Re: Re: Brrrrr...it's fall in NC

[Guest guest]

Dorothy,

It is pretty amazing actually. I had heard it was a good program but it has exceeded my expectations in every way I can think of.

How are you doing? Update me/us! Have a great weekend!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Fri, October 16, 2009 12:35:14 PMSubject: Re: Re: Brrrrr...it's fall in NC

Sounds like a really great program - I envy you - I do wish we had a facility like Duke near Atlanta. Dorothy Reinecke

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, October 16, 2009 11:06:55 AMSubject: Re: Re: Brrrrr...it' s fall in NC

Stefani,

Well I've only had an opportunity to do one yoga class and that was yesterday so I'll know more as I go along. I can say though that it's not just named "pulmonary yoga" because most of us use supplementary oxygen. Our yoga instructor is also a physical therapist and heads up the pulmonary rehab program at Duke. The program that she has designed is specifically for pulmonary patients based on her observations over the years of the specific issues that those of us with lung disease have. To that end there is lots of upper body work, shoulders, chest etc. Lots of breath work (which is a core of most yoga practise anyway) And interestingly (at least to me) lots of work with balance. She says they find that many people with long term lung disease have at least some problems with balance.

The class is very low key and gentle as there is a wide range of fitness and experience with yoga but it felt very good to get back to that type of class. It's been way too long for me..

The 'graduate' program that I'm enrolled in now is basically the exactly the same in structure as the intensive program. The differences are our floor class is more demanding and we maintain our own charts and then hand them in to be reviewed by the staff on a weekly basis. We then get the charts back with whatever suggestions or modifications to our programs they want us to make. Our vitals and O2 sats are still monitored by staff, though I tend to monitor my sats myself also.

Part of the reason the graduate program is as structured as the intensive program is that we have folks who are waiting for transplant in the graduate program.. Anyone listed for lung transplant at Duke has to be in pulmonary rehab up until the day they get 'the call'. If the wait is longer than the 5 weeks of the intensive program, they move over and do the graduate program until they get their new lungs.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Stefani <sfshaner (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, October 16, 2009 4:32:12 AMSubject: Re: Brrrrr...it' s fall in NC

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you exercise

and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or

rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

I am in Fayetteville - about 20 miles due south of Hartsfield Airport.

Dorothy ReineckeRE/MAX Around Atlanta ResulltsDirect Cell 678.4272767

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€

To: Breathe-Support Sent: Friday, October 16, 2009 2:45:33 PMSubject: Re: Re: Brrrrr...it's fall in NC

Dorothy:

Where are you in Atlanta? I'm in Marietta

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT>

From: Dorothy Reinecke <atlantadorothy@ att.net>To: Breathe-Support@ yahoogroups. comSent: Fri, October 16, 2009 12:35:14 PMSubject: Re: Re: Brrrrr...it' s fall in NC

Sounds like a really great program - I envy you - I do wish we had a facility like Duke near Atlanta. Dorothy Reinecke

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, October 16, 2009 11:06:55 AMSubject: Re: Re: Brrrrr...it' s fall in NC

Stefani,

Well I've only had an opportunity to do one yoga class and that was yesterday so I'll know more as I go along. I can say though that it's not just named "pulmonary yoga" because most of us use supplementary oxygen. Our yoga instructor is also a physical therapist and heads up the pulmonary rehab program at Duke. The program that she has designed is specifically for pulmonary patients based on her observations over the years of the specific issues that those of us with lung disease have. To that end there is lots of upper body work, shoulders, chest etc. Lots of breath work (which is a core of most yoga practise anyway) And interestingly (at least to me) lots of work with balance. She says they find that many people with long term lung disease have at least some problems with balance.

The class is very low key and gentle as there is a wide range of fitness and experience with yoga but it felt very good to get back to that type of class. It's been way too long for me..

The 'graduate' program that I'm enrolled in now is basically the exactly the same in structure as the intensive program. The differences are our floor class is more demanding and we maintain our own charts and then hand them in to be reviewed by the staff on a weekly basis. We then get the charts back with whatever suggestions or modifications to our programs they want us to make. Our vitals and O2 sats are still monitored by staff, though I tend to monitor my sats myself also.

Part of the reason the graduate program is as structured as the intensive program is that we have folks who are waiting for transplant in the graduate program.. Anyone listed for lung transplant at Duke has to be in pulmonary rehab up until the day they get 'the call'. If the wait is longer than the 5 weeks of the intensive program, they move over and do the graduate program until they get their new lungs.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Stefani <sfshaner (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, October 16, 2009 4:32:12 AMSubject: Re: Brrrrr...it' s fall in NC

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you exercise

and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or

rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>