Re: Reply To Marilyn: Have to get colon fully removed in next few weeks

[Guest guest]

Hi Marilyn,

I'l take any help you can give me and thanks for taking the time to do this for me. I actually have some beef broth that my mother just bought.

Lucy emailed me this today so i will look into it as its not something id heard of before:

"Hi Mark, Have they thoroughly checked you out for C Dif? I've heard it is important to have more than one test. One doctor wrote that he ran one once a week for 3 weeks, and if all were negative he was satisfied. The C Dif bacteria can often trigger aggresive diarrhea. How soon are they wanting to operate?" Lucy

To: BTVC-SCD Sent: Wed, May 26, 2010 12:44:18 AMSubject: Re: Reply To Marilyn: Have to get colon fully removed in next few weeks

Mark,Sorry for the delay in getting back to you. Lucy's advice is always good -- she was completely unable to leave her house for years before she found SCD, and she was Elaine's personal friend.With regards to the "high calorie drinks" with all the illegals, I think you can do much better than that kind of junk, which will only worsen the inflammation in your entire digestive system. You can make the "savory smoothies" that I've mentioned elsewhere. Good meats, good vegetables, perhaps, if fats are tolerated, some coconut oil or even butter or ghee. You can do an "egg nog" with hard boiled egg yolks, yogurt, a little honey, a little nutmeg. You might toss in a ripe banana.If you need/want my recipes for both beef soup / stew and chicken soup / stew, I can post them.The s. boulardii is very good for dealing with the diarrhea.One of the things I think we lose track of in trying to follow the

Pecanbread Stages is that although they are very helpful as a guideline, they aren't absolute. SCD is intended to be a balanced diet. If you've followed some of the other discussions on this board, you know that eating the same dull things every day lead to you not wanting to eat enough to get the calories you need. It's also a characteristic of IBD that when you aren't feeling well, you often lose your appetite.This is just my personal opinion -- and you may take it for what it's worth. The banana / raw egg / whatever else was in that smoothie you've been having would have increased my diarrhea significantly in the early days of the diet because my system wasn't ready for a lot of fresh, raw fruit and raw egg. What about some yogurt and some cooked fruit -- the applesauce, if you peeled the apples may work.You don't HAVE to puree your food, but with your colon in the shape it isn't, you might consider doing at least some of your

snacks and whatever as the savory smoothies to make things easier. When I had my cancer surgery, and went in to see my oncologist about ten days after I got out of the hospital, she asked what I'd been eating. I told her, and mentioned the smoothies, and she said that it was an excellent idea, to make things easier on my gut which had been disturbed by the surgery.I'm assuming that you ARE eating not only three meals a day, but some snacks, as well? Small meals, every couple of hours are often better under these circumstances than three big meals far apart.I'm going to go digging for my "hospital food stuff" -- the clear liquids and thick liquids, and so forth that I mentioned. I should have two sets of these -- the food I used, and the list I made up for Jodi when she had her surgery.Be sure that if you are going to have someone bring your food in that you have it ready to go before the surgery. And that you have your

surgeon write on the orders that so-and-so will be bringing your food from home. I discovered, to my dismay, that because of its food service contract, that not even a hospital could provide food which was safe for me to consume.Cauliflower and broccoli are both considered advanced, but they are vegetables which I like, and I took to them faster than I did carrots, which are on intro.I am sure that just eating State One and Intro foods won't help you gain weight. Getting things set up in advance is good -- ask Jodi about getting on and off a chair if you don't have a good support. I've already told you about my experience! Pole for your bed -- I found the trapeze was great. In fact, I still use the pole by my bed when my arthritis decides to ask up, and we still use the pole by the shower (it's a tub shower, and involves stepping in and out) for safety reasons. The wedge pillow is also good -- and it's not so much

about sitting up all the time, as not having to lie flat and THEN sit up. I recommend the small pillow (mine came from the Hyster Sisters web site) to hold over your stomach when you have to cough, or when you are in the car, traveling.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling BeagleAt 10:47 AM 5/25/2010, you wrote:

Hi Marilyn,I was just wondering what you thought about my food choices etc below in my previous post from the other day and should i try the more advanced foods, I have the following recipe books at home, "Roman Parasads's Recipes For The SCD", "Lucys SCD Cookbook" and Elaines BTVC book so yesterday my sister made me a shepards pie which was lovely and she also made me sun dried tomatoe bread and banana muffins, I spoke with lucy on the phone as i order stuff from her and she advised to me to try a variety of foods. I just wanted to ask your opinion on this as i suppose my aim is to slow the diorreha and put as much weight on me before surgery. I have also ordered some s.boullardi as i hear its good for reducing diorreha, What do u think about the fresubin drinks should i take them even though there not scd legal, will i be getting enough vit c from my freeda multi vits or do you

reccommend i get more?I know the likes of almound flour which are in my muffins and bread my sister made, the cauliflower and onions (which would have been in the shepards pie she made) are all advanced foods even avacodos which ive had are advanced but i feel that eating intro and stage 1 foods only, is not helping me gain weight. In your last post to me you said "You might ask your doctor what your food regimen will be after the surgery. It may well start with clear liquids, progress to thick liquids, then to soft foods, and finally to whatever your new normal foods will be.If that's the case, I can help you formulate SCD-legal menus for this time, and you can have your foods made up in advance. I also recommend having someone prepare food for you for at least six weeks after your hospital stay, because you are not going to feel like cooking while you recover" This would be of great help to me thank you. I will try find out more

And like i said as far as i know il be on a feed after surgerey im guessing this is some sort of nutritional feed but il check this out with the stoma nurse and get back to you. Hopefully recovery wont be too bad, at home we have a downstairs bedroom with bathroom (toilet and electric shower) so i wont have to climb any stairs and il look into getting a pole like you said and even the pillow that was mentioned as i suppose il have to sit upright all the timeThanks Mark