Re: Fw: Keep Momentum Growing for PF Bill - Call Congress Now

[Guest guest]

Joe & Joanie, thanks for this reminder. I spoke with our congressman a couple of months ago at a family birthday party about sponsoring the bill, but do not know if he had. This was a good opportunity to remind him. He's a long-time friend and knows that I have IPF. I expect he will be a strong proponet. Jack79/IPF - UIP/dx06/05 Maine

To: "Breathe-Support@yahoogrou" <Breathe-Support >; Breathe-SupportCaregivers Sent: Thu, October 1, 2009 9:51:39 PMSubject: Fw: Keep Momentum Growing for PF Bill - Call Congress Now

-- Keep Momentum Growing for PF Bill - Call Congress Now

Dear Joe: We are pleased to inform you the CPF's National Pulmonary Fibrosis Awareness Week was a huge success! More than 12 Members of Congress signed on to the Pulmonary Fibrosis Research Enhancement Act (H.R.. 1079) during and after PF Week bringing the total number of co-sponsors to 52, as of today. And the momentum is growing! We need your help now to add even more members to the bill! We need 100 Members on the bill to help it reach the floor of Congress. Please call or email your Member of Congress now! Click here to send a note quickly and easily through our automated system:http://cpf.convio. net/site/ Advocacy? pagename= homepage & id=129

Your hard work has brought us great success - we urgently need for you to take action once again to get us closer to our goal! Passing a bill in Congress requires persistence and patience and we hope you will be with us for the long run. For today, we need for you to check to see if your Representative is a co-sponsor and either thank them, if so, or directly request that they co-sponsor H.R. 1079. If you've called them before and they are still not on the bill, please call again. Find out if your member is a co-sponsor by clicking this link: Co-sponsors of HR 1079, Sept. 29, 2009 update

Success on Capitol Hill!

CPF CEO Mishka Michon (center) stands between PF Champions, Rep. Mike Castle and Rep. Baird, surrounded by National PF Awareness Week Advocates

During PF Week, determined advocates for action on PF, including patients and family members like you, held 60 meetings on Capitol Hill.. For the second year, advocates focused on securing support for passage of H.R. 1079 and continuing to raise awareness of PF issues to Members of Congress and in communities nationwide. The majority of the Capitol Hill meetings took place with Members who serve on the Energy & Commerce committee and on the Energy & Commerce subcommittee on health. The Energy & Commerce committee is the committee of jurisdiction for the PFREA.

The CPF and advocates also met with our champions, Congressman Baird (D-WA) and Congressman Mike Castle (R-DE) who introduced H.R. 1079. They stressed the bipartisan nature of the historic legislation that would authorize $16 million in new federal funding to create the first national patient registry for PF, and provide much needed support for research into the deadly lung disease. And they thanked you, our CPF membership, for driving the success of the bill! Both Congressmen have lost members of their families to PF.

Please help us build on the momentum created by PF Week -- Call or email your Member of Congress now! http://cpf.convio. net/site/ Advocacy? pagename= homepage & id=129

Thank you for your important support of H.R. 1079!

Sincerely,

Mishka Michon, CPF CEO

Coalition for Pulmonary FibrosisSuite F, #2271659 Branham LaneSan , CA 95118-5226info@coalitionforpf .org

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