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As to the hospital bed, I'm not sure why he made that recommendation.

Generally its seen if GERD is a big problem with you or congestion and

coughing at night.

Now, as to what was delivered. Understand, medicare did not designate

you get something uncomfortable. Your supplier chose the specific bed.

They've been known to send beds with mattresses that retailed for $85,

but you have a right to get a mattress or combination that will be

comfortable. This include mattresses and toppers or those with floating

beads or whatever it takes. It may take you some battling but until

you're happy don't settle. If they start some song and dance complaining

about medicare or something, then you don't accept it. If you can't get

satisfaction, call medicare. Surprisingly, they will step in to help you

and to make sure the supplier they are paying meets your needs.

>

> Hi, sorry that I haven't visited for quite a while. Lots of time

spent in hospitals and rehab centers. (Most recently for a broken hip.)

>

> I have Usual Interstitial Pneumonia and my pulmonary doctor has told

me that I should have a hospital bed for the remainder of my life. I

now have one which was supplied by Medicare when I was diagnosed last

Spring, but I really hate it and have not slept well at all. Therefore,

I am thinking of purchasing either a hospital bed or an adjustable bed.

The problem is that I have heard that some mattresses contain products

which could hurt the lungs. If anyone has any information about this, I

would very much appreciate hearing from you.

> Wishing you all well,

>

> Sandy Mash

>

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,

I'm so sorry that you've been having such a difficult time. Hope that your hip is healing and you are comfortable.

I'm sure that having the adjustability of a hospital bed will make your life somewhat easier. Since you can raise and ower not just the head but the foot of the bed helps and even the side rails can give you something to grab onto making it easier to shift position in the bed.

Back 3 years ago when I was discharged from the hospital I also was told needed a hospital bed. They can be wonderful but many times the mattresses are pretty horrible. Bruce is absolutely right. The first thing to do is call the supplier and tell them they need to send you a mattress that you can actually sleep on. As he said, don't let them bully you into accepting something that isn't working.

If you decide however you want to purchase a mattress for the bed, give some serious thought to a flexible mattress that will work either with the hospital bed or another adjustable bed. After alot of research I opted for a 100% latex foam mattress about 3 years ago. It's hypo-allergenic, mold resistant and does not off gas any fumes. Latex foam also lasts a very very long time. I love mine but there are other options and some of the other folks here may have more suggestions.

You are in my thoughts!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Fri, November 13, 2009 8:14:16 PMSubject: Choosing a mattress

Hi, sorry that I haven't visited for quite a while. Lots of time spent in hospitals and rehab centers. (Most recently for a broken hip.)I have Usual Interstitial Pneumonia and my pulmonary doctor has told me that I should have a hospital bed for the remainder of my life. I now have one which was supplied by Medicare when I was diagnosed last Spring, but I really hate it and have not slept well at all. Therefore, I am thinking of purchasing either a hospital bed or an adjustable bed. The problem is that I have heard that some mattresses contain products which could hurt the lungs. If anyone has any information about this, I would very much appreciate hearing from you.Wishing you all well,Sandy Mash

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Beth

How was the transition to the latex foam mattress? Thats one of those

things I've often thought of but just always so afraid I'll spend the

money and change and then dislike it. Not sure why since I've used a lot

of different things over the years and slept on waterbeds for at least

15 years.

>

> ,

> I'm so sorry that you've been having such a difficult time.

Hope that your hip is healing and you are comfortable.

> I'm sure that having the adjustability of a hospital bed will

make your life somewhat easier. Since you can raise and ower not

just the head but the foot of the bed helps and even the side

rails can give you something to grab onto making it easier to shift

position in the bed.

>

> Back 3Â years ago when I was discharged from the hospital IÂ

also was told needed a hospital bed. They can be wonderful but

many times the mattresses are pretty horrible. Bruce is absolutely

right. The first thing to do is call the supplier and tell them they

need to send you a mattress that you can actually sleep on. As he said,

don't let them bully you into accepting something that isn't working.

>

> If you decide however you want to purchase a mattress for the bed,

give some serious thought to a flexible mattress that will work

either with the hospital bed or another adjustable bed. After

alot of research I opted for a 100% latex foam mattress about 3 years

ago. It's hypo-allergenic, mold resistant and does not off gas

any fumes. Latex foam also lasts a very very long time. I love mine

but there are other options and some of the other folks here mayÂ

have more suggestions.

