Re: help please! any ideas?

[Guest guest]

Thanks Ken. I had heard of sensory integration mentioned by his

psychologist only once but I never researched it or heard any more

about it. He has a lot of stuff listed there, he only wears one kind

of socks, 3 pants, certain shirts depending on the day,(if clothes

don't fit right, he would hit himself and act like he was going to

lose it) pulled his hair out because it drove him crazy, so it is now

really short! food issues from 6 mos..only eats certain foods at

certain temps and textures or will throw them up. . one pair of shoes

that took hours to find......among many other emotional/behavioral

issues. thanks, i'll have to get the psychologist to look more into

it. definitly something to look into.

> >

> > HI everyone. I need parent ideas about my non rss son. I am

asking

> > because I see many parents here who have kids with other things

> than

> > RSS and I don't know where else I could go and ask this question.

I

> > need to ask a question about my non rss son, skye, (undergoing

> > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

Skye

> is

> > having problems in kindergarten that began back before he was a

> year

> > old. It began with obsessions such as keys, he knew by

examining

> > the grooves which one went to the house, 2 cars and mailbox by

age

> > one. He liked to open/close for hours, on/off, together/apart

> > endlessly. He never cared much about other kids but was very,

> > actually over affectionate with family. Over the years, played

> some

> > with toys but mostly any form of keys and would " unlock " toys in

> > their crevices or drive a ride on toy over and over while holding

> the

> > key. He always plays away from other kids, never wanted to be

> > involved. Would sit apart when we went to playgroups, and always

> do

> > his own thing. Didn't talk in sentences until 3 1/2 (that's

when

> he

> > really started to talk besides mama, dada, ball, bye,bye,)

d

> a

> > key in his pocket talked about keys 99% of the time with family

and

> > some adults. by 4 yrs, liked to ride a powerwheels in large

> circles

> > in the yard until the battery ran out. then would go in plastic

> house

> > in/out and open and close the door over and over or go inside and

> > play with keys and occationally other toys...he would go through

> > phases of toys and still does. Whatever would facinate him at

the

> > time would become an obsession. He would not want to eat, sleep

or

> > do anything but talk or play with it(on top of the keys) It

lasts

> > about 2 weeks then back to only keys. by age 6 he became

obsessed

> > with wands from harry potter. it is always with him and he talks

> > about it and askes the same questions literally at least 20 times

a

> > day unless he is going through a new 'toy' obsession which he

will

> > ask the same questions over and over. ( he still obsessed with

> keys)

> > His new toy is a car seat light with a little remote that he will

> > play with for hours. He has talked with a neighbor girl an d the

> > girl we drive to school but only about his obsessions...he

doens't

> > understand why they aren't obsessed like him. (recent

> > obsessions..stapling papers over and over, making green tickets

for

> > hours(that is something from school)and doeing that every day, )

He

> > plays with his little bro and sis but always in your face play

and

> my

> > 2 yr old wants him to leave him alone, skye is always 'in his

face "

> > in school, he academically top of the class, but socially and

> every

> > other way at the bottom. will talk to no one. not only that,

will

> > ask the teacher the same question over and over on what is

routine

> > (like putting on the jacket at the end of the day, going to the

> > bathroom, going to his table, pushing in the chair ) and he can't

> do

> > anyting without being directed. he falls behind in his

> schoolwork.

> > he can't do artwork without 'copying' what he sees, he can't come

> up

> > with answers that are not factual like 'what do you think about

> this

> > book?' and recently do for 3 or so weeks, can't make decitions

like

> > juice or water? or school related forms of that..

> >

> > anyways, sorry for rambling. he is with a psychologist for 2 mos

> now

> > and so far hes ocd but that is not from the key/wand stuff, it is

> > from his handwashing till raw because it's never clean

enough...etc

> > stuff. they think anxiety disorder too but his teacher and I

think

> > maybe aspergers syndrome, but he has eye contact, is affectionate

> and

> > doesn't rock or hand flap. the psychologist doesn't think so

> > according to meeting him a couple of times and a jilliam (I

THINK)

> > autism rating test.....any ideas? As of now, he will not make it

> to

> > 1st grade and I am searching for anything. Please help if oyou

> can.

