Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 be sure your doctor knows that you are doing this don't take anything unless you clear it with your doc are you seeing a doc who specializes in interstitial lung diseases? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Beverley JoyTo: Breathe-Support Date: Wednesday, September 16, 2009, 11:04 PM Thanks, My pulmonary Doctor told me to forget NAC. I researchedNAC and found that it needs to be supported by vitamins and minerals. I will try NAC and hope it helps clear my lungs. From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, September 16, 2009 9:16:02 AMSubject: Re: Re: Beverley Joy john talk to your doc about NAC in retrospect, i think it is what helped clear out my lungs of gook Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Burns <johnburns999@ att.net>Subject: Re: Re: Beverley JoyTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 15, 2009, 8:44 PM I tried to answer this. I am not taking NAC Each day is a pressure day for me. I am slowing getting rid of the things that made two people happy. I have hired help every day for the last three months to rescue my house from mold and chemicals. I have much more to throw out and shed. Other than NAC I am doing what you say in your first paragraph. I hope to try NAC when I feel relaxed again. Burns From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, September 14, 2009 10:41:06 PMSubject: Re: Beverley Joy , are you also taking NAC daily? I do and it seems to help. I do a lot of clearing up while walking. Drinking lots of water also helps. Though I don't use a nebulizer, you may fine one useful. Also I have proped my front bed posts up two bricks high, mostly to help with acid reflux, though you may find this helps with congestion. Even with all I do, there is still congestion. Yes I am looking forward to perfindone being available for us. I am interested to find out how much improvement is associated with different diagnoses we all have. I know we will have questions about availability, insurance coverage and who may benefit most. Did loosing 30 pounds make the difference in your not needing O2 so far? Jerry/Mississippi/ 54/IPF/dx April 05 > >> > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease.> > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > I would like to survive as long as you have. Are you using prednizone?> > If possible, how much per day and how long have you used it? How do you feel about side effects?> > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful> > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies.> > > > Burns> > > > Burns> > > > > > > > > > ____________ _________ _________ __> > From: jerryb888 <jerryb888@ ..>> > To: Breathe-Support@ yahoogroups. com> > Sent: Tuesday, September 8, 2009 11:54:18 PM> > Subject: Beverley Joy> > > > > > Hello Beverley Joy,> > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?> > Jerry?Mississippi/ 54/IPF/dx April 05> > > > > >> Quote Link to comment Share on other sites More sharing options...
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