Re: Please help

[Guest guest]

What about getting a new PCP? If you can't bring Muhammed to the mountain .

.. .

[Guest guest]

In a message dated 9/20/2000 8:23:24 PM Eastern Daylight Time,

kattdlc@... writes:

<< Please help- i'm going crazy trying to convince my pcp to let me have

this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

46yr. Any suggestions? >>

Hi,

I'm 45 yrs, I'm 5' 0 " and weight around 218 I think, (I haven't weighed in a

while) my BMI is 42. When I went to see my PCP I could tell he wasn't

particularly thrilled, he kept saying things like if I was older or heavier

he could understand it. I just very nicely let him know that I wasn't asking

his permission or for his blessing, that this was something I was going to do

if my test show that I am healthy enough for surgery and that all I wanted

was for him to agree to do the follow up on me afterwards. He wasn't jumping

for joy at my decision but he agreed to follow me, but if I had asked rather

than just told him I was doing it, I could tell he was going to try and talk

me out of it. I did take him Dr. R's manuel to look at and he was impressed

at the research and work that Dr. R has us do, as he said Dr. R makes you

think about what you are doing and not to take it lightly.

Cathy Morrow in Lenoir, NC

BMI 42

A journey of a thousand miles begins with a single step

[Guest guest]

Hi. Maybe if you post where you are, someone can suggest a PCP in

your area that will be supportive. I changed PCP's the month before

my surgery so that I could get in to see her easily. My other PCP of

three years took months to get in to see. My new one is in Gulf

Breeze, Forida if anyone in that area needs one. Sometimes when a PCP

is giving you a hard time, it is best to find a new one. I have

found, though, that if you will go in and INSIST that you are going

to have weight-loss surgery with or without your PCP's approval that

they will usually support you. My first PCP was very much against it

because " she did not believe in it " until I told her that I was going

to have it done no matter what it took. She just looked at me and

said " Well, OK then, you'd probably make a good candidate " . She

wrote letters and did everything that she could to help after that.

Good luck.

Stormy

> Please help- i'm going crazy trying to convince my pcp to let me

have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

[Guest guest]

Get a second, or third opinion.

kattdlc@... wrote:

> Please help- i'm going crazy trying to convince my pcp to let me have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

>

>

[Guest guest]

You may have to do what I did find a new PCP...I don't think it will

be very difficult. I had luck with the very first one...and now wish

I had of changed years ago...Best of luck

Dave

surgery date Oct 12

> Please help- i'm going crazy trying to convince my pcp to let me

have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

[Guest guest]

I didn't ask my PCP to " let " me have the surgery - I simply asked her

to continue to be my physician if I did (there is a slight

difference). I was prepared to say " would you turn me down as a

patient if I had already had the surgery and came to you for medical

care? " I'm sure the answer would be no. The physician letter

doesn't even have to be " supportive " as such I don't think - just an

agreement to follow you after the surgery.

on

Surgery date 10/04/00

BMI 49 (5'2 " - 40-1/2 years old)

-- In MiniGastricBypass (AT) egroups (DOT) com, kattdlc@y... wrote:

> Please help- i'm going crazy trying to convince my pcp to let me

have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

[Guest guest]

> Please help- i'm going crazy trying to convince my pcp to let me

have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

Dear Kat, I had a problem with my PCP; she had a bad experience when

she was a resident with an open RNY incision not healing and the man

being in ICU for over a month. That made her against WLS period. I

anguished like you are doing now and finally determined that I was

going to confront her with as much information that it took to have

her change her mind. I printed out lots of stuff, mainly from Dr. R's

site especially his presentation paper and other studies about

diabetes, since that is my main co-morbidity, and brought it all to

her. I also brought my husband, although I told him not to say a word

unless asked, because I did not want to alienate her. I told her that

I had decided to have the MGB and told her how much research I had

been doing and that I had found the best surgeon, and the best WLS

for me. She asked if my insurance would cover it, and I answered that

it did not matter because, one way or the other I was going to have

this surgery. That really impressed her, she could see how determined

I was, and she agreed to follow me and write a letter to Dr. R. I

also asked her if there were a procedure that had only a 5% chance of

success, would she recommend it to her patient. I told her my chance

of losing the weight by traditional methods were lower than that, but

that the MGB had a success rate of 98% for curing diabetes. Br strong

and confident but still very polite and see if your PCP will change

his or her mind.

Don't Give Up!

