Anyone ever test regular food for a reaction?

[Guest guest]

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

Great question,

I think for some things there would be an immediate reaction, but for others it

would take time. The bacteria would not grow overnight. I know for me, I did not

feel bad overnight and it took a long time to feel better.

So you could eat something and not react, and keep eating it thinking it was OK

but slowly be making things worse, until one day you feel like cr#p.

For an entire year I ate out maybe 3 times. I was afraid to. Recently I had a

birthday and an anniversary. I ate out 4 times in 2 weeks. Everything was legal

and nothing happened. Then suddenly last weekend I felt horrible, with bloating.

I ate a lot of soup and bland foods for a few days and now I'm OK. The only

thing I can think of is that 4 times in 2 weeks of eating differently than

normal for me is too much, or, I accidentally ate something illegal.

I don't want to undo a year of hard work. However, , you have not felt

better and have been really frustrated on SCD. I just wonder how you would feel

if you were not on it at all. I can't tell you what to do though, but I still

think it's better to be on SCD than off it.

PJ

>

>

> Since SCD doesn't work for everyone, which Elaine says herself, has anyone

tried eating something illegal to see if you get a reaction or not? I'm thinking

about trying it since i'm reacting to everything legal I figure why not try

something illegal!

>

> If I do eat something illegal, would it really set me back all that much? Been

on SCD a year now...

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

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[Guest guest]

I did great starting the diet.  Eventually I moved to a different area, started doing a little here and a little there.  Soon it was scd at home but I would eat out whatever I wanted.  Then I started having projectile 'v' and other problems.  I restarted and was restricted to a very small amount of intro foods/stage 1 maybe and it took a long long time eating the same foods all the time; never eating out and not varying into 'advanced foods'.  I feel it really set me back not as bad as when I started but it may as well have been.  I ate carrots, lima beans, chicken, eggs, parmesan, cheddar, yogurt, dccc.  Tried nut butters, eventually gave up.  Nothing acidic at all.  Kim M. (I finally found the on-line lists--sorry!) helped me find a way to find a basic set of foods and just stay with those, venture out and retreat if there was trouble.  Like I said, we (I had/am still living with the mom due to financial reasons) ate a lot of roasted chicken/chicken soup, turkey, fish, bananas and yellow squash--and the ones I mentioned above.

 

Last Summer, things started turning around for no good reason.  It started that way then suddenly the 'd' stopped (and if I eat cereal or something it does come back) and it's like I'm still trying to vary from c to d but mostly c with normal more now without the iron pills.  But the iron pills didn't cause the c last summer.  They just made it crazier.

 

Just stay with it.  I started 12.05, screwed up a lot of times and went off of it completely (except the yogurt) twice.  If you stay strict, I really think it will turn around for you.  Scrutinize *everything* to make sure there's nothing sneaking in like a supplement or drink or something tiny and see if it doesn't help.  Maybe even check cookware if you have to share.  Someone posted on that earlier.

 

Of course, it's your decision.  Ultimately, it's your decision.  There's lots of on-line recipes from very basic to pretty nice food.  Your chopping skills will go from 2 to 200 maxed out in the meantime so it's not like totally wasted.  And you'll be a lot more informed when you do eat now.  You'll just have to sneak a look at the label and things may not be as good as what you remember.  They never have been with me except--salads.  I've  I've beenn a salad fiend since I've been able to eat them again.  It's just crazy.  The junk food not so much.  It's easy to pass up.

 

Good luck whatever you decide though.  You can always come back if you decide you want to retry.

 

Debbie 41 cd astros fan

 

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!

If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day

Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

At 09:49 PM 5/5/2010, you wrote:

Since SCD doesn't work for

everyone, which Elaine says herself, has anyone tried eating something

illegal to see if you get a reaction or not? I'm thinking about trying it

since i'm reacting to everything legal I figure why not try something

illegal!

If I do eat something illegal, would it really set me back all that much?

Been on SCD a year now...

Well, I didn't eat something illegal deliberately.

I can tell you that the pain killers I had after my cancer surgery were

all formulated with illegals. THe opiates weren't too bad, as their

tendency to cause constipation balanced the diarrhea the illegal would

normally cause.

However, the Motrin was formulated with lactose, and I can state,

unequivocally, that trying to bolt out of bed and run for the bathroom

because you have sudden and violent diarrhea when you also have a

24 " slice across your gut is not entertaining.

I learned, early on, that there is NO food so delicious that it's worth

being sick in order to eat.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

.I thought SCD was helping to improve you until you had antibiotics for the secondtime, which started this long flare?You should go for the Genova lab tests or the ones at Quest that Jodi recently described - there are some pathogenic bacteria/fungi, etc. where you need more than SCD to getrid of them. , at Healing Crow, used to be really helpful at giving advice in thosesituations, but that list is closed now to new members. Also, have you researched extreme reactions to antibiotics and come up with anythingthat matches your two experiences? As for the illegal things - some things you'll probably be able to eat just fine, and others you will react really badly to - and even when you are non reactive to some things atsome times, that won't necessarily hold consistently, particularly if your system is allsensitive from being in a flare. And also, there's the problem of not knowing in advancewhich is which. MaraSince SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...