> > He is a really sweet caring boy but we get really frustrated with

> > what's going on. then we realize disapline doesn't work because

> his

> > face is blank..he just doesn't get it.

> >

> > I know i've mentioned a lot, but not everything and all this on

top

> > of his size/weight for unknown reasons and stuff, am I missing

> > something that may be obvious to others?

> >

> > thanks for any ideas

> >

> >

> > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

> ocean

> > 2 1/2 and baby on the way in july

[Guest guest]

Hi Conny,

My son, , age 8, has just been determined to possibly have mild

aspergers. We went to Woods Hospital in NJ to have

him evaluated by Dr. Seshadri. She indicated that she feels there

are so many variations to how kids display Aspergers. One list of

traits will not fit all kids.

I have always had a suspicion that part of 's RSS and lack of

appetite reflects a sort of " isolationist " personality. So, on top

of the hormone issues contributing to RSS, my bet is that in some

kids the Asperger's also contributes to the lack of appetite and lack

of interest in feeding....just a thought!

I am not discouraged, however. Go here to a fabulous website showing

famous people who probably have Aspergers!!!!!

Included in the list are: Al Gore, , Bob Dylan, Bill

Gates!

http://myautis.com/famousaspies.html

Katy

RSS Division Co-Consultant

MAGIC Foundation

Mom to

-- In RSS-Support , " colson45 " <colson45@e...> wrote:

>

> I know an asperger's child and he certainly does have eye contact

and

> is affectionate and is not monotonal so I am not sure that that is

an

> accurate decription. Or maybe, like so many things, there is a

> range.... The obsessive stuff though....that sounds familiar!

>

> Conny, great-aunt to

>

>

>

>

> > >

> > > Have you checked out the definition for aspergers syndrome? I

> have

> > just been

> > > reading up on it as my 20 year old cousin was just diagnosed

with

> > it (we

> > > always wondered why he was different, but our family just never

> > discussed

> > > it). That syndrome does have eye contact, and verbal. But many

> kids

> > are

> > > misdiagnosed OCD. There is no hand flapping as you would expect

> > with autism.

> > > I would really wonder about getting a second opinion. It seems

> that

> > you and

> > > Skye's teacher have a better understanding.

> > > I think I would research it more and get a second opinion.

> > >

> > > Let us know what you find out.

> > >

> > > Debby

> > >

> > >

> > > help please! any ideas?

> > >

> > >

> > > >

> > > >

> > > > HI everyone. I need parent ideas about my non rss son. I am

> asking

> > > > because I see many parents here who have kids with other

things

> > than

> > > > RSS and I don't know where else I could go and ask this

> question.

> > I

> > > > need to ask a question about my non rss son, skye, (undergoing

> > > > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

> > Skye is

> > > > having problems in kindergarten that began back before he was

a

> > year

> > > > old. It began with obsessions such as keys, he knew by

> examining

> > > > the grooves which one went to the house, 2 cars and mailbox

by

> age

> > > > one. He liked to open/close for hours, on/off, together/apart

> > > > endlessly. He never cared much about other kids but was very,

> > > > actually over affectionate with family. Over the years,

played

> > some

> > > > with toys but mostly any form of keys and would " unlock " toys

in

> > > > their crevices or drive a ride on toy over and over while

> holding

> > the

> > > > key. He always plays away from other kids, never wanted to be

> > > > involved. Would sit apart when we went to playgroups, and

> always

> > do

> > > > his own thing. Didn't talk in sentences until 3 1/2 (that's

> > when he

> > > > really started to talk besides mama, dada, ball, bye,bye,)

