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Re: any ideas?

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Hi

I have to say that I agree with Ken. If the geneticist is basing his

decision solely on birth weight, then he's wrong! I, too, know several RSS

kids that weighed more at birth, and plenty more who weighed significantly

less!

I would try to see either a ped endo, or try to make it to the MAGIC

convention in Chicago in July! I would think that at 18 months of age, and

only weighing 12# he would definitely fall under some type of growth

disorder.

The RSS " look " is unique. And we all comment on how much our kids " look "

alike, so maybe your son is RSS, but because it's a clinical diagnosis, it's

being missed??

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

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