Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 In a message dated 11/26/01 2:15:14 PM Pacific Standard Time, bergfam@... writes: > We do not have an autism > > diagnosis, because he would not be diagnosed at this > > point. It would require going off the diet and I am > > just not willing to put him through that physical pain > I don't understand why a diagnosis would require going off the diet? My daughter was diagnosed before went gfcf. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 In a message dated 11/26/01 2:15:14 PM Pacific Standard Time, bergfam@... writes: > We do not have an autism > > diagnosis, because he would not be diagnosed at this > > point. It would require going off the diet and I am > > just not willing to put him through that physical pain > I don't understand why a diagnosis would require going off the diet? My daughter was diagnosed before went gfcf. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Thank you . I wish I had known how to go about the diet much ealier in 's life; good you started early. Had your child had any vaccinations? Thanks again for sharing that. Blessings, Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 --- mmklhughes@... wrote: > I'm wondering about a couple of things. For those > parents who started their > children on gfcf under 1 yr - how did you know the > child would benefit? We are lucky enough to have known Dr. Shaw's research nurse. She is the one who he sent around to all the different conferences when he couldn't make it, and she did research studies into autism. My mother is also a nurse and had worked with her previously in a hospital, and they had kept touch. My mother was telling her about 's severe allergies (the only formula that he could tolerate was Neocate, and I could not drink milk while breastfeeding because it would make him throw up). He had RSV when he was 2 weeks old and had to be hospitalized, and had rotovirus twice by the time he was 9 months old. My kids have never spent a day of their lives in a daycare, so he was just picking this stuff up in stores, etc. This nurse friend of my mothers thought that his immunity problems and severe allergies reminded her of the children that Great Plains tests for peptide issues. Our pediatrician had never even heard of the peptide issue, so this nurse offered to do complementary peptide testing on him in order to get to know our ped. and so forth. Turns out that he had a huge peptide problem, and no, he wasn't eating many solid foods yet, he had all those peptides in his body due to the food that I was eating and transferring to him through my breastmilk. I was still eating milk products, but just not drinking milk by the glass. We immediately went GFCF, and as he grew older, we started to notice autistic tendencies. He can be very aggressive at times, beats up his 5 year old brother (who is totally NT, by the way), head butts, obsesses, etc. We do not have an autism diagnosis, because he would not be diagnosed at this point. It would require going off the diet and I am just not willing to put him through that physical pain just to have a physician tell me something that I already know. I thank God that we were lucky enough to start this early because even when things get tough around here, all I have to do is think about how much worse it could be, if we hadn't intervened early. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 --- mmklhughes@... wrote: > I'm wondering about a couple of things. For those > parents who started their > children on gfcf under 1 yr - how did you know the > child would benefit? We are lucky enough to have known Dr. Shaw's research nurse. She is the one who he sent around to all the different conferences when he couldn't make it, and she did research studies into autism. My mother is also a nurse and had worked with her previously in a hospital, and they had kept touch. My mother was telling her about 's severe allergies (the only formula that he could tolerate was Neocate, and I could not drink milk while breastfeeding because it would make him throw up). He had RSV when he was 2 weeks old and had to be hospitalized, and had rotovirus twice by the time he was 9 months old. My kids have never spent a day of their lives in a daycare, so he was just picking this stuff up in stores, etc. This nurse friend of my mothers thought that his immunity problems and severe allergies reminded her of the children that Great Plains tests for peptide issues. Our pediatrician had never even heard of the peptide issue, so this nurse offered to do complementary peptide testing on him in order to get to know our ped. and so forth. Turns out that he had a huge peptide problem, and no, he wasn't eating many solid foods yet, he had all those peptides in his body due to the food that I was eating and transferring to him through my breastmilk. I was still eating milk products, but just not drinking milk by the glass. We immediately went GFCF, and as he grew older, we started to notice autistic tendencies. He can be very aggressive at times, beats up his 5 year old brother (who is totally NT, by the way), head butts, obsesses, etc. We do not have an autism diagnosis, because he would not be diagnosed at this point. It would require going off the diet and I am just not willing to put him through that physical pain just to have a physician tell me something that I already know. I thank God that we were lucky enough to start this early because even when things get tough around here, all I have to do is think about how much worse it could be, if we hadn't intervened early. