Re: OT Seizure

[Guest guest]

is your 15 mnth. old on an antibiotic? or has he had one recently? just a

thought?

[Guest guest]

Janelle,

What you described doesn't sound like a night terror, it sounds like

a seizure. I would have him checked out by a pediatric neurologist

to be sure. My daughter used to have times where she would stare off

for several minutes into space, get a blank look on her face, and was

unresponsive to anything. This was enough to worry my pediatrician

and he referred me right away to ped. neurologist. With what you

described you shouldn't have a problem getting a referral. We had

these episodes for a long time until we went GFCF. We also did IVIG

to bring down her MBP brain autoantibodies. Knock on wood we haven't

had an episode in a long time.

Lori

> Hi

> We ended up going back to the children's hosp after being home a

few

> hours after Jane's MRI. , my NT 15 mos. woke screaming. I

want

> to tell you what happened and see what you think. I went to him in

> his crib and he didn't move. Picked him up and was totally dead

> weight. Put him to my chest and his back and head flopped back like

a

> newborn. Eyes remained closed for approx. 2 min. Then eyes opened,

> but for 5-7 min. he remained unfocused. Occasionally looked at the

> lights, not us. Still no muscle tone. By this time the ambulance

was

> on its way. After 7 min, he focused on me-but not 100%. Dazed and

> confused. Over the next 30 min his muscle tone slowly improved and

by

> the time we were in the hosp. he was back to normal. To make a long

> story short...3 drs saw him. Keep in mind these are ped. drs. at

the

> largest children's hosp in the US. I would THINK they knew what

they

> were talking about, but .....Two drs thought it could have been a

> mild seizure, but were nonchalant about it. Said didn't need to go

> through CAT or MRI. Sometimes just need to see if it happens again.

> Many times its a one time event. One dr-the one who made the final

> call-said it didn't sound like a typical seizure bc 1)he was back

to

> normal(?????SO?) and 2)He was responsive. No he wasn't-not for

> several min. We were just soooooo relieved to hear he was going to

be

> ok. We thought he was brain damaged or something as he was like a

> floppy doll. Oops, I forgot to tell you what that dr. said. She

> thought it waspossibly a night terror-even though he was kinda

young.

> Anyway, we took him home and went to ped. this morning and will

> schedule an EEG for baseline. I just want to know what this group

> thinks, being we all have kids with similar neuro " problems " . So

far,

> we had thought he was NT, but are having concerns. He is 15 mos and

> says MAA(mom)maybe once a day. Says BAA(bottle) a couple times a

day.

> and says BAA?(daddy) once or twice a day. Keep in mind our home

life

> is not great as Jane is extremely aggressive and he is terrified of

> her and she screams and cries many days-although better now gfcf.

He

> seems NT to us, but wonder if the lang. is delayed? Receptive seems

> ok, have his 15 mos appt in two weeks. Will definitely not do the

MMR

> we had put off at 12 mos. Anyway, I have had 2 hours of sleep and

the

> kids are napping and I need to also. What do you all think? Does it

> sound like a night terror? I don't think it does. Let me know....

> Thanks,

> Janelle

> Basket case mommy to

> Jane 2 PDD-NOS

> 1 NT