Marjory Sumlin

8/30/00

[Guest guest]

I am still in the post op stage but would suggest taking in pictures of

the transformations and ask the ones you get your contacts from to allow

you to share their comments. I am not much older than you my bmi is 51

and my pcp was extatic. He ordered all the labs and xrays and wanted to

know when I was going in for the surgery. He wanted to know if I had

insurance approval and was generally very supportive. I guess each one

is different,

Phyllis in florida

kattdlc@... wrote:

> Please help- i'm going crazy trying to convince my pcp to let me have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

>

>

[Guest guest]

> Please help- i'm going crazy trying to convince my pcp to let me

have

> this surgery. i am 5' 1 and weight 250.... mt bmi is 48 and i am

> 46yr. Any suggestions?

This is your decision, not your pcp's. Don't ask his permission. Show

him how much you have researched this and tell him why you reached

this decision. If he does not want to do the follow-up, find a new

pcp.

Suzanne in NC

mgb 7/17/00

254/215 !!!! Yippee !!!!

[Guest guest]

Hi Cathy,

Does he eat yogurt? Definitely see if you can get acidophilus into him -

Culturelle is a strong lactobacillus (if you are interested I can e-mail you

where to get it from).

Also, I've read for infants with oral thrush, people have used " Gentian

Violet " in the mouth - here's a link I found for it's usage:

www.erols.com/cindryn/6.htm

I'm sorry I can't tell you more about it since I've never had to use it, but

I've heard about it being used a lot for oral thrush in infants. A local LLL

leader would be able to help you with how to use it probably, or other ideas.

If you need one I can help you find one.

I feel for you. My son is 7, autistic & non verbal. When anything happens

it's so difficult. I hope this has helped somewhat. Please e-mail whenever

you want.

Blessings,

Michele

(, ASD, 7yrs, Logan, 3.5 yrs)

[Guest guest]

I don't know how to tactfully say this, since I am not a doctor, just a

mom...but I see a problem or two with the treatment your son is on. If it

is true that children with autism often have problems with opiates (just a

theory, but one that I personally believe) then I wouldn't use codeine. If

they have problems with sulfation (less theory, more proven, also something

I believe) then I wouldn't use Tylenol.

As for what he has in his mouth, I have no idea what it is but I would one

or more alternative treatments (in conjunction with your doctor) on the

won't hurt/might help theory. If it is viral or fungal, there are

anti-virals (lauric acid) and anti-fungals (caprylic acid) in coconut fat

and coconut milk. You could make coconut ice cream, or some other dish that

uses lots, but get a brand that is sulphite-free (like Thai Kitchen or

Trader Joe's.) Monolaurin, Primal Defense and IP6, echinecea with

goldenseal: all of these are in the arsenal I use for my family, and I would

be using all of them for my son if he were sick like yours is. I once had

mononucleosis that hurt so bad when I swallowed, I prefered spitting in the

toilet, so I empathize with your son.

Someone suggested you use yogurt..umm, this is the GFCF list, so the only

yogurt you might try would be a gfcf soy one. There are milk-free

acidophilus brands at the local health food store and on-line.

Poor guy, hope something works, and soon.

Lorilyn

[Guest guest]

I also used gentian violet, you can get it at any pharmacy without a

prescription. It tasted awful and stains like you would not believe,

when I used it on myself I immediately spit into the sink and it

stained it for a long time, so take care. But it gave me relief

instantly. Good luck,

> I am having such a terrible time with my son 7 yrs. He has what I

think is

> thrush in the mouth small patch on his tip of tough. He is

nonverbal and so

> miserable. The dr. who said it might not be that but just an

irritated patch

> put him on nystatin oral suspension. There is a lot of junk in

this but I

> decided to use it because of the severe pain he is in. he is

drooling rivers

> of salvia that he wont swallow. The patch opened up and bled which

made him

> more crazy. Then the dr. prescribed codeine with Tylenol. This

had an

> adverse affect on him and kept him up until 10 PM at night instead

of his

> usual 7:30 to bed. He is banging his head and attacking us every

time he

> feels pain. i don't know what to do,. Please help. Cathy

>

>

>

[Guest guest]

Cathy maybe you could ask your dr. to call a compounding pharmacy to get pure

form of nystatin our Dr. orders thru pathway and it is prepared in a stevia

base instead of sugar and other additives. i have pathways 800 # is you want

is....hang in there! Sharon

[Guest guest]

Gail I believe they are both GFCF. I could be mistaken, but sure I saw them

both listed.

Maybe someone will correct me if I'm wrong

Hope he feels better soon.

