Checking girls - reproduction

January 12, 2005

- You are right, they should start checking. However, sadly

this requires the physicians to know to check. We are working on

physician education plans within the RSS/SGA division of MAGIC now.

If you or anyone else would like to volunteer either time or money,

please contact me privately at magicrss@ mindspring.com. We need

all the help we can get.

Salem and Katy Frissora

> <<so it's not

> > surprising that this possible new information

> > had never been noted before, since who would be

> > looking at a little RSS girl's reproductive

> > system? <wink>>>

>

> They should start checking... Because 1) they check the

reproductive system

> of girls with s.. and 2) they check the boys (testicles etc)

with

> SGA/RSS.. So why not the girls???

>

> R

> Mom to:

> Jed (1/22/93) Tic disorder, Asthma, Heart Murmur.....

> Liam (12/12/00) SGA/RSS, Asthma, Epilepsy, Hearing Impaired,

Sensory Issues,

> Food Allergies, Heart Murmur...

>

> Orlando Fl

>

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1/10/2005

January 12, 2005

Hi laura i thought that they check 'turner girls' because they know it can be an

issues,but as no one knows about issues with rss girls no one would check. As

sharon said its much easier to tell any abnormalities with boys but you cant go

ssearching around girls for problems,my issues were only definately diagnosed by

mri,ultrasound ,x-rays, and lots of doctors staring

Salem wrote: