple of hours to chat this evening but she'll be back tomorrow

with Eddie.

> Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!!

Off to bed shortly, I'm really tired but once again, supremely happy!

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

[Guest guest]

Welcome Jack

sorry you're here

but glad you found us

thanks for informing us of your experience with the H1n1 flu vaccine

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: RE: H1N1To: Breathe-Support Date: Monday, November 2, 2009, 1:55 AM

To All:

I am new to the group and this is my first message so bear with me please.

My wife is recuperating from lung cancer. It left her with radiation and chemo damage to her lungs so she is on oxygen and two inhalers. I have IPF and am participating in the Phase III Bosentan experimental drug trial. We live in Arizona and are both 77 years old. In previous years we went to the head of the line for flu shots but this year discovered that while we could get the normal flu shot we were to go to the end of the line for the scarce H1N1 shot since we are over 65. Our pre-existing conditions offer no priority as far as H1N1 is concerned.

I discussed this with our pulmonologist. He explained that the H1N1 virus was much different than the other “normal†flu viruses. Other viruses are seasonal while H1N1 is not. It occurs during all 12 months of the year. We know little about it. We have observed that it mainly attacks infants and younger people. It has been observed that for some unknown reason people over age 65 very rarely get the disease. The best theory is that at some time in our past we were exposed, perhaps more than once, to a flu bug that was so similar to HiN1 that it conferred immunity on us. This being the case, we no longer fear for our well-being and are content to see our grandchildren in line ahead of us. We have had our “normal†flu shots, per the doctor’s recommendation, and will get the H1N1 shots after the supply is sufficient, probably by

the end of November. But the fact that this is “normal flu season†is meaningless because H1N1 has been active all year long.

Jack McVickers

From: Breathe-Support@ yahoogroups. com [mailto:Breathe- Support@yahoogro ups.com] On Behalf Of BurnsSent: Sunday, November 01, 2009 4:34 PMTo: Breathe-Support@ yahoogroups. comSubject: Re: H1N1

Bob and Beth:

First of all I am in Holland, Mi. Ph . Call me any time.

I hope I was only being sarcastic about my government. However, Please consider the following. The powers that be--perhaps only misguided bureaurcrats- -and not political appointees have selected out an age group that were exposed to the swine flu in the 1970s. Perhaps this is not based on a lie and only on a very bad assumption. One has to assume that every person living in the United States in this select age group had to either had swine flu or enough contact with swine flu to have built an immunity to swine flu. Think about this. Today's swine flu is not reaching everyone so they might build an immunity for some future swine flu outbreak and many folks in the select age group were not exposed to swine flu in any way during the 1970s. I never heard the name swine flu during the 1970s; however, I am classified as immune to this flu. So I will live like

house bear this winter.

I would urge any citizen of the U. S. to study what happened to the volunteers at ground zero following 9/11. I am told most of these folks are suffering severe pulmonary problems at this time. Our government turned their back to any responsibility for their health care. The same government told them the air at ground zero posed no health risk.

Burns

From: ROBERT L SCIBA <scibar (AT) sbcglobal (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, November 1, 2009 4:15:20 PMSubject: Re: H1N1

Beth,

Very well said, much better than I could do......We have a great moderator! I can not say that for the CDC. Hope you are all having a great time......I' m sure you are, i wanted to be there but wasn't able to this time. Hope its as beautiful a day there as it is here in Grand Rapids Mi. Of course, to me, every day is beautiful as long as I am above ground.

Bob IPF 1/09 5, bypasses 2001

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Jack McVickers...Welcome to the

group.

As we say here...glad you found us...sorry you needed to!

Most of us have spouses who take care of us in some way..

Many of us also take care of them too! That's the deal with marriage..

good and bad!

My husband has cluster headaches which incapacitate him sometimes for

months at a time.

When they hit, he starts taking Prednisone..I already take it...so we

have to be really careful not to

get on each others nerves...emotions get really exaggerated!

He's gone through several surgeries in the last couple of years and

we've needed to have outside help

but that's what needs to be done.

With My NSIP ( form of Pf) I need 24/7 O2 and many medications and

loads of rest time in between

anything that might seem active. He's retired now so he's able to help

me more.

Often, he's the chief cook and bottle washer and shopper too.

At other times I'm able to do that.

Again, Welcome to the "Air Family" and take care of yourself and

give hugs to your wife too!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Jack McVickers wrote:

To

All:

I

am new to the group and this is my first message so bear with

me please.