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Wow! What a story. Thanks for sharing that. -Phyllis Re: Allergies-LONG > > --- mmklhughes@... wrote: > > I'm wondering about a couple of things. For those > > parents who started their > > children on gfcf under 1 yr - how did you know the > > child would benefit? > > We are lucky enough to have known Dr. Shaw's > research nurse. She is the one who he sent around to > all the different conferences when he couldn't make > it, and she did research studies into autism. My > mother is also a nurse and had worked with her > previously in a hospital, and they had kept touch. My > mother was telling her about 's severe > allergies (the only formula that he could tolerate was > Neocate, and I could not drink milk while > breastfeeding because it would make him throw up). He > had RSV when he was 2 weeks old and had to be > hospitalized, and had rotovirus twice by the time he > was 9 months old. My kids have never spent a day of > their lives in a daycare, so he was just picking this > stuff up in stores, etc. This nurse friend of my > mothers thought that his immunity problems and severe > allergies reminded her of the children that Great > Plains tests for peptide issues. Our pediatrician had > never even heard of the peptide issue, so this nurse > offered to do complementary peptide testing on him in > order to get to know our ped. and so forth. Turns out > that he had a huge peptide problem, and no, he wasn't > eating many solid foods yet, he had all those peptides > in his body due to the food that I was eating and > transferring to him through my breastmilk. I was > still eating milk products, but just not drinking milk > by the glass. We immediately went GFCF, and as he > grew older, we started to notice autistic tendencies. > He can be very aggressive at times, beats up his 5 > year old brother (who is totally NT, by the way), head > butts, obsesses, etc. We do not have an autism > diagnosis, because he would not be diagnosed at this > point. It would require going off the diet and I am > just not willing to put him through that physical pain > just to have a physician tell me something that I > already know. I thank God that we were lucky enough > to start this early because even when things get tough > around here, all I have to do is think about how much > worse it could be, if we hadn't intervened early. > > > ===== > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Wow! What a story. Thanks for sharing that. -Phyllis Re: Allergies-LONG > > --- mmklhughes@... wrote: > > I'm wondering about a couple of things. For those > > parents who started their > > children on gfcf under 1 yr - how did you know the > > child would benefit? > > We are lucky enough to have known Dr. Shaw's > research nurse. She is the one who he sent around to > all the different conferences when he couldn't make > it, and she did research studies into autism. My > mother is also a nurse and had worked with her > previously in a hospital, and they had kept touch. My > mother was telling her about 's severe > allergies (the only formula that he could tolerate was > Neocate, and I could not drink milk while > breastfeeding because it would make him throw up). He > had RSV when he was 2 weeks old and had to be > hospitalized, and had rotovirus twice by the time he > was 9 months old. My kids have never spent a day of > their lives in a daycare, so he was just picking this > stuff up in stores, etc. This nurse friend of my > mothers thought that his immunity problems and severe > allergies reminded her of the children that Great > Plains tests for peptide issues. Our pediatrician had > never even heard of the peptide issue, so this nurse > offered to do complementary peptide testing on him in > order to get to know our ped. and so forth. Turns out > that he had a huge peptide problem, and no, he wasn't > eating many solid foods yet, he had all those peptides > in his body due to the food that I was eating and > transferring to him through my breastmilk. I was > still eating milk products, but just not drinking milk > by the glass. We immediately went GFCF, and as he > grew older, we started to notice autistic tendencies. > He can be very aggressive at times, beats up his 5 > year old brother (who is totally NT, by the way), head > butts, obsesses, etc. We do not have an autism > diagnosis, because he would not be diagnosed at this > point. It would require going off the diet and I am > just not willing to put him through that physical pain > just to have a physician tell me something that I > already know. I thank God that we were lucky enough > to start this early because even when things get tough > around here, all I have to do is think about how much > worse it could be, if we hadn't intervened early. > > > ===== > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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