Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 Hi Rach! I saw this on another list and wanted to respond. I don't understand why you'd wait till March; is it that your insurance is different form what we have in teh states? Not that it matters much. LOL One thing that occurred to me: What if you had the lap band now and the DS in MArch. Could you do this? Then your weight would be lower and you'd be part way to goal and have a jump on things. I say this assuming that the band does not alter stomach anatomy. Of course you wouldn't want to lose so much that you were disqualified! Chris > I have been offered gastric banding instead of bpd/ds I don't think it would > be nearly as good . what would you do? the 2 are options I have now is have > gastric banding or wait till March and have open bpd/ds I was going to have > it lap but I think I will have to change surgeons now. any advise would be > very helpful > Love auzzie mate Rach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Lori, So glad to see you posting. Yes, we have all heard of Dr. T. He has great info, but you must remember that even his writings are somewhat out of date, so don't believe all that you read on the outlook of RP. WE all were scared when we were first diagnosed and read all the terrible things. Just remember that RP is treatable and you aren't going to die in 5-8 years. I also had to wait a LONG time to get into a rheumy. I think this country is really short on rheumy's. My syptoms were like yours when I was first dx. So I was able to wait for an appt. One dr had a 6-8 month waiting list. I would do what Dawn suggests and try some over the counter anti inflammatory meds for now but PLEASE do not hesitate to get to a dr or ER if your symptoms become worse. Red, swollen, thobbing ear, nose, ribs, or trouble breathing. With every flare, damage can be done. Don't be afraid to post any questions or problems to the group. There are a lot of us here and always someone to listen. Hang in there and be sure to keep us updated. Some people in the group tend to worry a lot. LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 --- lori3kidsmom wrote: > I would like to ask you guys your opinion on > something. My ENT > mentioned the possibility of RP to me. I went back > to see my > regular Dr. (Internal Medicine) and he suggested we > set up an > appointment with a Rheumatologist. He set up my > appointment but the > Rheumatologist can't see me until NOVEMBER!!! So > here I am left > wondering and worrying and reading all these nasty > things about RP. > My Dr. knows very little and just looks at me and > says, 'I don't > know!' Would you INSIST on seeing someone prior to > November? The > only symptom I have is occasional right ear pain, no > swelling, no > redness. It only lasts a day or two and then goes > away. I have > questions and I need to talk to someone with some > medical experience > in RP or I'm going to make myself nuts with worry! > What would you do? > Thanks! > > Lori, that is a very difficult one. Obviously for your peace of mind it would be much better to see a rheumy sooner, rather than later. On the other hand if you make a fuss and get to see him earlier he might well say something like 'well the symptoms are not severe, so we cannot really tell' and you are no better off!!! As relapsing polychondritis is diagnosed by symptom rather than tests, they can't always say. I think I might wait and see, and diary ANY symptoms to take to your appointment. If anything should happen between now and your appointment that causes worry, get on the phone straight away!!! Although untreated RP can cause damage, I believe it is usually only when one is flaring that this happens. If I am not being clear it is better to see the doctor when you are actually having the problem, so he can see it for himself. Of course this is only my opinion!!!! . Most of us had a long hard road before we got a diagnosis so we do sympathise!! I know this is impossible, but try not to worry. Even if it should be rp it is not a death sentence. (Although I am sure most of us have gone through a phase of thinking it is!!) Keep us in touch with your progress. Take care, love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Lori, my name is chuck, i was diagnosed with RP a few years ago and the diagnoses is scary, but as you get information about it, it tends to lead off the craziness i was thinking about. mine started with the red ears, and very very painful. i was finally diagnosed by a great rhumy, and now i see a specialist in Boston who is in my opinion awesome, DR.T. he understands what your going through and it is treatable. i was on different meds for a while until i found the best one to cotrol the sever flareups and i still work every day, as a matter of a fact i work two jobs. i find that if i can keep my stress level down it help me immensly. hope your doing better and keep your chin up although you may feel like it, it is not the end of the world and you WILL get through it...chuck...(cistn@...) if you have any more questions as far as the long awated appointment, it is not unusuall i think i waiting 4 months Quote Link to comment Share on other sites More sharing options...
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