Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 thanks dayna i got it in my email!!! ((HUGS)) jodie c > Jodie, > > > > Here is a pic of Alyssa. Alyssa was born at 35wks at 2lbs 8oz. She now > weighs 27lbs and is 38.5 in and is 3 ½. She was diagnosed at 9months by the > head of Growth and Development at Kansas University Hospital. This will be > our 3rd year at the MAGIC convention. Words cannot express how MAGIC has > changed our lives. We continue to go each year because as Alyssa gets older > our focus has changed. The first year it was all about the calories. . . > how do we get this kid to grow. Last year it was all about our new gtube > and preparing for possible bone age advancement. Thank goodness we prepared > because this year it will be all about the early adrenarche as her bone age > is already advanced to 5 ½. Her bone age advanced 2 yrs in 6 months. The > membership allows us access to all of the newest research about RSS and > treating the symptoms. The convention provides support and networking with > families who have been where we are. IT's so nice to be understood. . . and > not have your child be the smallest (all the time). . . to see other kids > with backpacks. . . to let your defenses down. > > > > > Good Luck with your fundraiser, I would love to know how you do it! > > > > Dayna Carney > > RSS/SGA Scholarship Coordinator > > The MAGIC Foundation > > _____ > > From: RSS-Support [mailto:RSS- Support ] On > Behalf Of Jodie > Sent: Saturday, May 07, 2005 1:30 PM > To: RSS-Support > Subject: display for benefit > > > > hi everyone!! > i know i posted this the other day but i only got a response from a few > so i want to post this message again!! i need pics of are beautiful > rss/sga kids and ADULTS for a diplay i want to have up during the > benefit breakfast and dinner. if possible write a short bio and a > statement about what it is like to be a member of magic and going to > convention(if you have been). i really want to be able to not only > raise funds for the scholarship fund but be able to educate the public > about rss andthe magic foundation!! please email me this info and pics > or email me and i can give you my address to mail it to me!! thanks > again!! > > jodie c > > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 I get the pictures back on Saturday and will email you the bio and picture on Sunday or monday. Did you ever get to talk to the guy at the hotel about a room for us? display for benefit hi everyone!! i know i posted this the other day but i only got a response from a few so i want to post this message again!! i need pics of are beautiful rss/sga kids and ADULTS for a diplay i want to have up during the benefit breakfast and dinner. if possible write a short bio and a statement about what it is like to be a member of magic and going to convention(if you have been). i really want to be able to not only raise funds for the scholarship fund but be able to educate the public about rss andthe magic foundation!! please email me this info and pics or email me and i can give you my address to mail it to me!! thanks again!! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 hey jamie that sounds good!! no i didnt talk to him yet i have to go meet with him this week though and i will find out then!! also when i get more tupperware catalogs on friday i will mail one out to you!! ((HUGS)) jodie c Quote Link to comment Share on other sites More sharing options...
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