Re: Disabilty andGood News

September 17, 2009

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Thats incredible. 6 Minute Walk without 02 and 96%. I have never done

that in my life. Of course first six minute walk was with the disease.

>

> From: kiki boettin netwiz3@...

> Subject: Disabilty andGood News

> Date: Wednesday, September 16, 2009, 10:56 PM

>

> I don't post to often but I wanted to tell everyone the good news I

got today. I had been diagnosed with IPF in 07 . They found out I had

ILD from Scleroderma and that I have Sjogrens and Raynauds and they are

attacking all my organs. I was on Cytoxan for 5mo and got deathly sick

at New Years . I was put on 02 24/7 and felt terrible for months. I had

a ct scan done in June and the fibrosis is worse but I started Cellcept

and several other meds for my heart. I was able to do the 6 min walk

today slowly without 02 and my sat never went below 92, so I am hoping

if I can lose some weight maybe it will improve my situation. On the

home front my daughter, my son in law and then my son lost their jobs

due to the economy. My son got a call from his old boss and he said he

has been wanting him to work for him since he left . He is meeting him

tomorrow for an interview to see if the job is something he would like.

So please say a little prayer for all of them to

> get a jobs . Now about SS I wasn't going to apply because here in the

great state of Illinois it is routine for everyone to get turned down.

My friends would nag me non stop so I finally went . It took about 2 hrs

with all of my papers and they said I would know in Sept or Oct . This

was the end of May . Well I will get my 1st check next month . There

were some glitches in getting hospital records to them but it went

rather smoothly . So I say try it . I'm sorry about the rambling but I

am excited and exhausted. Welcome to all the newbies. I hope to make it

to Chattanooga .

> ipf 2/07 IL

>

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