Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 , who is now 3.5 years and 16 pounds with confirmed RSS, has always developed a reaction to whatever food he has been on after 2.5 months. Any milk/feed retried after an interval lasts only 1 -3 weeks second time around before he suffers real discomfort, is unable to get up and spends all day moaning and sticking his fingers in his eyes. Even regular foods such as yoghurt produce the same reaction over time. Only complete stomach rest and hospitalisation appears to be able to reset his system but costs him more weight than he gained on any new milk. His success with a rice diet has been much greater in terms of quality of life and stability but has gained him no weight. Basic allergy tests for milk, egg protein etc show up nothing significant, and the best that I and his gastroenterologist have been able to come up with is that he cannot cope with any one protein for any length of time - hence the idea of now starting formula rotation. I did suggest this to previous doctors several years ago after being introduced to the new visions feeding site in Virginia by the Magic Foundation 2002 convention but at that time his doctors refused to consider the idea. Has anyone tried formula rotation and for what reasons? What formulas did you try? (milk, soy, elemental, meat protein based)? - not many of these are available in Japan. Did you consider home-made blenderized formulas? What interval did you use for rotation - 24 hours, 1 week, 2 weeks? any advice would be much appreciated. Debi, mother to in Japan(3.5 years, RSS, 8 kilos, 83 cm) and Sora (6 months, non rss, 8 kilos, 65 cm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 i am not sure about this but the doctor put my son on raw goats milk for about two months and he cleared up really well from intolerable stomach conditions. he seemed to digest it very well. be sure to check with a doctor first. my doctor was old fasioned and used old methods for my son and he is fine for the most part. regards gracewithin food intolerance and formula rotation , who is now 3.5 years and 16 pounds with confirmed RSS, has always developed a reaction to whatever food he has been on after 2.5 months. Any milk/feed retried after an interval lasts only 1 -3 weeks second time around before he suffers real discomfort, is unable to get up and spends all day moaning and sticking his fingers in his eyes. Even regular foods such as yoghurt produce the same reaction over time. Only complete stomach rest and hospitalisation appears to be able to reset his system but costs him more weight than he gained on any new milk. His success with a rice diet has been much greater in terms of quality of life and stability but has gained him no weight. Basic allergy tests for milk, egg protein etc show up nothing significant, and the best that I and his gastroenterologist have been able to come up with is that he cannot cope with any one protein for any length of time - hence the idea of now starting formula rotation. I did suggest this to previous doctors several years ago after being introduced to the new visions feeding site in Virginia by the Magic Foundation 2002 convention but at that time his doctors refused to consider the idea. Has anyone tried formula rotation and for what reasons? What formulas did you try? (milk, soy, elemental, meat protein based)? - not many of these are available in Japan. Did you consider home-made blenderized formulas? What interval did you use for rotation - 24 hours, 1 week, 2 weeks? any advice would be much appreciated. Debi, mother to in Japan(3.5 years, RSS, 8 kilos, 83 cm) and Sora (6 months, non rss, 8 kilos, 65 cm) Quote Link to comment Share on other sites More sharing options...
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