My

wife is recuperating from lung cancer. It left her with

radiation and chemo damage to her lungs so she is on oxygen and two

inhalers. I have IPF and am participating in the Phase III Bosentan

experimental drug trial. We live in Arizona and are both 77 years

old. In previous years we went to the head of the line for flu shots

but

this year discovered that while we could get the normal flu shot we

were to go

to the end of the line for the scarce H1N1 shot since we are over 65.

Our

pre-existing conditions offer no priority as far as H1N1 is concerned.

I

discussed this with our pulmonologist. He explained that

the H1N1 virus was much different than the other “normal” flu viruses.

Other viruses are seasonal while H1N1 is not. It occurs during all 12

months of the year. We know little about it. We have observed that

it mainly attacks infants and younger people. It has been observed

that for

some unknown reason people over age 65 very rarely get the disease.

The

best theory is that at some time in our past we were exposed, perhaps

more than

once, to a flu bug that was so similar to HiN1 that it conferred

immunity on

us. This being the case, we no longer fear for our well-being and are

content to see our grandchildren in line ahead of us. We have had our

“normal”

flu shots, per the doctor’s recommendation, and will get the H1N1 shots

after

the supply is sufficient, probably by the end of November. But the

fact

that this is “normal flu season” is meaningless because H1N1 has

been active all year long.

Jack

McVickers

From:

Breathe-Support [mailto:Breathe-Support ]

On

Behalf Of Burns

Sent: Sunday, November 01, 2009 4:34 PM

To: Breathe-Support

Subject: Re: H1N1

Bob and Beth:

First of all I am

in Holland,

Mi. Ph . Call me any time.

I hope I was only

being

sarcastic about my government. However, Please consider the

following. The powers that be--perhaps only misguided bureaurcrats--and

not political appointees have selected out an age group that were

exposed to

the swine flu in the 1970s. Perhaps this is not based on a lie and

only on a very bad assumption. One has to assume that every person

living in

the United States in this select age group had to either had swine flu

or

enough contact with swine flu to have built an immunity to swine flu.

Think about this. Today's swine flu is not reaching everyone so they

might build an immunity for some future swine flu outbreak and many

folks in

the select age group were not exposed to swine flu in any way during

the

1970s. I never heard the name swine flu during the 1970s; however, I

am

classified as immune to this flu. So I will live like house bear this

winter.

I would urge any

citizen of

the U. S. to study what happened to the volunteers at ground zero

following

9/11. I am told most of these folks are suffering severe pulmonary

problems at this time. Our government turned their back to any

responsibility for their health care. The same government told them

the

air at ground zero posed no health risk.

Burns

From: ROBERT L SCIBA

<scibar (AT) sbcglobal (DOT) net>

To: Breathe-Support

Sent: Sun, November 1, 2009 4:15:20 PM

Subject: Re: H1N1

Beth,

Very well said, much better than I could

do......We have a great moderator! I can not say that for the CDC.

Hope you are all having a great time......I' m sure you are, i wanted

to be there but wasn't able to this time. Hope its as beautiful a day

there as it is here in Grand Rapids Mi. Of course, to me, every day is

beautiful as long as I am above ground.

Bob IPF 1/09 5, bypasses 2001

From: Beth <mbmurtha (AT) yahoo (DOT) com>

Subject: Checking in from Chattanooga TN

To: Breathe-Support@ yahoogroups. com

Date: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car

I'm happy to report the safe arrival in Chattanooga of myself, Peggy

and , Teri Marietta and Jane. (well Jane just came down for a

couple of hours to chat this evening but she'll be back tomorrow

with Eddie.

Tomorrow we'll have lots more

arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm

really tired but once again, supremely happy!

Beth

Moderator

Fibrotic

NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

,

I'm 99.9% positive that you WILL be eligible for an H1N1 vaccine once the initial supply problems have been resolved. When the supply is very short those at the highest risk get 'first dibs'. As hard as it may be to believe, small children and pregnant women are at higher risk for dying from H1N1 than a man or woman in their 50's 60's or 70's with an underlying medical condition. That doesn't mean we aren't at risk. We are. It's just that my risk, your risk are lower than the average 4 year old.

I'm sorry you find that US to be "one big and very ignorant island". That's a fairly harsh assessment but you are entitled to your opinion.

I would urge you to continue to pursue H1N1 immunization. I hope you can receive your dose very soon. Take care of yourself.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Mon, November 2, 2009 6:52:51 PMSubject: Re: Re: H1N1

: I am very happy to have nearly everyone get a shot before I do. My anger came from the understanding that I would never be eligible. That is still my understanding.

