Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hi, Just wanted to know if anyone could use some size 3 shoes. Jonah is now size 4 and 5 for boots!!! Some are new and some gently used. Could really be for boys or girls. (There are sneakers that are definitely for a girl that were never used; my husband got them!) Let me know, I can mail them out. , Jonah's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 --- Hi, My daughter is almost 5 months, it's been 2 weeks now since she had aher DBB( this is the second time) the first time she wore the shoes she cried so much and we had to take her back to the doctor so that she can recast her. We were so worried for her but finally we got another doctor who really helped us. She is doing fine with the shoes she does not cry when we put them, it's only at nights that she does not sleep through the night anymore she gets up every now and then, but if we push her feet down(she sleeps with her feet up in the air) and put her pucifier back in her mouth and she goes back to sleep. So I think you should look into her feet maybe they not fully corrected, like waht said. You should get a second opinion. Take. lutfa: Mother to:nah Bcf January 30,2006 In nosurgery4clubfoot , " " wrote: > > There are really only a few reasons that the DBB (or FAB - foot > abduction brace) makes a baby cranky. > 1. User error > 2. Brace not set up correctly > 3. Feet not fully corrected > > My first instinct in this case is to go with #2. The absolute, all > time, biggest mistake in brace set up is the length of the bar. Many > orthotists insist on making the bar too short for baby's comfort. The > bar should be set up so that the heels of the shoes are shoulder width > apart. The easiest way to measure this is not with a tape measure, > but by sitting the shoes on the bar down and laying baby so that her > shoulders are between the heels of the shoes. If they fit comfortably > between, i.e. are barely touching the shoes without scrunching her > shoulders they are okay. Otherwise, the bar is too short and needs to > be lengthened or if it's not an adjustable one, they need to get you a > new one asap. If this is the problem, you will notice an immediate > change in your daughter's demeanor while wearing the shoes. There are > also lots of other issues that can be wrong with the set up of the > brace & shoes. If the bar length is not the culprit then we can look > at some of the others. > > Regarding #1 & #3 above, these are always possibilities but you didn't > mention her having sores or blisters which are usually caused by poor > fitting shoes or shoes that are not being applied correctly. And > finally, feet that are not fully corrected -- this too is often a > factor but we can look at all the other possibilities first and go > from there. > > A few questions for you that might help us help you a bit more, first, > who is your daughter's doctor, and can you tell us a little about her > treatment up to this point, that is, before she went into the shoes > and bar. Does she have any sore spots on her feet from the shoes? > Are you having problems with the shoes slipping off or her heels > rising up in the shoes? > > Welcome to the group, I'm sure we can help you get to the bottom of > this very quickly - there's no reason your daughter should be so > unhappy with the shoes. They can be trying, but after two months it > should be getting a lot better -- it's clearly not, so we'll be happy > to help you figure out why. > > Hang in there! > > > Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 12hrs/day) > > > > > > > My daughter is 5 months old she has had the dennis brown bar on for 2 > > months, the doctor said it would be hard the first two weeks w/ her > > getting use to them but now after 2 months she still hates her shoes > > and bar. Some days are worse than others, she will cry the entire day, > > when we take her shoes off she is a totally different baby. The doctor > > said her shoes need to be on 23 hrs a day but we get an average of 12 > > to 18 hrs. She will not sleep at night with them on. Does anyone have > > any helpful ideas?? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 When Aslyn was a week old she had casts put on both legs (taken off and cahnged every week) til she was 9 weeks old then they lengthened her achilles tendons that same day they put casts on for 3 weeks. At our 3 week the Doctor ordered the shoes and bar, it took 2 1/2 weeks til they came in. During this time she had nothing on her feet. I feel that this is where the problem happened. Tomorrow we see the doctor again I am hoping he puts the casts on again for a couple weeks, Her Doctor is Barry Berger town, Pennsylvania. She does not have any sore spots on her feet. At first we had a huge problem with her shoes falling off but now they stay on. I am very thankful I found this support group because tomorrow when we go to the doctor I have questions for him. wrote: There are really only a few reasons that the DBB (or FAB - foot abduction brace) makes a baby cranky. 