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Hi everyone,

this is just a quick intro to say hi and a little more about our experience to

date.

My son Reilly is 5 months old and will be assessed for a helmet in 3 days time.

We noticed his left side of his head was flatter than it should have been and he

would never turn or face right.

We took him to see our doctor at 6 weeks old who diagnosed possible torticollis

and admitted that there was a difference in his symmetry, he referred us to our

hospital to see a paediatrician.

We waited 3 months for the appointment just to be told that it didnt matter that

his head was getting worse, it would sort itself out in time. He would not

diagnose him with plagio or torticollis, would not give him physio as he would

become more mobile and it would rectify itself in a few months. Apparently we

were to continue repositioning until our next appointment in 6 months time.

As you can all probably understand, a wait and see attitude isnt possible when

it comes to our loved ones and we are currently looking in to other ways to get

him physio and of course getting a helmet fitted for him.

I've read loads on the internet about both conditions and am disgusted that we

parents have to fight so hard to get help for our children. Here in the UK our

only option is to go private whereas other countries provide helmets and physio

with no cost or argument. Grrr....just makes me so angry.

Fingers crossed my little man gets what he needs :)

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