feeding pumps-for maximum mobility?

[Guest guest]

has been put on continous feeding and it is a very long time since I have

and any experience of pumps. When he is well he goes to nursery. Having learnt

at last to walk at near 3 years, I want to try and help him stay mobile. Here in

japan, pump fed children are kept near to a drip stand and on a bed basically. I

don't want that and want to find a pump that helps him stay as mobile as

possible.

In Japan the best I can get is the Kangaroo pet pump. It weighs 670 grams. The

only feeding containers are 650 ml. They are a hard cylindrical shape, need

gravity to work properly and don't fit well into any type of bag. They are the

same size as the pump itself and with the weather here being so humid in summer

I can only really put around 100 ml in at once anyway.

Is this the best I can do? Are there any pumps that still work if turned on

side, upside down!? Could you send details, or a photo if at all possible?

Does anyone have any ideas for getting the pumps into a rucksack of some kind

without 'flow error' coming up all the time, or some kind of contraption to push

around. I'd like to get the pump onto back but he only weighs 18 pounds

and so the pump alone is about 8% of his body weight. What age did you start

having children carry the pumps around by themselves?

Medical equipment is still very highly regulated here and, given the still

rather limited mindset in terms of paediatric medicine, I'm a bit isolated when

it comes to trying to get a sick child to lead as regular a lifestyle as

possible. Would really appreciated any info.

many thanks

Debi mother to (3.5 years, RSS, 8 kilos, 83 cm) and Sora (6 months, non

rss, 8 kilos, 65 cm)