Rhonda

[Guest guest]

Hi Gail,

They may be GFCF but is it possible that your son is allergic to

amoxcil, my son is. I don't know how often your son gets ear

infections, mine didn't get them a lot but I found it easier to ride

them out using some king of pain killer, I believe Motrin dye free

may be a good option. Generally ear infections are bacterial and are

not helped by antibiotics.

" My doctor said I would never walk again, my mother said I would. I

listened to my mother. "

> My Pediatrician gave my son amoxicillin and albuterol for an ear

infection and congestion. I asked her if they were GFCF she said to

ask the pharmacist and if it was not that she would change it the

pharmacist said that the medications were GFCF but my son behavior

says other wise if anyone has any knowledge about these medications

please let me know.

> Gail. Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

>

>

>

[Guest guest]

Hi Gail,

They may be GFCF but is it possible that your son is allergic to

amoxcil, my son is. I don't know how often your son gets ear

infections, mine didn't get them a lot but I found it easier to ride

them out using some king of pain killer, I believe Motrin dye free

may be a good option. Generally ear infections are bacterial and are

not helped by antibiotics.

" My doctor said I would never walk again, my mother said I would. I

listened to my mother. "

> My Pediatrician gave my son amoxicillin and albuterol for an ear

infection and congestion. I asked her if they were GFCF she said to

ask the pharmacist and if it was not that she would change it the

pharmacist said that the medications were GFCF but my son behavior

says other wise if anyone has any knowledge about these medications

please let me know.

> Gail. Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

>

>

>

[Guest guest]

> My Pediatrician gave my son amoxicillin and albuterol for an ear

infection and congestion. I asked her if they were GFCF she said to

ask the pharmacist and if it was not that she would change it the

pharmacist said that the medications were GFCF but my son behavior

says other wise if anyone has any knowledge about these medications

please let me know.

There is one strength of amoxicillin which contains casein, but I

don't remember which one. You can check at www.gfcfdiet.com.

My son would flip on the pink coloring, even if it was gfcf. You

might want to request your pharmacist to compound one which has no

colors/flavors.

Also, if your son has a yeast issue, it may make it worse. You can

ask for an rx for Nystatin, or give extra probiotics, or something

like that.

I have no experience with albuterol, this is my amoxicillin info only.

Dana

[Guest guest]

> My Pediatrician gave my son amoxicillin and albuterol for an ear

infection and congestion. I asked her if they were GFCF she said to

ask the pharmacist and if it was not that she would change it the

pharmacist said that the medications were GFCF but my son behavior

says other wise if anyone has any knowledge about these medications

please let me know.

There is one strength of amoxicillin which contains casein, but I

don't remember which one. You can check at www.gfcfdiet.com.

My son would flip on the pink coloring, even if it was gfcf. You

might want to request your pharmacist to compound one which has no

colors/flavors.

Also, if your son has a yeast issue, it may make it worse. You can

ask for an rx for Nystatin, or give extra probiotics, or something

like that.

I have no experience with albuterol, this is my amoxicillin info only.

Dana

[Guest guest]

Hi Gail,

The albuteral made my son extremely hyper. This is a common side

effect I later found out. I pulled my son off of it because he was

out of control. Good Luck...

> My Pediatrician gave my son amoxicillin and albuterol for an ear

infection and congestion. I asked her if they were GFCF she said to

ask the pharmacist and if it was not that she would change it the

pharmacist said that the medications were GFCF but my son behavior

says other wise if anyone has any knowledge about these medications

please let me know.

> Gail. Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

>

>

>

[Guest guest]

Hi Tony,

Have you discussed this with your OMS? I think it would be good to

set up an appointment to discuss your concerns with them. That said,

even though I haven't had jaw surgery yet, I have had other facial

surgery, and it took several months to a year to resolve the

swelling. Some days I would swear it was gone, only to have some of

it reappear. It is part of healing that can be really individual and

even inconsistent with that individual. Since you have had the plates

removed too, I would think that would additionally cause more than the

usual swelling, because it sounds like it is a deeper level of

trauma. From this and other surgery boards, swelling seems to happen

for more than a few months for many people. It does for me.

But any questions you have about it are also worth quizzing your OMS

about. They are more aware of your specific circumstances and the

level of reconstruction performed. I would check just for my own

peace of mind. That is just me though. If you do check, please let

us know what you find out.

Hugs,

Fran

>

> Its been 12 1/2 weeks since i had my surgery plates removed from my

> face and still i feel as if thoe my face is swollen or am i just

going

> to look like this for the rest of my life, i really am not hapy at

the

> moment and i dont know what to do.

>

> please help.

>