Re: SOS!!!!

[Guest guest]

Hello - We have had occasional trouble with the sensors on the pump and

have desensitized them by padding them with tape. Sometimes our son

doesn't get the right dosage because their is a partial kink in the

tubing while he is wearing it in the backpack.

Best of Luck - the G-tube does get easier.

Aileen 4 healthy & 3 y/o with RSS

[Guest guest]

,

I can empathize with you about the DME companies. I have been dealing with

incompetent

people for 11 years! I am assuming you have a Zevex Enteralite pump. We just

switched

to this a month ago, and I had a lot of problems with mine too not delivereing

ht eaccurate

dose. After numerous calls to Zevex, they told me I had to prime the air out of

the bag. I

had a Kangaroo pump before this, and I never had to do this. Of course, the DME

person

who came with the Zevex pump had never even seen a feeding pump before. After I

started getting the air out, the problems diminished significantly. Here's how

to do it:

1) Pour formula in the bag.

2) Close cap tightly.

3) Turn bag upside down, so the air is now at the top.

4) Pinch the occluder clip together in one hand & squezze the top of the bag

with the air in

it in the other hand. It is best to do this over a sink. You can also let the

pump get the air

out by holding the prime button while the bag is upside down. If you are using

a new bag,

the first way is the easiest way to do this. If you are adding formula to an

existing feeding

bag, it is easier to use the prime feature (takes a little longer).

5) After air is out, turn bag right side up again & prime the formual through

the tubing by

pinching the occluder clip & letting formula run through (quicker way) or using

the prime

button with the pump.

This made a big difference in the right quantity going in & stopping the

frequent alarming.

One more thing about the dose delivery. When we got our pump, it was set not to

beep

when the dose was done. I didn't realize this until a whole week of usage.

Since

was wearing his pump in a backapack, I didn't know the pump " thought " his dose

was

done when it actually wasn't.

Kim C.

> Hey Folks,

>

> Well, I have found a whole new level of incompetence present in the

> human population. It is dealing with Durable Medical Good's

> companies. We were supposed to have our pump, bags, syringes and

> split gauze pads delivered on Saturday. Guess who isn't open on

> Saturday? Guess who didn't take down my order right? Guess who

> didn't have the kindercal on stock which they assured me they did?

> Guess who sent a delivery man who didn't know how to set up the pump

> and train me on it? Guess who's going crzay here!!!!!

>

> The good news is that I have a friend in a support group here in

> Lynchburg whose daughter is g-tube fed also. She came to my house

> at 9:00 p.m. last night and gave the pro's and con's on the feeding

> pump. She also gave me the flushing syringes that we need to clean

> his tube out. God was watching over us and I'm grateful.

>

> However, it get's better or worse depending on your point of view.

> Connor's pump keeps turning off indicating that there is no flow in

> the tube. We vented the tube twice and the Pediasure ran free. I

> cleaned the g-tube twice. Water runs in. The pump will run for

> three minutes than shut off.

>

> I haven't thrown in out the window....yet. Of course, the

> instruction manual didn't have anything to say about this. I was

> reading it at 4:00 a.m. this morning. So, the wonderful feed that

> Connor was supposed to be getting didn't happen. I gave up at 4:30

> and gave him a bottle. With 2 cans of Pediasure in the bag, I think

> he got 74 mls over five hours.

>

> Finally, the clincher. Connor last night was crying and in pain. I

> expected this. He looked at the tube and said, " Mommy take it out! "

> I now feel lower than pond scum. Please remind me again how this

> tube is supposed to help us with my precious little guy? I've been

> giving him his pain meds every four hours. He's tender and doesn't

> want to walk at all. He's also down on his oral feeds with the

> bottle. However, he also hasn't had a b.m. in two days so I'm

> thinking that might be it.

>

> Will keep you posted.

>

>

> Mom to Graham 8 ADD; Cameron 5; Connor IUGR RSS Kyphosis Periactin

> Prevacid Zantac g-tube (grrrrrr) gh in two weeks.