As to what end: I lived outside of the United States for 18 years. I found the United States to one big island an a very ignorant island.

To what end: We all need to seek truth. Our media and our government mislead us far too often. When it comes to any government-- money is about politics and politics is about money. The break down in the delivery of the swine flu virus is nothing new. This is something we have come to expect. I still think we should care.

From: Gita <gita1_v (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Mon, November 2, 2009 7:41:38 AMSubject: Re: H1N1

Very well said !Your analohy is good.Geeta> > > From: Beth <mbmurtha (AT) yahoo (DOT) com>> Subject: Checking in from Chattanooga TN> To: Breathe-Support@ yahoogroups. com> Date: Thursday, October 29, 2009, 8:45 PM> > > > > > > > Hi all! > After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.> Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> >

>

[Guest guest]

Beth: Thanks.

To: Breathe-Support Sent: Mon, November 2, 2009 7:03:45 PMSubject: Re: Re: H1N1

,

I'm 99.9% positive that you WILL be eligible for an H1N1 vaccine once the initial supply problems have been resolved. When the supply is very short those at the highest risk get 'first dibs'. As hard as it may be to believe, small children and pregnant women are at higher risk for dying from H1N1 than a man or woman in their 50's 60's or 70's with an underlying medical condition. That doesn't mean we aren't at risk. We are. It's just that my risk, your risk are lower than the average 4 year old.

I'm sorry you find that US to be "one big and very ignorant island". That's a fairly harsh assessment but you are entitled to your opinion.

I would urge you to continue to pursue H1N1 immunization. I hope you can receive your dose very soon. Take care of yourself.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Burns <johnburns999@ att.net>To: Breathe-Support@ yahoogroups. comSent: Mon, November 2, 2009 6:52:51 PMSubject: Re: Re: H1N1

: I am very happy to have nearly everyone get a shot before I do. My anger came from the understanding that I would never be eligible. That is still my understanding.

As to what end: I lived outside of the United States for 18 years. I found the United States to one big island an a very ignorant island.

To what end: We all need to seek truth. Our media and our government mislead us far too often. When it comes to any government-- money is about politics and politics is about money. The break down in the delivery of the swine flu virus is nothing new. This is something we have come to expect. I still think we should care.

From: Gita <gita1_v (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Mon, November 2, 2009 7:41:38 AMSubject: Re: H1N1

Very well said !Your analohy is good.Geeta> > > From: Beth <mbmurtha (AT) yahoo (DOT) com>> Subject: Checking in from Chattanooga TN> To: Breathe-Support@ yahoogroups. com> Date: Thursday,

October 29, 2009, 8:45 PM> > > > > > > > Hi all! > After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.> Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >

[Guest guest]

Jack,

Welcome to Breathe Support. You and your wife have so much on your plates right now, it makes my head hurt to think about it. You will both be in my prayers.

Thank you for that very clear and succinct explanation of the H1N1 situation. Your understanding of it matches my own and everyone who wants a shot will be able to get one in a matter of a few weeks. In the meantime it behooves us all to be cautious and take extra good care of ourselves.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Mon, November 2, 2009 1:55:47 AMSubject: RE: H1N1

To All:

I am new to the group and this is my first message so bear with me please.

My wife is recuperating from lung cancer. It left her with radiation and chemo damage to her lungs so she is on oxygen and two inhalers. I have IPF and am participating in the Phase III Bosentan experimental drug trial. We live in Arizona and are both 77 years old. In previous years we went to the head of the line for flu shots but this year discovered that while we could get the normal flu shot we were to go to the end of the line for the scarce H1N1 shot since we are over 65. Our pre-existing conditions offer no priority as far as H1N1 is concerned.

I discussed this with our pulmonologist. He explained that the H1N1 virus was much different than the other “normal†flu viruses. Other viruses are seasonal while H1N1 is not. It occurs during all 12 months of the year. We know little about it. We have observed that it mainly attacks infants and younger people. It has been observed that for some unknown reason people over age 65 very rarely get the disease. The best theory is that at some time in our past we were exposed, perhaps more than once, to a flu bug that was so similar to HiN1 that it conferred immunity on us. This being the case, we no longer fear for our well-being and are content to see our grandchildren in line ahead of us. We have had our “normal†flu shots, per the doctor’s recommendation, and will get the H1N1 shots after the supply is sufficient, probably by

the end of November. But the fact that this is “normal flu season†is meaningless because H1N1 has been active all year long.

