Infinity - a pumping success!

May 15, 2005

I know I don't post often and most posts are when we are at our lowest point but

I do just want to say a huge thank you to all who offered advice on feeding

pumps and particularly to Meribeth for her contacts for a Zevex infinity pump.

It is really great, accurate, reliable and so light (at 411 grammes) that

(at just 9 kilos) can put it on his back for several hours in the day. He runs

around the playground ( a first for him) and the alarm doesn't go off when he is

not 100% upright! is on a 24 hour feeding regime.

Despite all of 's struggles, I couldn't help but wonder at how small the

world is these days and what greater potential there is for our kids to develop.

We had this pump imported from the US in this tiny nursery in Tokyo with a

british person explaining how to use it to a teacher from southern Japan and

them all beavering away to come up with the best utensils for the local weather

and nursery functionality.....When I took in today they had practiced

with some used feeding bags and the head of the nursery had rooted out a soft,

disposable cooler bag that she was given a while back when she bought some

ice-cream. They had cut it and chopped it and molded it into a sort of bag to

put around the feed before the 30-odd degree summer heat hits..They were testing

it with water and a frozen coolant when I got there....2 hours, still cold and

counting! ..

For anyone else who might want to give it a try - Zevex could not sell a pump

directly overseas either through their overseas reps in UK or Canada or

directly.I got mine through Meribeth's provider:

Northwest Enteral Supply

purchasing manager - Havlicek

jhavlicek@...

It cost 1330 dollars for pump and attachments and 232 dollars for 30 days of

bags.

I guess this could be expensive since it is such a new pump but well worth it

for such small kids.

I didn't speak to her but I understand the owner also has a child with special

needs and set up the company to provide a more friendly service to families than

they can often get from bigger players.

We use a little rucksack that we found but I understand the mini packs from

Zevex are now also on sale. I'm sure they will be at the convention showing off

their wares!

Debi

mother to in Japan, aged 3 years 6 months, 9.0 kilos, 85cm, RSS, GH,

dumping, milk/soy protein allergies?

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