[Guest guest]

,Thank you for being so gracious! They can test for antibody markers for a specific by-product of yeast I believe. I think via blood and/or urine testing. I have a phone consult with my doctor in a couple of weeks and plan to ask him that question -- which one is best. I can let you know what he says. I talked about this with (a group member) because she was doing the drug anti-fungals (versus natural) and this is what she said in a previous post:"Diflucan first for a month. Then

Nystatin. I asked my doctor why the switch, did Diflucan lose it's

effectiveness after a month? He said no, they work differently. Diflucan

"surrounds and escorts the yeast out of the body" and thus is

usually pretty mild. It works on the easy to get yeasties. Then

after it has done the job, Nystatin comes in to mop up the harder to

find, harder to kill ones. Nystatin does kill them, so it can cause

die-off."She also mentioned that as she approached the end of the month on Diflucan, she started taking small doses of the Nystatin and building up to the proper dose so that the body didn't get slammed all at once. I am working hard at convincing DH to try this! I meant to mention that Asacol also contain lactose in the oral tabs in case you are lactose sensitive. And you will need to be down to 10mg or lower on the Prednisone before taking the LDN because at the higher levels the Prednisone acts as an immune suppressant (not merely an anti-infammitory) and will 'fight' the immune modulating effects of the LDN. And it would be best to address the yeast questions first (test to eliminate the possibility or treat to eliminate the problem) first before doing the LDN. The LDN won't work otherwise. It isn't something you can do together, well at least not without possible needless pain and

suffering.Amelia P.S. I really do think that last antibiotic you had to take gave an unintended boost to a building yeast problem and that it is that that is behind your low/lack of progress in healing and the diet.To: btvc-scd Sent: Fri, May 7, 2010 2:23:33 AMSubject: RE: Anyone ever test regular food for a reaction?

I appreciet the honesty, sometimes people need it! No offence taken at all by the way. I am doing a phone consult with a doctor so I can try LDN soon and I will see if he can give me a script for diflucan to go with the LDN, or what he thinks would work best... I don't know where to look for another doc to get this year thing figured out. I did ask my GI but he said there are no tests for yeast with the exception of oral thrush?? I found that confusing with all the technology and tests we have today. You would think they would be able to test for yeast somehow!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD@yahoogroup s.comFrom: bhide_thehague@ yahoo.comDate: Thu, 6 May 2010 02:11:27 -0700Subject: Re: Anyone ever test regular food for a reaction?

,I think one or two things will most likely happen. You could have immediate symptoms -- like Marilyn and others, or you could be like my husband and eat many illegals sporadically and then have a slow on-coming issue that you don't like and can't get rid of. ; ) Right now DH has returned from a 3 week trip in India where he ate rice and/or wheat every day. He had to stop taking a probiotic and his LDN because his scalp and face around his eyes became irritated, red, dry and flaky (I know to be yeast related). His skin got much better. Since being home and NOT eating those things and not taking the beneficial things, his skin is getting slightly worse (I think die-off) and now wants to stop using coconut milk because he thinks it is causing him a problem.

HA! As I sit here and wonder just how long he will go before admitting to himself that he has a yeast problem that really needs to be addressed! Go ahead, keep using all the meds you are using without questioning if they could be the problem and eat illegals. I predict that within the near future, not even those meds will help you. I honestly believe you have a big underlying issue that you have not discovered or possibly just not treated properly. I know that you have been trying natural anti-fungals, but if you have a large root problem with yeast and are still on Prednisone (which encourages yeast), you might need some big guns like Diflucan and/or Nystatin. I don't doubt that you need the Prednisone to control your symptoms at this point, so please do not think I am saying you are doing something wrong there. I do think you should question 12 oral Asacol pills a day though. It is a maintenance

drug and it apparently isn't working or you wouldn't have the symptoms you do or the need you have to do the Prednisone. If the enemas are helping, you might consider dropping the oral Asacol to see if it helps. That is a lot of Asacol and it does say in the package insert that it can cause the same symptoms in side-effects as it is trying to help!I don't mean to sound harsh, and I am probably taking out my frustrations with my husband on you, but the advice (unsolicitated as it may be), would be to find a good integrative medicine doctor and/or get testing for done for yeast overgrowth and get it addressed if there is a problem. If you had a small yeast problem I believe a SCD adapted for yeast routine with natural anti-fungals would help, but I think that if it goes too long and becomes too extensive, I think they would only help you 'tread water' at best in the short-term and it would take a very long time with strict

adherence and major persistance to clear it. O.k. I have finished my rant and I send my absolute and complete regrets for sounding so offensive. After watching your comments for awhile, I just thought maybe some one should shake you up bit kind of like Sky did for me to get me to see I still had unresolved thyroid issues -- only I think she is a nicer person and did it in a more diplomatic way! : )Amelia From: T <scdguy26 (AT) hotmail (DOT) com>To: btvc-scd@yahoogroup s.comSent: Thu, May 6, 2010 3:49:21 AMSubject: Anyone ever test regular food for a reaction?

Since SCD doesn't work for everyone, which Elaine says herself, has anyone tried eating something illegal to see if you get a reaction or not? I'm thinking about trying it since i'm reacting to everything legal I figure why not try something illegal!If I do eat something illegal, would it really set me back all that much? Been on SCD a year now...-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

no my doc has me on about 5 - amazing i still have yeast! gives you

an idea of how much sugar i consumed pre-scd!!

eileen

Thanks, I'm glad to know it's OK to take several at once.