> > d a

> > > > key in his pocket talked about keys 99% of the time with

family

> > and

> > > > some adults. by 4 yrs, liked to ride a powerwheels in large

> > circles

> > > > in the yard until the battery ran out. then would go in

plastic

> > house

> > > > in/out and open and close the door over and over or go inside

> and

> > > > play with keys and occationally other toys...he would go

through

> > > > phases of toys and still does. Whatever would facinate him

at

> the

> > > > time would become an obsession. He would not want to eat,

> sleep

> > or

> > > > do anything but talk or play with it(on top of the keys) It

> lasts

> > > > about 2 weeks then back to only keys. by age 6 he became

> obsessed

> > > > with wands from harry potter. it is always with him and he

> talks

> > > > about it and askes the same questions literally at least 20

> times

> > a

> > > > day unless he is going through a new 'toy' obsession which he

> will

> > > > ask the same questions over and over. ( he still obsessed

with

> > keys)

> > > > His new toy is a car seat light with a little remote that he

> will

> > > > play with for hours. He has talked with a neighbor girl an d

> the

> > > > girl we drive to school but only about his obsessions...he

> doens't

> > > > understand why they aren't obsessed like him. (recent

> > > > obsessions..stapling papers over and over, making green

tickets

> > for

> > > > hours(that is something from school)and doeing that every

> day, )

> > He

> > > > plays with his little bro and sis but always in your face

play

> > and my

> > > > 2 yr old wants him to leave him alone, skye is always 'in his

> > face "

> > > > in school, he academically top of the class, but socially

and

> > every

> > > > other way at the bottom. will talk to no one. not only

that,

> > will

> > > > ask the teacher the same question over and over on what is

> routine

> > > > (like putting on the jacket at the end of the day, going to

the

> > > > bathroom, going to his table, pushing in the chair ) and he

> can't

> > do

> > > > anyting without being directed. he falls behind in his

> > schoolwork.

> > > > he can't do artwork without 'copying' what he sees, he can't

> come

> > up

> > > > with answers that are not factual like 'what do you think

about

> > this

> > > > book?' and recently do for 3 or so weeks, can't make

decitions

> > like

> > > > juice or water? or school related forms of that..

> > > >

> > > > anyways, sorry for rambling. he is with a psychologist for 2

> mos

> > now

> > > > and so far hes ocd but that is not from the key/wand stuff,

it

> is

> > > > from his handwashing till raw because it's never clean

> > enough...etc

> > > > stuff. they think anxiety disorder too but his teacher and I

> > think

> > > > maybe aspergers syndrome, but he has eye contact, is

> affectionate

> > and

> > > > doesn't rock or hand flap. the psychologist doesn't think so

> > > > according to meeting him a couple of times and a jilliam (I

> THINK)

> > > > autism rating test.....any ideas? As of now, he will not

make

> it

> > to

> > > > 1st grade and I am searching for anything. Please help if

oyou

> > can.

> > > > He is a really sweet caring boy but we get really frustrated

> with

> > > > what's going on. then we realize disapline doesn't work

> because

> > his

> > > > face is blank..he just doesn't get it.

> > > >

> > > > I know i've mentioned a lot, but not everything and all this

on

> > top

> > > > of his size/weight for unknown reasons and stuff, am I missing

> > > > something that may be obvious to others?

> > > >

> > > > thanks for any ideas

> > > >

> > > >

> > > > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2,

and

> > ocean

> > > > 2 1/2 and baby on the way in july

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks for the info...we are working on getting an autistic

specialist that knows all about spectrum disorders...I am dropping

our current doc who is going nowhere with this.

Thanks!

katherine

mom to Autumn, Skye and ocean and baby on the way

> > >

> > > Have you checked out the definition for aspergers syndrome? I

> have

> > just been

> > > reading up on it as my 20 year old cousin was just diagnosed

with

> > it (we

> > > always wondered why he was different, but our family just never

> > discussed

> > > it). That syndrome does have eye contact, and verbal. But many

> kids

> > are

> > > misdiagnosed OCD. There is no hand flapping as you would expect

> > with autism.

> > > I would really wonder about getting a second opinion. It seems

> that

> > you and

> > > Skye's teacher have a better understanding.

