Re: I'm new.......and quite scared!

[Guest guest]

Myrlene, Of course you're

scared!!! We've all been there and really know

what you are feeling! We are sorry that you needed to find us but

pleased to welcome you to our

very caring group.

As you have been reading posts you can see that we share just about

anything that's on our minds

on any given day...be it positive or negative. We laugh and cry

together and help each other get

through each day.

Depression comes along on the ride with any chronic and serious

disease. Find a good professional

counselor, learn about stress reduction techniques, talk to your

doctors.

Talk to us...we are always ready to share our experiences.

Welcome again.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Myrlene wrote:

I am a 59 year old woman who was diagnosed with IPF in Sep 09 -

like 7 weeks ago. I must admit I think I cried for 6 weeks...... I am

coming to terms with my diagnosis and trying to get "my house in

order". Will, trust, advance directive etc. I'm in the very beginning

of the disease - I don't use O2 everyday. I really only need it when I

talk a lot, walk far, climb my back steps (5), etc. My O2 is only at 2L

so I'm lucky - for now. I have intermittent chest pain and cough. The

biggest change in my life has been the 8-10 hours of sleep I now need.

For years I worked and commuted 50-60 hours a week and survived on 5-7

hours sleep a night!

I do have to admit that reading the email strings from the last 2 days

has me absolutely terrified. The future of the disease is so

dismal...and my family will carry the burden of caring for me. It

scares the living hell out of me. I'm not married, my boyfriend of 4

years lives with me. He is much younger and I keep thinking how young

he is to have to care for me. My son is 32 and lives close by, but is

also on disability. My sister also lives close, but still has 3 kids at

home and she works. My doctor put me on disability immediately due to

my extreme fatigue and I do feel better now that I'm not forced to drag

myself to work.

With this all said....I guess I'm just scared, overwhelmed....and

very worried about the future.

Myrlene Brown

La Verne, CA