Decision about meds, was Re: dccc/yeast

[Guest guest]

Just something to remember: Elaine never opposed taking necessary

medications.

If you don't achieve remission on just SCD, then use whatever drug seems

appropriate for you, after consulting with your health care professional.

Use it as an aid, a help, and continue on SCD to keep healing.

The need for medication does not mean you have " failed on

SCD " .

It just means you need some help to find your equilibrium.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Kat,

I really think you should go ahead with LDN. 10mg of prednisone is

OK with LDN for now. I know they say to deal with yeast first before

starting LDN, but I didn't (didn't know i had the problem) and I didn't

quit LDN when I went on Diflucan and I think they can coexist. I think

the Diflucan diminished my immune help from LDN a little bit but I can

live with that as I have other benefits, too. I figure I'll just

work on everything and OK, maybe it will take a little longer.

Thanks Kim and thanks everyone for helping me get some prespective. I

think that eating my low-sugar fruits (all I am eating is blueberries,

avocado and moderate pear), and only being on 10mg of prednisone, I'm

going to start the LDN as soon as I can. It sounds like it has helped so

many people, and I am hoping it will help me too, despite the modest

yeast problem. If I can taper off prednisone even a little I'm sure it

will help with the yeasts, which will help with the LDN, and we can get

this cycle going in the right direction!

[Guest guest]

Hi ,

There is another thread with LDN in the title where a few good bits of info and

some links to articles was posted. I think if you look even at today's messages

or type in " LDN " to search for messages you'd find a lot.

The website for LDN is http://www.lowdosenaltrexone.org/. There are more, but

this one has some really good info. The drug seems to have very very miniman,

nontoxic side-effects and works across the board for immune-related disorders.

I've done a bit of research, and would be happy to talk more if you want, but

I'd check out the website first. It will do a better job of describing it than I

will.

Kat

>

>

>

> Subject: Re: Decision about meds, was Re: dccc/yeast

> To: BTVC-SCD

> Date: Friday, April 9, 2010, 3:27 PM

>

>

>  

>

>

>

> Kat,

> I really think you should go ahead with LDN.  10mg of prednisone is OK with

LDN for now. I know they say to deal with yeast first before starting LDN, but I

didn't (didn't know i had the problem) and I didn't quit LDN when I went on

Diflucan and I think they can coexist. I think the Diflucan diminished my immune

help from LDN a little bit but I can live with that as I have other benefits,

too.  I figure I'll just work on everything and OK, maybe it will take a little

longer.

>

>

>

>

>

>

> Thanks Kim and thanks everyone for helping me get some prespective. I think

that eating my low-sugar fruits (all I am eating is blueberries, avocado and

moderate pear), and only being on 10mg of prednisone, I'm going to start the LDN

as soon as I can. It sounds like it has helped so many people, and I am hoping

it will help me too, despite the modest yeast problem. If I can taper off

prednisone even a little I'm sure it will help with the yeasts, which will help

with the LDN, and we can get this cycle going in the right direction!

>

[Guest guest]

Thanks . It's amazing to me how much the mind can help when it is calm.

I'll remember to keep taking baths, and I realized yesterday I need to speak

with more " filling " people in my life, as most of my energy in relationships in

going into my parents, which has it's benefits and challenges, and a few

remaining friends that use me for advice but who do not provide me with a lot of

nourishment. I have found that a lesson in all this might be that when I am

whole and happy I do not have to " come down " in order to make others feel

better. (Coming down and being grounded in earth is another matter, which I

highly support.) I have compromised my own well-being for those who wanted

attention from me my whole life and it is time to stop, because it is making me

bleed. Pretty clear sign. Hard to do the action of ending relationships though!

Thanks for all your words and help!

Kat

P.S. Amazing the things one can learn in a bath.

>

> >

>

> > Kat

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> >

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> >

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> > Being on an immune-suppressant like Prednisone means that yeast will get out

>

> > of hand, so you have to deal with them along with everything else. However

>

> > you also want to get your UC under control, which means taking a med. like

>

> > Prednisone. It is tricky.

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> >

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> >

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> >

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> > I wouldn't take another antifungal for a while, not even a natural one like

>

> > garlic or lemon juice. I would just focus on finding foods that are

>

> > easy-to-digest but also are lower in carbs and sugars. Or don't have a

>

> > high-carb food more than every other day or every two days. I know it's

>

> > tough, but eventually your body can heal enough that it will tolerate an

>

> > antifungal - or not. I can't take antifungals (allergic response and mess

>

> > up my digestion), and with time I got my candida overgrowth under control

>

> > just be limiting or avoiding the yeast trigger foods. It took longer, but

>

> > had the big advantage of being a lot less stressful on my body.

>

> >

>

> >

>

> >

>

> > I haven't had to make the decision whether to take prednisone or not, since

>

> > my digestive disorders are functional and not IBD. But perhaps you have

>

> > other options to prednisone? Unfortunately I would think that most meds.

>

> > for UC will be immune-suppressant, which means candida will be an issue for

>

> > a while. However if you can get the bleeding stopped, your digestion will

>

> > improve enough that eventually the candida levels will come down as your gut

>

> > ecology and immune system stabilize.

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> >

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> >

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> >

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> > It is terrific that you can still handle a probiotic supplement. That will

>

> > help considerably.

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> >

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> >

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> >

>

> > You haven't been on SCD a very long time, so I'd say you are probably

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> > improving a bit even if you can't tell yet. You are just getting through

>

> > the worst of the detoxing phase, now should come the early healing stages.

>

> > Things should get better over the months.

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> >

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> > Kim M.

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> >

>

> > SCD 6 years

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> >

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> > Sphincter of Oddi dysfunction 6+ years

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> >

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> > neurological & spinal deterioration 3+ years

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> >

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> >

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> >

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> > >>>>>>>>>>>>>>>>>>>>>>>>>>>>

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> >

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> > I also tried raw garlic, which I think totally screwed things up because I

>

> > got a lot more pain and new D after that. Lemon juice seems to be the same.

>

> > I was on clotrimazole for thrush, but I read that taking anti-yeast meds can

>

> > be very harsh, and I want to heal up more before bringing in the big guns.

>

> > Not sure if this is counterproductive since yeasts could be causing the

>

> > issues that I am waiting to heal from. People have suggested nystatin too,

>

> > but I may have had a reaction to that in the past.

>

> >

>

> > My concern is that the yeasts are contributing to the UC. If they are, it

>

> > seems counterproductive to stay on the prednisone, but I don't want to go

>

> > further into flare

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> >

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> _________________________________________________________________

> The New Busy is not the too busy. Combine all your e-mail accounts with

Hotmail.

>

http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\

T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4

>

[Guest guest]

This looks great. I'll look more into it when I have a minute today. It reminds

me that I found some good ones on youtube over the summer too. I just " shut off "

from all that when the schizophrenia-type symptoms got their worst and I had to

forget I was a spirit and pretend to just be a body for while in order to ground

out I guess. Thanks for the reminder!

Kat

>

> I practice mindfulness meditation almost every day and recently found a

> great DVD - Grilley's Chakra

>

Meditations<http://www.amazon.com/Chakra-Theory-Meditation--Grilley/dp/B000O\

7IJ16>.

> After I did the third chakra meditation, I felt a lot of heat in my spine

> in that area and was symptom-free, high energy for a day or so afterwards.

> You can't overdo it, though, and have to balance out the different chakra

> meditations.

>

> I'm starting to gently practice yoga and it helps a lot.

>

> I also find that my mental state has a lot to do with my symptoms. The more

> of a " normal " day I can have mentally, going about my routine, the better I

> feel physically.

>

> --

>