Re: Re: From Jen - stories, tantrums, body odor..ELLEN..

June 6, 2005

Ellen,

You are quite close to us. We live in NW Arkansas. It is hard to find and ped

endo in this area. We go to children's in little rock. quite a drive, but the

only ped endo we could find. also our geneticist is in little rock so it works

out okay. Just thought it was interesting how close you were to us. There's not

really many people in this area who can relate to our situation b/c no one

really knows much about RSS. I had to tell our pediatrician about it.

Tonya mom to Aubrey 3

pswmjp wrote:

Ellen,

Make sure that they do a bone age. My son is not showing signs of

adrenarche but does have increased estrogen levels and I know Dr. H

wants to have another bone age done. You really want to make sure that

her bone age is not advancing too quickly.

Pattie

> Jenn,

> My daughter is 8. We are seeing signs of adrenarche and have an appt

with

> her endo in 2 weeks. What should we ask him to look for? Last summer

we thought

> we had a problem (breast development, body odor,) and they did a

test which

> showed no hormone activity. I couldn't believe it. Now I know it's

happening.

> We feel that we hqve a good endo - no problems yet - but he is way

too busy.

> He's the only Ped endo in N E Oklahoma. What do we look for, ask,

etc.? Mikey

> is 50 lbs, 50 in., has been on growth hormone for 5 years.She has been

> growing at the rate of 4 in per year - no other problems. Finally

eats well. We

> thought we were " home free " . Guess not. Since I have seen your

posts about

> I thought you might have some advice. Mikey was born full

term, 3.8

> lbs,15 inches.Thanks Ellen - mother and grandmother to Mikey

>

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