Jack McVickers

From: Breathe-Support@ yahoogroups. com [mailto:Breathe- Support@yahoogro ups.com] On Behalf Of BurnsSent: Sunday, November 01, 2009 4:34 PMTo: Breathe-Support@ yahoogroups. comSubject: Re: H1N1

Bob and Beth:

First of all I am in Holland, Mi. Ph . Call me any time.

I hope I was only being sarcastic about my government. However, Please consider the following. The powers that be--perhaps only misguided bureaurcrats- -and not political appointees have selected out an age group that were exposed to the swine flu in the 1970s. Perhaps this is not based on a lie and only on a very bad assumption. One has to assume that every person living in the United States in this select age group had to either had swine flu or enough contact with swine flu to have built an immunity to swine flu. Think about this. Today's swine flu is not reaching everyone so they might build an immunity for some future swine flu outbreak and many folks in the select age group were not exposed to swine flu in any way during the 1970s. I never heard the name swine flu during the 1970s; however, I am classified as immune to this flu. So I will live like

house bear this winter.

I would urge any citizen of the U. S. to study what happened to the volunteers at ground zero following 9/11. I am told most of these folks are suffering severe pulmonary problems at this time. Our government turned their back to any responsibility for their health care. The same government told them the air at ground zero posed no health risk.

Burns

From: ROBERT L SCIBA <scibar (AT) sbcglobal (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sun, November 1, 2009 4:15:20 PMSubject: Re: H1N1

Beth,

Very well said, much better than I could do......We have a great moderator! I can not say that for the CDC. Hope you are all having a great time......I' m sure you are, i wanted to be there but wasn't able to this time. Hope its as beautiful a day there as it is here in Grand Rapids Mi. Of course, to me, every day is beautiful as long as I am above ground.

Bob IPF 1/09 5, bypasses 2001

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Checking in from Chattanooga TNTo: Breathe-Support@ yahoogroups. comDate: Thursday, October 29, 2009, 8:45 PM

Hi all!

After a longish day in the car I'm happy to report the safe arrival in Chattanooga of myself, Peggy and , Teri Marietta and Jane. (well Jane just came down for a couple of hours to chat this evening but she'll be back tomorrow with Eddie.

Tomorrow we'll have lots more arrivals to report. I'm so happy to be here!! Off to bed shortly, I'm really tired but once again, supremely happy!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

I have an appointment to get the H1N1 next Tuesday ONLY because the people at

the Mullen clinics in AZ and the Maricopa County Health Department screwed up

originally and advertised on their sites that the clinics they had were for

kids, pregnant women and people 24-64 with underlying health conditions. When

they wouldn't give one to me in October I emailed and complained royally. Some

person on their last day called me on Monday when I was at NJH and said they

would give me one but basically they were making all sort of special exceptions

for me and made me feel like I was gonna kill legions of children by stealing

that one shot. I still called them today and just got off the phone with a

woman who again made me feel like I would sealing the fate of hundreds of

children by doing this. Yeah right! She did not like that I could give her

chapter and verse on my condition, that I knew they had originally put it on the

website, and that I really didn't care what her opinion of me was. I will get

the shot next Tuesday and feel a whole lot better.

Dyane Phoenix ipf 02

[Guest guest]

Just got off the Maricopa county website which has a breakdown of people who have died from h1n1. Out of 48 people 38 had underlying conditions such as asthma, cancer, heart disease, lung disease, immunosupression, obesity and diabetes, 25 were over 50. Only 8 were children.Dyane>> I have an appointment to get the H1N1 next Tuesday ONLY because the people at the Mullen clinics in AZ and the Maricopa County Health Department screwed up originally and advertised on their sites that the clinics they had were for kids, pregnant women and people 24-64 with underlying health conditions. When they wouldn't give one to me in October I emailed and complained royally. Some person on their last day called me on Monday when I was at NJH and said they would give me one but basically they were making all sort of special exceptions for me and made me feel like I was gonna kill legions of children by stealing that one shot. I still called them today and just got off the phone with a woman who again made me feel like I would sealing the fate of hundreds of children by doing this. Yeah right! She did not like that I could give her chapter and verse on my condition, that I knew they had originally put it on the website, and that I really didn't care what her opinion of me was. I will get the shot next Tuesday and feel a whole lot better.> > Dyane Phoenix ipf 02>