Re: Definition....Peggy/Sher

[Guest guest]

Peggy...Building up a tolerance to the pain meds surely does take place.

Ha ha, yeah, you would no doubt sleep all day on one of mine.

I'm feeling a bit better today and I'm cutting back on some of my meds. I get tired of that 'medicated' feeling.

Finished the Cipro for the bladder infection. Hope that damned thing is over with!

I love fruit...Rich brought in fruit and Lysa brought me fruit on her last visit. We had gnats all over the kitchen! lol.

Knowing you Peggy, you will...

Keep on keepin' on!

Love ya

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: Definition

Hi Bob, I happened to ask my Dr this very question.. It is only relevant to each ones disease. We have had some here that died within a few week of Dx. then some that did well for quite a few years after the supposed 3 to 5. It is like when we hit a drop. Which I have become very familiar with.. You KNOW it is advancing. I ask is this end stage that I am experiencing and she said the best way to describe it is that is just the way this disease advances we are never sure how much or how quickly, but yes I am in an advanced stage. Life as I live it is dependent on my husband (poor thing) I use a wheel chair every time we go out. BUT I still can get my own glass of water.. I tried to help put a sheet on my bed yesterday and nearly crooked.. no more of that either.. So it is by trying to do that we learn just how far into this hateful disease we are. There are days I just pray to last until after out Oct. get together. (TRUE) But I know I will be here until I'm not but believe me I will never say done.. can't do anymore I will admit to but I am hanging on.

I'm not sure I have answered you the way you wanted. My Dr. will not say end stages--it is just where I am. Live and be happy. So I am. I do think it is time for you to have a heart to heart about using 02. You will feel much better..

This disease is totally indescribable. Don't let numbers and reports ruin your today or tomorrow. God is after all in control.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Anyone know how the term end-stage is typically used in relation to this disease? As in “There is excessive end-stage lung disease…” Is this just a common modifier used in any diagnosis of Pulmonary Fibrosis? It’s certainly not a nice term to see in your report….

Bob Dopher IPF 04/07