> > > I think I would research it more and get a second opinion.

> > >

> > > Let us know what you find out.

> > >

> > > Debby

> > >

> > >

> > > help please! any ideas?

> > >

> > >

> > > >

> > > >

> > > > HI everyone. I need parent ideas about my non rss son. I am

> asking

> > > > because I see many parents here who have kids with other

things

> > than

> > > > RSS and I don't know where else I could go and ask this

> question.

> > I

> > > > need to ask a question about my non rss son, skye, (undergoing

> > > > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

> > Skye is

> > > > having problems in kindergarten that began back before he was

a

> > year

> > > > old. It began with obsessions such as keys, he knew by

> examining

> > > > the grooves which one went to the house, 2 cars and mailbox

by

> age

> > > > one. He liked to open/close for hours, on/off, together/apart

> > > > endlessly. He never cared much about other kids but was very,

> > > > actually over affectionate with family. Over the years,

played

> > some

> > > > with toys but mostly any form of keys and would " unlock " toys

in

> > > > their crevices or drive a ride on toy over and over while

> holding

> > the

> > > > key. He always plays away from other kids, never wanted to be

> > > > involved. Would sit apart when we went to playgroups, and

> always

> > do

> > > > his own thing. Didn't talk in sentences until 3 1/2 (that's

> > when he

> > > > really started to talk besides mama, dada, ball, bye,bye,)

> > d a

> > > > key in his pocket talked about keys 99% of the time with

family

> > and

> > > > some adults. by 4 yrs, liked to ride a powerwheels in large

> > circles

> > > > in the yard until the battery ran out. then would go in

plastic

> > house

> > > > in/out and open and close the door over and over or go inside

> and

> > > > play with keys and occationally other toys...he would go

through

> > > > phases of toys and still does. Whatever would facinate him

at

> the

> > > > time would become an obsession. He would not want to eat,

> sleep

> > or

> > > > do anything but talk or play with it(on top of the keys) It

> lasts

> > > > about 2 weeks then back to only keys. by age 6 he became

> obsessed

> > > > with wands from harry potter. it is always with him and he

> talks

> > > > about it and askes the same questions literally at least 20

> times

> > a

> > > > day unless he is going through a new 'toy' obsession which he

> will

> > > > ask the same questions over and over. ( he still obsessed

with

> > keys)

> > > > His new toy is a car seat light with a little remote that he

> will

> > > > play with for hours. He has talked with a neighbor girl an d

> the

> > > > girl we drive to school but only about his obsessions...he

> doens't

> > > > understand why they aren't obsessed like him. (recent

> > > > obsessions..stapling papers over and over, making green

tickets

> > for

> > > > hours(that is something from school)and doeing that every

> day, )

> > He

> > > > plays with his little bro and sis but always in your face

play

> > and my

> > > > 2 yr old wants him to leave him alone, skye is always 'in his

> > face "

> > > > in school, he academically top of the class, but socially

and

> > every

> > > > other way at the bottom. will talk to no one. not only

that,

> > will

> > > > ask the teacher the same question over and over on what is

> routine

> > > > (like putting on the jacket at the end of the day, going to

the

> > > > bathroom, going to his table, pushing in the chair ) and he

> can't

> > do

> > > > anyting without being directed. he falls behind in his

> > schoolwork.

> > > > he can't do artwork without 'copying' what he sees, he can't

> come

> > up

> > > > with answers that are not factual like 'what do you think

about

> > this

> > > > book?' and recently do for 3 or so weeks, can't make

decitions

> > like

> > > > juice or water? or school related forms of that..

> > > >

> > > > anyways, sorry for rambling. he is with a psychologist for 2

> mos

> > now

> > > > and so far hes ocd but that is not from the key/wand stuff,

it

> is

> > > > from his handwashing till raw because it's never clean

> > enough...etc

> > > > stuff. they think anxiety disorder too but his teacher and I

> > think

> > > > maybe aspergers syndrome, but he has eye contact, is

> affectionate

> > and

> > > > doesn't rock or hand flap. the psychologist doesn't think so

> > > > according to meeting him a couple of times and a jilliam (I

> THINK)

> > > > autism rating test.....any ideas? As of now, he will not

make

> it

> > to

> > > > 1st grade and I am searching for anything. Please help if

oyou

> > can.

