Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Michealann, Thank you very much. We have had a cold and rainey summer in Michigan. I am sure I am getting my share of mold exposure. I hope it is not damaging my lungs which appeared to be stable through May 2009 except for the beginning IPF DX. After a mold out break in my house this summer I replaced 750 sq ft of carpeting with laminate flooring. I probably need to tear out another 400 sq.ft. of carpet as my lungs fill up in my dinning--living room area. To: Breathe-Support Sent: Tuesday, September 29, 2009 8:22:34 AMSubject: Re: HP Hello ,For what it's worth here is my take on your HP/IPF dilemma. You are describing my own experience very closely. I was treated for asthma for about 4 years as my lungs filled and it became ever more difficult to breathe. My biopsy indicated that it may be HP after all those years. I did not have PF at first but I do now due to untreated HP. I have not had an antibody panel for HP but expect they will do one next month at National Jewish. I, too, would shut down if I went outside on a humid evening and all evenings in Tennessee are humid. My inhaler did little good but would squeak me through after 5 or 6 puffs. At first I could not even get any into my bronchi. By the time I was referred to an allergist and then a pulmo, I was rattling so loud you could hear me in the next room and getting air in very small puffs. MOLD is what is in that humid air. I didn't know then what mold could do. If that is your problem you are looking at living in a very dry (free of irrigation) area for your life to be anything close to comfortable. It can often be stabilized if you remove the cause. I'm now in Utah but they water grass so heavily I still have problems. My two pulmos here (both gone now) didn't understand this disease either. Many just aren't interested in learning, sad to say. This group has given me my life back and I hope you stay tuned for all the knowledge available here. annRemember: Experience is simply the name we give our mistakes... Wilde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Mike, I get confused easily. Anyway, Thank you. Burns To: Breathe-Support Sent: Tuesday, September 29, 2009 8:22:34 AMSubject: Re: HP Hello ,For what it's worth here is my take on your HP/IPF dilemma. You are describing my own experience very closely. I was treated for asthma for about 4 years as my lungs filled and it became ever more difficult to breathe. My biopsy indicated that it may be HP after all those years. I did not have PF at first but I do now due to untreated HP. I have not had an antibody panel for HP but expect they will do one next month at National Jewish. I, too, would shut down if I went outside on a humid evening and all evenings in Tennessee are humid. My inhaler did little good but would squeak me through after 5 or 6 puffs. At first I could not even get any into my bronchi. By the time I was referred to an allergist and then a pulmo, I was rattling so loud you could hear me in the next room and getting air in very small puffs. MOLD is what is in that humid air. I didn't know then what mold could do. If that is your problem you are looking at living in a very dry (free of irrigation) area for your life to be anything close to comfortable. It can often be stabilized if you remove the cause. I'm now in Utah but they water grass so heavily I still have problems. My two pulmos here (both gone now) didn't understand this disease either. Many just aren't interested in learning, sad to say. This group has given me my life back and I hope you stay tuned for all the knowledge available here. annRemember: Experience is simply the name we give our mistakes... Wilde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 ,Please believe me when I tell you that each time you are exposed, even though you may have enough lung capacity to go on functioning for now, you will be getting more damage. By the time you can't go anymore it is very far gone. Just be careful. You should be considering a different house or, at the very least, having it done and not flapping all that moldy material where you are breathing. It is poison to you if you really do have mold induced HP. Good luck.ann If you want your children to be intelligent, read them fairy tales. If you want them to be more intelligent, read them more fairy tales. Albert Einstein Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 I have to agree with ann 200% . If you have HP, you must find a way to stop the exposure to whatever is causing it. The HP antibody panel should give you some answers. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tuesday, September 29, 2009 10:46:08 PMSubject: Re: HP ,Please believe me when I tell you that each time you are exposed, even though you may have enough lung capacity to go on functioning for now, you will be getting more damage. By the time you can't go anymore it is very far gone. Just be careful. You should be considering a different house or, at the very least, having it done and not flapping all that moldy material where you are breathing. It is poison to you if you really do have mold induced HP. Good luck.ann If you want your children to be intelligent, read them fairy tales. If you want them to be more intelligent, read them more fairy tales.Albert Einstein Quote Link to comment Share on other sites More sharing options...
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