1. User error 2. Brace not set up correctly 3. Feet not fully corrected My first instinct in this case is to go with #2. The absolute, all time, biggest mistake in brace set up is the length of the bar. Many orthotists insist on making the bar too short for baby's comfort. The bar should be set up so that the heels of the shoes are shoulder width apart. The easiest way to measure this is not with a tape measure, but by sitting the shoes on the bar down and laying baby so that her shoulders are between the heels of the shoes. If they fit comfortably between, i.e. are barely touching the shoes without scrunching her shoulders they are okay. Otherwise, the bar is too short and needs to be lengthened or if it's not an adjustable one, they need to get you a new one asap. If this is the problem, you will notice an immediate change in your daughter's demeanor while wearing the shoes. There are also lots of other issues that can be wrong with the set up of the brace & shoes. If the bar length is not the culprit then we can look at some of the others. Regarding #1 & #3 above, these are always possibilities but you didn't mention her having sores or blisters which are usually caused by poor fitting shoes or shoes that are not being applied correctly. And finally, feet that are not fully corrected -- this too is often a factor but we can look at all the other possibilities first and go from there. A few questions for you that might help us help you a bit more, first, who is your daughter's doctor, and can you tell us a little about her treatment up to this point, that is, before she went into the shoes and bar. Does she have any sore spots on her feet from the shoes? Are you having problems with the shoes slipping off or her heels rising up in the shoes? Welcome to the group, I'm sure we can help you get to the bottom of this very quickly - there's no reason your daughter should be so unhappy with the shoes. They can be trying, but after two months it should be getting a lot better -- it's clearly not, so we'll be happy to help you figure out why. Hang in there! Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 12hrs/day) > > My daughter is 5 months old she has had the dennis brown bar on for 2 > months, the doctor said it would be hard the first two weeks w/ her > getting use to them but now after 2 months she still hates her shoes > and bar. Some days are worse than others, she will cry the entire day, > when we take her shoes off she is a totally different baby. The doctor > said her shoes need to be on 23 hrs a day but we get an average of 12 > to 18 hrs. She will not sleep at night with them on. Does anyone have > any helpful ideas?? > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Never leave feet uncasted or unbraced. The doc should have known this. She probably relapsed some during that time. Even a few hours unbraced could be enough for some feet to relapse. If the doc isn't interested in re-casting, you'll need to take her to someone else for a second opinion. PA is not known to be a hot spot for Ponseti Docs. Many parents end up going to Baltimore for re-correction. You may want to consider it depending on what the doc says tomorrow. Let us know what happens. It does sound like she probably needs some more correction. If you can, take pictures of her feet tonight so you can compare them as you go. Stand her up and take pictures directly from the front and back (have her bear weight on a hard surface). Use your whole palm to press her foot as far up towards her head as it'll go and take a profile pic (want to see how far past " L " her foot dorsiflexes). One each of her soles and perhaps one from each outside while she's standing bearing weight. If you can do this, we'd love to take a peek at her feet too. Kori At 05:50 PM 6/26/2006, you wrote: >When Aslyn was a week old she had casts put on both legs (taken off >and cahnged every week) til she was 9 weeks old then they lengthened >her achilles tendons that same day they put casts on for 3 weeks. At >our 3 week the Doctor ordered the shoes and bar, it took 2 1/2 weeks >til they came in. During this time she had nothing on her feet. I >feel that this is where the problem happened. Tomorrow we see the >doctor again I am hoping he puts the casts on again for a couple >weeks, Her Doctor is Barry Berger town, Pennsylvania. She does >not have any sore spots on her feet. At first we had a huge problem >with her shoes falling off but now they stay on. I am very thankful >I found this support group because tomorrow when we go to the doctor >I have questions for him. > wrote: >There are really only a few reasons that the DBB (or FAB - foot >abduction brace) makes a baby cranky. >1. User error >2. Brace not set up correctly >3. Feet not fully corrected > >My first instinct in this case is to go with #2. The absolute, all >time, biggest