Re: starting to feel discouraged.- for Kathy - partly OT

[Guest guest]

Kathy,

If he's eating well and still not gaining, it could be a problem with digesting the food. There's something called EE that is caused by food intolerances and allergies. was tested for it last fall right before her helmet. They test for it by doing an upper GI scope and taking a biopsy. There are certain cells that are in the GI tract that will prevent absorption of the nutrients. came back as inconclusive because she had some of those cells (but not a lot) and so they've just been watching her growth. I sometimes wonder because she eats SO well and yet is still so tiny. In fact, she eats more than her brother who is at the 90th percentile. But, she's gained 5 pounds in the last year so the doctors are happy. She is back down to the 10th percentile now so I consider that we were really lucky to get her to the 15th while in the helmet. She hasn't gained any weight since she got it off. To get her up to the 15th, we were giving her multiple helpings of soy ice cream every night on top of 2nds at most meals. On top of that, she was asking for crackers in between meals so it's not like we were exactly force feeding her. She was hungry. We took it as her body trying to catch up for the period of no growth earlier. She still gets quite hungry, but stopped wanting the ice cream at night so maybe that's why she's not gaining any more.

I've actually been considering doing digestive enzymes to encourage her body to overcome the GI allergies. They may also help with absorption of nutrients, if that is the issue for your little one. Between her brachy, reflux, and food allergies, this girl keeps me hopping. If you want to start a dialogue through email, feel free to. I love to talk to other moms who have dealt with the same food and allergies issues. My email is melanie.watson@....

, mom to , 23 months

STARband grad for Brachy from 14.5 to 20.5 months

Restarting CST

land

Re: starting to feel discouraged.

Not sure if this will help, but I thought it couldn't hurt by taking extra Calcium and Magnesium supplements right before I nursed once a day.Luke, 8.3 months old, STARband grad 6/09> > >> > > Hi,> > >> > > Sorry, but bad news. The scan showed no growth. It actually> > showed his> > > head shrunk .3cm. The asymmetry measurement went down .6mm, so> > at least> > > that is okay. In all our asymmetry measurement has gone down> > 1.5mm in 7> > > weeks.> > >> > > Now even though the scan showed no growth everybody says the head> > > visually looks a little better. One theory I have is that there was> > > some swelling on the forehead. There was definitely a rash from the> > > helmet. Now that the rash is gone, the scan showed the head shrunk> > > there. Since the rash was where the pressure was, the asymmetry> > went> > > down. Probably a little too far fetched....> > >> > > Anyhow, I don't understand how the band could feel a bit tighter> > and the> > > asymmetry improve slightly yet there was no growth. Now I'm feeling> > > discouraged too since I'm scared the growth won't pick back up.> > >> > > Anybody have any thoughts?> > >> > > Sorry about the bad news. At least maybe you will change your mind> > > about wanting the scan. :|)> > >> > > Thanks,> > > Kathy> > >> >> >> >>