>

> You are in my thoughts!

>

> Â

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> Â

> Â

>

>

>

>

> ________________________________

> From: sandra_mash SMash37@...

> To: Breathe-Support

> Sent: Fri, November 13, 2009 8:14:16 PM

> Subject: Choosing a mattress

>

> Â

> Hi, sorry that I haven't visited for quite a while. Lots of time spent

in hospitals and rehab centers. (Most recently for a broken hip.)

>

> I have Usual Interstitial Pneumonia and my pulmonary doctor has told

me that I should have a hospital bed for the remainder of my life. I now

have one which was supplied by Medicare when I was diagnosed last

Spring, but I really hate it and have not slept well at all. Therefore,

I am thinking of purchasing either a hospital bed or an adjustable bed.

The problem is that I have heard that some mattresses contain products

which could hurt the lungs. If anyone has any information about this, I

would very much appreciate hearing from you.

> Wishing you all well,

>

> Sandy Mash

>

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Bruce,

I don't remember any kind of difficulty getting used to the latex mattress. As I said, I've had it now for nearly three years and I still love it.

It's actually the most comfortable mattress I've ever slept on. After three years there's not even any mark or depression in the mattress where I've slept every night. Latex foam is extremely durable. It's also fairly firm so if you like a soft mattress it might not be what you want. I just love it!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Fri, November 13, 2009 9:09:10 PMSubject: Re: Choosing a mattress

BethHow was the transition to the latex foam mattress? Thats one of thosethings I've often thought of but just always so afraid I'll spend themoney and change and then dislike it. Not sure why since I've used a lotof different things over the years and slept on waterbeds for at least15 years.>> ,> I'm so sorry that you've been having such a difficult time.Hope that your hip is healing and you are comfortable.> I'm sure that having the adjustability of a hospital bed willmake your life somewhat easier. Since you can raise and ower notjust the head but the foot of the bed helps and even the siderails can give you something to grab onto making

it easier to shiftposition in the bed.>> Back 3 years ago when I was discharged from the hospital IÂalso was told needed a hospital bed. They can be wonderful butmany times the mattresses are pretty horrible. Bruce is absolutelyright. The first thing to do is call the supplier and tell them theyneed to send you a mattress that you can actually sleep on. As he said,don't let them bully you into accepting something that isn't working.>> If you decide however you want to purchase a mattress for the bed,give some serious thought to a flexible mattress that will workeither with the hospital bed or another adjustable bed. Afteralot of research I opted for a 100% latex foam mattress about 3 yearsago. It's hypo-allergenic, mold resistant and does not off gasany fumes. Latex foam also lasts a very very long time. I love minebut there are other options and some of the

other folks here mayÂhave more suggestions.>> You are in my thoughts!>> Â> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Â> Â>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Fri, November 13, 2009 8:14:16 PM> Subject: Choosing a mattress>> Â> Hi, sorry that I haven't visited for quite a while. Lots of time spentin hospitals and rehab centers. (Most recently for a broken hip.)>> I have Usual Interstitial Pneumonia and my pulmonary doctor has toldme that I should have a hospital bed for the remainder of my life. I nowhave one which was

supplied by Medicare when I was diagnosed lastSpring, but I really hate it and have not slept well at all. Therefore,I am thinking of purchasing either a hospital bed or an adjustable bed.The problem is that I have heard that some mattresses contain productswhich could hurt the lungs. If anyone has any information about this, Iwould very much appreciate hearing from you.> Wishing you all well,>> Sandy Mash>

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MB, We had a latex king for over 20 years. It was wonderful. We gave it away

when I got my electric lounger. I have a tempur-pedic and it is wonderful.

MB I remember when the guy broke into your window right beside your bed. I know

it

wasn't funny but I laughed so hard. I think because of your reaction..

Peggy.

> >

> > ,

> > I'm so sorry that you've been having such a difficult time.

> Hope that your hip is healing and you are comfortable.

> > I'm sure that having the adjustability of a hospital bed will

> make your life somewhat easier. Since you can raise and ower not

> just the head but the foot of the bed helps and even the side

> rails can give you something to grab onto making it easier to shift

> position in the bed.