mistake in brace set up is the length of the bar. Many >orthotists insist on making the bar too short for baby's comfort. The >bar should be set up so that the heels of the shoes are shoulder width >apart. The easiest way to measure this is not with a tape measure, >but by sitting the shoes on the bar down and laying baby so that her >shoulders are between the heels of the shoes. If they fit comfortably >between, i.e. are barely touching the shoes without scrunching her >shoulders they are okay. Otherwise, the bar is too short and needs to >be lengthened or if it's not an adjustable one, they need to get you a >new one asap. If this is the problem, you will notice an immediate >change in your daughter's demeanor while wearing the shoes. There are >also lots of other issues that can be wrong with the set up of the >brace & shoes. If the bar length is not the culprit then we can look >at some of the others. > >Regarding #1 & #3 above, these are always possibilities but you didn't >mention her having sores or blisters which are usually caused by poor >fitting shoes or shoes that are not being applied correctly. And >finally, feet that are not fully corrected -- this too is often a >factor but we can look at all the other possibilities first and go >from there. > >A few questions for you that might help us help you a bit more, first, >who is your daughter's doctor, and can you tell us a little about her >treatment up to this point, that is, before she went into the shoes >and bar. Does she have any sore spots on her feet from the shoes? >Are you having problems with the shoes slipping off or her heels >rising up in the shoes? > >Welcome to the group, I'm sure we can help you get to the bottom of >this very quickly - there's no reason your daughter should be so >unhappy with the shoes. They can be trying, but after two months it >should be getting a lot better -- it's clearly not, so we'll be happy >to help you figure out why. > >Hang in there! > > >Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 12hrs/day) > > > > > > My daughter is 5 months old she has had the dennis brown bar on for 2 > > months, the doctor said it would be hard the first two weeks w/ her > > getting use to them but now after 2 months she still hates her shoes > > and bar. Some days are worse than others, she will cry the entire day, > > when we take her shoes off she is a totally different baby. The doctor > > said her shoes need to be on 23 hrs a day but we get an average of 12 > > to 18 hrs. She will not sleep at night with them on. Does anyone have > > any helpful ideas?? > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Donna, Just wanted to follow up on what Kori said, PA is one of the trouble areas of the country for CF correction, meaning that none of the doctors there are known to be very successful at it. In fact, there are no physicians on Dr. Ponseti's qualified physicians list in the entire state. I would definitely recommend some re-casting without even seeing her feet, based on all that you've said. If the doctor is willing to do it and sees the need for it, and you believe that her feet were corrected the first time you may be okay to stay with this doc but I would definitely be thinking about the possibility of needing a second opinion. If you can take the pictures that Kori suggested we can certainly look at them and give you our experienced, albeit non-professional opinions. We have a group set up for sharing photos of feet (and faces too) at http://health.groups.yahoo.com/group/CFPics/ If you sign up to join there, just complete the short survey you'll recieve in your email immediately after joining and we can get you approved right away. Some things to think about as far as her correction goes - a properly corrected foot will be turned to approximately 70 degrees of outward rotation. If you saved her last cast you can measure this with a protractor. Does her foot flex outward easily to around 70 degrees? Also very important is the dorsiflexion, when you push up on the bottom of her foot how far past " L " can it go? It should be able to flex about 10-15 degrees as a minimum. If she can't flex like this now, could she when she first came out of her casts? Just stick with us, and we'll help you get her back on the road to proper correction right away! > > > > > > My daughter is 5 months old she has had the dennis brown bar on for 2 > > > months, the doctor said it would be hard the first two weeks w/ her > > > getting use to them but now after 2 months she still hates her shoes > > > and bar. Some days are worse than others, she will cry the entire day, > > > when we take her shoes off she is a totally different baby. The doctor > > > said her shoes need to be on 23 hrs a day but we get an average of 12 > > > to 18 hrs. She will not sleep at night with them on. Does anyone have > > > any helpful ideas?? > > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Ah - yes. There is the root