looking for RSS doc in Orlando area

[Guest guest]

Hi. My mom works at a medical center down in Florida south of

Melbourne (east coast, about 40 miles south from cape canaveral)

There is a child that goes there, about 7 or 8 that is diagnose FTT

and the docs can't figure out what is wrong with him. He has the

triangular face, reflux, can barely eat, etc, very small and not

doing too well. My mom knows all about RSS because of Autumn and has

told the docs that they need to look into it, they listened to her

and were fascinated because everything about him sounds like it and

they have never heard of this before. They are going to read the

info from the Magic Foundation to learn more.

We are looking to see if there is any specialists in that area, from

Orlando to southeast of Orlando, that we can reccommend for this

little boy, because no one else can help him or seems to know

anything about RSS.

Thanks

Mom to Autumn, 2 boys and baby on the way