> >

> > Back 3Â years ago when I was discharged from the hospital IÂ

> also was told needed a hospital bed. They can be wonderful but

> many times the mattresses are pretty horrible. Bruce is absolutely

> right. The first thing to do is call the supplier and tell them they

> need to send you a mattress that you can actually sleep on. As he said,

> don't let them bully you into accepting something that isn't working.

> >

> > If you decide however you want to purchase a mattress for the bed,

> give some serious thought to a flexible mattress that will work

> either with the hospital bed or another adjustable bed. After

> alot of research I opted for a 100% latex foam mattress about 3 years

> ago. It's hypo-allergenic, mold resistant and does not off gas

> any fumes. Latex foam also lasts a very very long time. I love mine

> but there are other options and some of the other folks here mayÂ

> have more suggestions.

> >

> > You are in my thoughts!

> >

> > Â

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > Â

> > Â

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: sandra_mash SMash37@

> > To: Breathe-Support@ yahoogroups. com

> > Sent: Fri, November 13, 2009 8:14:16 PM

> > Subject: Choosing a mattress

> >

> > Â

> > Hi, sorry that I haven't visited for quite a while. Lots of time spent

> in hospitals and rehab centers. (Most recently for a broken hip.)

> >

> > I have Usual Interstitial Pneumonia and my pulmonary doctor has told

> me that I should have a hospital bed for the remainder of my life. I now

> have one which was supplied by Medicare when I was diagnosed last

> Spring, but I really hate it and have not slept well at all. Therefore,

> I am thinking of purchasing either a hospital bed or an adjustable bed.

> The problem is that I have heard that some mattresses contain products

> which could hurt the lungs. If anyone has any information about this, I

> would very much appreciate hearing from you.

> > Wishing you all well,

> >

> > Sandy Mash

> >

>

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Peggy,

I can laugh about that now but at the time I was just MAD!! :)

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sat, November 14, 2009 6:21:31 PMSubject: Re: Choosing a mattress

MB, We had a latex king for over 20 years. It was wonderful. We gave it away when I got my electric lounger. I have a tempur-pedic and it is wonderful. MB I remember when the guy broke into your window right beside your bed. I know it wasn't funny but I laughed so hard. I think because of your reaction.. Peggy.> >> > ,> > I'm so sorry that you've been having such a difficult time.> Hope that your hip is healing and you are comfortable.> > I'm sure that having the adjustability of a hospital bed will> make your life somewhat easier. Since you can raise and ower not> just the head but the foot of the bed helps and even the side> rails can give you something to grab onto making it easier to shift> position in the bed.> >> > Back 3 years ago when I was discharged from the hospital IÂ> also was told needed a hospital bed. They can be wonderful but> many times the mattresses are pretty horrible. Bruce

is absolutely> right. The first thing to do is call the supplier and tell them they> need to send you a mattress that you can actually sleep on. As he said,> don't let them bully you into accepting something that isn't working.> >> > If you decide however you want to purchase a mattress for the bed,> give some serious thought to a flexible mattress that will work> either with the hospital bed or another adjustable bed. After> alot of research I opted for a 100% latex foam mattress about 3 years> ago. It's hypo-allergenic, mold resistant and does not off gas> any fumes. Latex foam also lasts a very very long time. I love mine> but there are other options and some of the other folks here mayÂ> have more suggestions.> >> > You are in my thoughts!> >> > Â> > Beth> >

Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > Â> > Â> >> >> >> >> > ____________ _________ _________ __> > From: sandra_mash SMash37@> > To: Breathe-Support@ yahoogroups. com> > Sent: Fri, November 13, 2009 8:14:16 PM> > Subject: Choosing a mattress> >> > Â> > Hi, sorry that I haven't visited for quite a while. Lots of time spent> in hospitals and rehab centers. (Most recently for a broken hip.)> >> > I have Usual Interstitial Pneumonia and my pulmonary doctor has told> me that I should have a hospital bed for the remainder of my life. I now> have one which was supplied by Medicare when I was diagnosed last> Spring, but I really hate it and have not slept well at all. Therefore,> I am thinking of purchasing

either a hospital bed or an adjustable bed.> The problem is that I have heard that some mattresses contain products> which could hurt the lungs. If anyone has any information about this, I> would very much appreciate hearing from you.> > Wishing you all well,> >> > Sandy Mash> >>

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