of the evil! That was easy to diagnose, eh? Get the feet re-corrected and go in to a proper brace, no problems! s. Re: Re: shoes Never leave feet uncasted or unbraced. The doc should have known this. She probably relapsed some during that time. Even a few hours unbraced could be enough for some feet to relapse. If the doc isn't interested in re-casting, you'll need to take her to someone else for a second opinion. PA is not known to be a hot spot for Ponseti Docs. Many parents end up going to Baltimore for re-correction. You may want to consider it depending on what the doc says tomorrow. Let us know what happens. It does sound like she probably needs some more correction. If you can, take pictures of her feet tonight so you can compare them as you go. Stand her up and take pictures directly from the front and back (have her bear weight on a hard surface). Use your whole palm to press her foot as far up towards her head as it'll go and take a profile pic (want to see how far past " L " her foot dorsiflexes). One each of her soles and perhaps one from each outside while she's standing bearing weight. If you can do this, we'd love to take a peek at her feet too. Kori At 05:50 PM 6/26/2006, you wrote: >When Aslyn was a week old she had casts put on both legs (taken off >and cahnged every week) til she was 9 weeks old then they lengthened >her achilles tendons that same day they put casts on for 3 weeks. At >our 3 week the Doctor ordered the shoes and bar, it took 2 1/2 weeks >til they came in. During this time she had nothing on her feet. I >feel that this is where the problem happened. Tomorrow we see the >doctor again I am hoping he puts the casts on again for a couple >weeks, Her Doctor is Barry Berger town, Pennsylvania. She does >not have any sore spots on her feet. At first we had a huge problem >with her shoes falling off but now they stay on. I am very thankful >I found this support group because tomorrow when we go to the doctor >I have questions for him. > wrote: >There are really only a few reasons that the DBB (or FAB - foot >abduction brace) makes a baby cranky. >1. User error >2. Brace not set up correctly >3. Feet not fully corrected > >My first instinct in this case is to go with #2. The absolute, all >time, biggest mistake in brace set up is the length of the bar. Many >orthotists insist on making the bar too short for baby's comfort. The >bar should be set up so that the heels of the shoes are shoulder width >apart. The easiest way to measure this is not with a tape measure, >but by sitting the shoes on the bar down and laying baby so that her >shoulders are between the heels of the shoes. If they fit comfortably >between, i.e. are barely touching the shoes without scrunching her >shoulders they are okay. Otherwise, the bar is too short and needs to >be lengthened or if it's not an adjustable one, they need to get you a >new one asap. If this is the problem, you will notice an immediate >change in your daughter's demeanor while wearing the shoes. There are >also lots of other issues that can be wrong with the set up of the >brace & shoes. If the bar length is not the culprit then we can look >at some of the others. > >Regarding #1 & #3 above, these are always possibilities but you didn't >mention her having sores or blisters which are usually caused by poor >fitting shoes or shoes that are not being applied correctly. And >finally, feet that are not fully corrected -- this too is often a >factor but we can look at all the other possibilities first and go >from there. > >A few questions for you that might help us help you a bit more, first, >who is your daughter's doctor, and can you tell us a little about her >treatment up to this point, that is, before she went into the shoes >and bar. Does she have any sore spots on her feet from the shoes? >Are you having problems with the shoes slipping off or her heels >rising up in the shoes? > >Welcome to the group, I'm sure we can help you get to the bottom of >this very quickly - there's no reason your daughter should be so >unhappy with the shoes. They can be trying, but after two months it >should be getting a lot better -- it's clearly not, so we'll be happy >to help you figure out why. > >Hang in there! > > >Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 12hrs/day) > > > > > > My daughter is 5 months old she has had the dennis brown bar on for 2 > > months, the doctor said it would be hard the first two weeks w/ her > > getting use to them but now after 2 months she still hates her shoes > > and bar. Some days are worse than others, she will cry the entire day, > > when we take her shoes off she is a totally different baby. The doctor > > said her shoes need to be on 23 hrs a day but we get an average of 12 > > to 18 hrs. She will not sleep at night with them on. Does anyone have > > any helpful ideas?? > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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