Re: 28 year old female with RSS--Thank You Cara!!

[Guest guest]

rebacca,

you are most wellcome i see you have yahoo messanger a few of us here have it

too if you would like to chat like that i way too will send my id to you. as you

know they all have there good days and there bad day we are still twicking thing

for him but i tell you in the last year he has come a long way and i have alot

of thankss to this group for it.

cara mom to jacob

Wray wrote:

Cara,

Hi Cara!! Thank you for taking the time to welcome me and introduce yourself.

I am now involved with the RSS People Adult group as well (thank you for the

idea). I hope is doing well!! I'd love to hear all about him, and if you

have questions for me I'd be more than happy to share.

-RSS-age28

cara schobert wrote:

hi rebecca,

my name is cara my son is SGA although thought to be RSS until last july.

wellcome we love to hear others expearnces on there issues it helps to see

someone who has ben their. there are about 5 other adults that chat here as

well. and their is an adult rss group i although it is not quite as active as we

are here. i think it is called rsspeople but not for sure

again wellcome happy to have you

cara mom to jacob 8 SGA GHT peractin zertec zantac

beccawray95 wrote:

Hi everyone!

My name is . I am a twenty -eight year old female who was

diagnosed with Silver Syndrom at age one and a half. I have

had very little opportunity to network or visit with other persons

and families affected by RSS.

As I look over the different messages and photos you all have posted

I am amazed at the similarities of my own life. There are many

struggles with RSS as a child, adolescent, and as an adult. I am so

thankful there is now a support system in place for children and

familes.

I am now four feet 9 and a half inches tall and weigh about 75

pounds. I am small but mighty! I have a college degree in

psychology, and spend my days doing counseling and case management

for children and families.

I would love to visit with other adults with RSS, but also would

love to visit with parents or children. I would like to answer any

questions or help in any way I can. I will try and post my pictures

soon!

Hope to hear from you all soon!!

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