> > > > He is a really sweet caring boy but we get really frustrated

> with

> > > > what's going on. then we realize disapline doesn't work

> because

> > his

> > > > face is blank..he just doesn't get it.

> > > >

> > > > I know i've mentioned a lot, but not everything and all this

on

> > top

> > > > of his size/weight for unknown reasons and stuff, am I missing

> > > > something that may be obvious to others?

> > > >

> > > > thanks for any ideas

> > > >

> > > >

> > > > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2,

and

> > ocean

> > > > 2 1/2 and baby on the way in july

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi. It's funny that you mention the lack of appetite and lack of

interest in feeding to the asperger's because I have wondered that

myself with my son Skye non RSS (from the original posting). The

docs so far can't figure out what is going on with him size wise

also...he is 6 1/2 yrs. 42 1/2 inches and 35 lbs (not a familial

stature/weight) he has not gained weight in over 6 mos and he does

not care to eat and what he can eat is very limited. He throws up

stuff, cant handle many textures, wrong temperature and overall is

not hungry. Two crackers w/ a smear of pb will fill him for hours,

that's practically all he eats and I've always wanted to know if his

size/weight is related to everything else because everything seems to

be interconnected. Now, unlike my RSS daughter, he did eat better as

a baby and it began to go downhill after age one. It's ironic, I

have more problems with him and food than I do with Autumn. He even

throws up his favorite food when it's not right while chewing. He is

what I call an eat to survive child (I am survive to eat!) he only

eats barely enough to get by, and that's a hassle!. Thanks for

the 'thought'. It would make perfect sense in our situation. I

wonder if that could be affecting his height too.

mom to Autumn, Skye, Ocean and baby on the way

> > > >

> > > > Have you checked out the definition for aspergers syndrome? I

> > have

> > > just been

> > > > reading up on it as my 20 year old cousin was just diagnosed

> with

> > > it (we

> > > > always wondered why he was different, but our family just

never

> > > discussed

> > > > it). That syndrome does have eye contact, and verbal. But

many

> > kids

> > > are

> > > > misdiagnosed OCD. There is no hand flapping as you would

expect

> > > with autism.

> > > > I would really wonder about getting a second opinion. It

seems

> > that

> > > you and

> > > > Skye's teacher have a better understanding.

> > > > I think I would research it more and get a second opinion.

> > > >

> > > > Let us know what you find out.

> > > >

> > > > Debby

> > > >

> > > >

> > > > help please! any ideas?

> > > >

> > > >

> > > > >

> > > > >

> > > > > HI everyone. I need parent ideas about my non rss son. I am

> > asking

> > > > > because I see many parents here who have kids with other

> things

> > > than

> > > > > RSS and I don't know where else I could go and ask this

> > question.

> > > I

> > > > > need to ask a question about my non rss son, skye,

(undergoing

> > > > > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35

lbs)

> > > Skye is

> > > > > having problems in kindergarten that began back before he

was

> a

> > > year

> > > > > old. It began with obsessions such as keys, he knew by

> > examining

> > > > > the grooves which one went to the house, 2 cars and mailbox

> by

> > age

> > > > > one. He liked to open/close for hours, on/off,

together/apart

> > > > > endlessly. He never cared much about other kids but was

very,

> > > > > actually over affectionate with family. Over the years,

> played

> > > some

> > > > > with toys but mostly any form of keys and would " unlock "

toys

> in

> > > > > their crevices or drive a ride on toy over and over while

> > holding

> > > the

> > > > > key. He always plays away from other kids, never wanted to

be

> > > > > involved. Would sit apart when we went to playgroups, and

> > always

> > > do

> > > > > his own thing. Didn't talk in sentences until 3 1/2

(that's

> > > when he

> > > > > really started to talk besides mama, dada, ball, bye,bye,)

