Re: weight again and periactin and docs in boston area

[Guest guest]

- Families have written to me liking a GI doctor named Al

Lichtner at Children's Hospital in Boston, he is the head of GI.

Also, try emailing Mark at Mdppdm@.... He lives in MA and his

daughter had a g-tube, so I am guessing he will know of a good GI

doctor familiar with RSS.

Sorry about your father!

>

> Hello all!

> It has been awhile since I last posted because of the holidays

etc.

> My 80year old Dad came up for the holidays after run-in with a

> lawnmower at his home in Florida. It kind of fell on him! Ooops,

not

> feeling well, must be time to go see up North. Now, after

two

> hospitalizations for a leg trauma he is in a nursing home/rehab

for

> healing. Talk about the sandwich generation!

> but on to my first concern, my nonRSS-SGA son. We started on

> Periactin in November after our appoinment with Dr. H. We are now

and

> have been up to full strength for one month. has lost a

pound!

> And we still don't really have a GI doctor to follow him in

boston.

> Any ideas? I am just about out of them! Thanks in advance!!

P.

[Guest guest]

Hello,

Hi that's too bad about your dad. My mom is now at Spaulding for therapy.

She was on a vent over the holidays but is doing good. The Gi doctor we see is

Aubrey Katz. He is in Waltham and at New england medical center. I find him

good. He was the one that started us on this search of na not growing he

thought it was Russel Silver syndrome and called our pedi to get a endo consult.

na likes him, not as much as her ent Dr. Cunningham ( i don't think she

will ever stop talking about him) He treats the whole child is what i found with

us.

Marcy na's mom now 27lbs(YES!!!!!) 34.75 inches( lets just say 35

inches!!!!)

poundskaren wrote:

Hello all!

It has been awhile since I last posted because of the holidays etc.

My 80year old Dad came up for the holidays after run-in with a

lawnmower at his home in Florida. It kind of fell on him! Ooops, not

feeling well, must be time to go see up North. Now, after two

hospitalizations for a leg trauma he is in a nursing home/rehab for

healing. Talk about the sandwich generation!

but on to my first concern, my nonRSS-SGA son. We started on

Periactin in November after our appoinment with Dr. H. We are now and

have been up to full strength for one month. has lost a pound!

And we still don't really have a GI doctor to follow him in boston.

Any ideas? I am just about out of them! Thanks in advance!! P.

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