Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 You have to be aggressive. I can't believe some of these doctors. My first pulmonologist got the diagnosis of IPF, gave it to me, said it was "very advanced" and sat back in his chair and said basically nothing could be done. I would not qualify for a lung transplant, there was no pulmonary rehab available, nothing could be done. So I went home, read up on it, found out about pulmonary rehab, found out about drug trials to ask him about, found out more about transplants, went back and asked him about these things and he just wasn't interested in helping. And he's a senior doc, has fellowships, great credentials, the whole deal. So I changed pulmo dudes. Now I'm approved for a transplant, I've had pulmonary therapy and go to the gym 4 times a week, I'm taking NAC and some other things that might help, and I've lived a year longer already than the first guy thought I would! DO NOT HESITATE TO CHANGE DOCTORS!! Bill C. IPF 10/08 N.E. PA Quote Link to comment Share on other sites More sharing options...
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