> > > d a

> > > > > key in his pocket talked about keys 99% of the time with

> family

> > > and

> > > > > some adults. by 4 yrs, liked to ride a powerwheels in

large

> > > circles

> > > > > in the yard until the battery ran out. then would go in

> plastic

> > > house

> > > > > in/out and open and close the door over and over or go

inside

> > and

> > > > > play with keys and occationally other toys...he would go

> through

> > > > > phases of toys and still does. Whatever would facinate him

> at

> > the

> > > > > time would become an obsession. He would not want to eat,

> > sleep

> > > or

> > > > > do anything but talk or play with it(on top of the keys)

It

> > lasts

> > > > > about 2 weeks then back to only keys. by age 6 he became

> > obsessed

> > > > > with wands from harry potter. it is always with him and he

> > talks

> > > > > about it and askes the same questions literally at least 20

> > times

> > > a

> > > > > day unless he is going through a new 'toy' obsession which

he

> > will

> > > > > ask the same questions over and over. ( he still obsessed

> with

> > > keys)

> > > > > His new toy is a car seat light with a little remote that

he

> > will

> > > > > play with for hours. He has talked with a neighbor girl an

d

> > the

> > > > > girl we drive to school but only about his obsessions...he

> > doens't

> > > > > understand why they aren't obsessed like him. (recent

> > > > > obsessions..stapling papers over and over, making green

> tickets

> > > for

> > > > > hours(that is something from school)and doeing that every

> > day, )

> > > He

> > > > > plays with his little bro and sis but always in your face

> play

> > > and my

> > > > > 2 yr old wants him to leave him alone, skye is always 'in

his

> > > face "

> > > > > in school, he academically top of the class, but socially

> and

> > > every

> > > > > other way at the bottom. will talk to no one. not only

> that,

> > > will

> > > > > ask the teacher the same question over and over on what is

> > routine

> > > > > (like putting on the jacket at the end of the day, going to

> the

> > > > > bathroom, going to his table, pushing in the chair ) and he

> > can't

> > > do

> > > > > anyting without being directed. he falls behind in his

> > > schoolwork.

> > > > > he can't do artwork without 'copying' what he sees, he

can't

> > come

> > > up

> > > > > with answers that are not factual like 'what do you think

> about

> > > this

> > > > > book?' and recently do for 3 or so weeks, can't make

> decitions

> > > like

> > > > > juice or water? or school related forms of that..

> > > > >

> > > > > anyways, sorry for rambling. he is with a psychologist for

2

> > mos

> > > now

> > > > > and so far hes ocd but that is not from the key/wand stuff,

> it

> > is

> > > > > from his handwashing till raw because it's never clean

> > > enough...etc

> > > > > stuff. they think anxiety disorder too but his teacher and

I

> > > think

> > > > > maybe aspergers syndrome, but he has eye contact, is

> > affectionate

> > > and

> > > > > doesn't rock or hand flap. the psychologist doesn't think

so

> > > > > according to meeting him a couple of times and a jilliam (I

> > THINK)

> > > > > autism rating test.....any ideas? As of now, he will not

> make

> > it

> > > to

> > > > > 1st grade and I am searching for anything. Please help if

> oyou

> > > can.

> > > > > He is a really sweet caring boy but we get really

frustrated

> > with

> > > > > what's going on. then we realize disapline doesn't work

> > because

> > > his

> > > > > face is blank..he just doesn't get it.

> > > > >

> > > > > I know i've mentioned a lot, but not everything and all

this

> on

> > > top

> > > > > of his size/weight for unknown reasons and stuff, am I

missing

> > > > > something that may be obvious to others?

> > > > >

> > > > > thanks for any ideas

> > > > >

> > > > >

> > > > > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2,

> and

> > > ocean

> > > > > 2 1/2 and baby on the way in july

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >