Re: Seeking practical Application - ? for Beth W.

[Guest guest]

Beth - I have been writing down (believe it or not) many of the

different ideas you post, as I try and figure things out. I didn't

realize that is insulin resistant. Which testing did she

go through to get her diagnosis? had the OGTT test, which

showed she was not insulin resistant but that she had

severe " biochemical and reactice hypoglycemia. " I can't remember if

I told you this before, but actually has less than 1% body

fat - all muscle mass. On top of this, she is extremely athletic.

Hence, her need for constant complex carbohydrates. This is why I

reacted so strongly to the " low carbs " or " no carbs " talk. For

severely underweight children, no carbs or low carbs could be a

serious mistake. I would hate for any of us to mistakenly tell a

parent to reduce carbs and have it backfire. You are correct,

however, that for adults and even children with normal body fat and

muscle mass indexes, reducing carbos can be healthy. But compex

carbs are energy. Hence, why we see marathon runners and

triathletes and other athletes that have very low body fats eating

snacks while exercising that are pure complex carbos. Their

glycogen storage becomes completely depleted. Heavy proteins in

training to increase the muscle.

On the other hand, athletes that have ample body fat (e.g., massive

football players, for example) could get away with eating a steak

before practice!

Anyway - would love to hear more about . Did you use a

glucometer at home with her hypoglycemia? Or just knowing from

behavioral signs, etc. And same with the GERD. How was she

eventually diagnosed? Some kids get diagnosed the simple way --

they don't eat and cry a lot, the doctor puts them on Zantac and

bam, they stop crying and begin eating.... HA! Others end up

having ph probes. etc.

Anyway. Would love to learn more about you and .

> >

> > Dear Joe Beth,

> >

> > As a novice nutritionist of late and a tree-hugging hippie by

> > choice, I find your advice fine and dandy...for me and my diet.

I

> > am from the State of Oregon. I was raised by parents who

believed

> > that sugar was evil and that whole grains, oatmeal and

> pumpernickle

> > bread were the only healthy choices available. I've been doing

> the

> > organic, low carb lifestyle long before it was trendy. So, once

> > again, I applaud your advocacy for a life style that has been

> > beneficial for you and your family. Especially your daughter

with

> > RSS.

> >

> > I agree with you that nutrition is linked to every systen in our

> > bodies, even the endocrine system. I agree that supplementing

our

> > children's diets with missing nutrients (Omega 3's) is vital to

> > good, overall health. We give Connor a dose of Cod Liver oil 3x

a

> > week and supplemant his yougurt with Linseed oil.

> >

> > Let me inform you about the unseen angst that you have touched

> upon

> > unknowingly. In the RSS genotype, there are several phenotypes

> > present. A severe phenotype of RSS includes but is not limited

to

> > skeletal asymmetry, gut dysmotility, GERD, Hypoglycemia,

> aspiration

> > pneumonia, insulin resistance, precosious puberty, ADD and

> possible

> > developmental delays due to malnutrition in the first two years

of

> > life. A mild phenotype of RSS may have to deal with only one or

> two

> > of these issues.

> >

> > As a parent with a child who had to be taught how to swallow; as

a

> > parent with a child who turned into a skeleton before her eyes;

as

> a

> > parent whose child see's on average 5 different specialist's not

> to

> > mention the therapists who do work on Connor, it is simply not

> > feasible to feed Connor the foods you suggest with your many

> > studies. The only way our kids will benefit from " Life Without

> > Bread " is if they can chew and swallow on a regular basis.

> Therein

> > lies the angst. I would love to rely on diet alone to feed and

> fix

> > my son's syndrome. However, he is genetically programmed to

> > starve. In my unmedical opinion, that is RSS in a nutshell.

They

> > are the " Thrifty phenotype " in the evolutionary chain. " Cave

> > Babies " is what Dr. H. affectionately calls our kids. I can

laugh

> > at that now. THere was a time when I could not. So, when I

read

> > through your posts, I try to fathom a way to apply this

knowledge

> to

> > my son. I can't do that without your help.

> >

> > Unless....

> >

> > CAn you provide me with some receipes that can be easily chewed,

> > have moderate glycemic indexes, can be absorbed over a slower

> amount

> > of time in his gut and are low in refined sugars? We have no

food

> > allergies or dual diagnose's to deal with in our household. I

am

> an

> > excellent cook and will try anything once, especially if it can

> > bring on the results that your daughter is experiencing. I

would

> > love to not have to give my son daily injections if a

combination

> of

> > certain foods will stimulate his endocrine and nutritional

> pathways

> > that are compromised in this syndrome.

> >

> > Can you help?

> >

> >

> > Mom to Graham 8; Cameron 5; Connor 2 RSS, Kyphosis, G-Tube,

> > Periactin, Prevacid, Zantac, GH in two weeks .