Re: Hi All - Getting a Biopsy - very nervous

[Guest guest]

Hi Dave,

I'm also a patient of Dr. Glassberg in Miami. I have been dx with IPF, but when

I applied for a drug trial the qualifying doctor said that I didn't have IPF.

So, Dr. Glassberg has ordered a biopsy. I have it tomorrow, Friday the 23rd. The

surgeon she recommended is Dr. Nguyen. He seems like a good doctor to deal with.

He has been very approachable and answered all of my questions so far. I should

have some info by Monday as to my experience at U of M.

Terre, IPF, 6-08

> > >

> > > Hi, this is my first post. I am a 43 year old Male in Miami, FL. I

> > have been seeing my Pulmonologist for a year now and have had cat scans

> > every 3 months, blood tests, PFT - which they said showed normal

> > function, Bronchoscopy, a BAL and a hyposensitivity panel that showed

> > normal ranges except for Thermoactinomyces Vulgaris score of 26 (normal

> > is <13). I do not have any symptoms, maybe just a litle tired. The PF

> > was found by accident, had a CT of the abdomen and the radiologist

> > reported abnormal appearance of the lungs could be expression of

> > interstitial PR. Pulmonologist is not sure what is causing all the

> > inflamation in my lungs and the ground glass opacification in the lower

> > lobes. The lung cat scans show no significant change over the year. My

> > doctor wants a diagnosis. She sent me to a Lung Sergeon who examined me

> > and also wants to do the biopsy. I have a Video-assisted Thoracic

> > Surgery(wedge resection)for the biopsy in 2 weeks.

> > >

> > > Can anyone please give me their thoughts or experience on this

> > operation.

> > > Thanks, Dave

> > >

> >

>

[Guest guest]

Terre,

Dr. Nguyen is also performing my VATS on 11/3, Please come back on on let me

know about all your experience's with the doctor, hospital, procedure, ect. I

hope everything goes well for you, I think we are in good hands. Again good

luck, and dont forget that Morphine button. Thanks, Dave

> > > >

> > > > Hi, this is my first post. I am a 43 year old Male in Miami, FL. I

> > > have been seeing my Pulmonologist for a year now and have had cat scans

> > > every 3 months, blood tests, PFT - which they said showed normal

> > > function, Bronchoscopy, a BAL and a hyposensitivity panel that showed

> > > normal ranges except for Thermoactinomyces Vulgaris score of 26 (normal

> > > is <13). I do not have any symptoms, maybe just a litle tired. The PF

> > > was found by accident, had a CT of the abdomen and the radiologist

> > > reported abnormal appearance of the lungs could be expression of

> > > interstitial PR. Pulmonologist is not sure what is causing all the

> > > inflamation in my lungs and the ground glass opacification in the lower

> > > lobes. The lung cat scans show no significant change over the year. My

> > > doctor wants a diagnosis. She sent me to a Lung Sergeon who examined me

> > > and also wants to do the biopsy. I have a Video-assisted Thoracic

> > > Surgery(wedge resection)for the biopsy in 2 weeks.

> > > >

> > > > Can anyone please give me their thoughts or experience on this

> > > operation.

> > > > Thanks, Dave

> > > >

> > >

> >

>

[Guest guest]

Dave,

Just wanted to acknowledge your post. You've already gotten good information. I had a VATS that did not go well due to my own poor tolerance for sedation and anesthesia. I ended up with an open lung biopsy and on a ventilator for a couple of days. BUT I was much more ill at the time than you are now. Ultimately I did fine post-op, it just took me a few days to get there. I also got good information from the biopsy that has served me well. If I had it to do over again, I would. Others feel differently. It's a personal subjective decision.

You are in the hands of excellent doctors and you are in relatively good health with lots of lung function. My guess is that you will do well

..

Please keep us posted, you will be in my thoughts and prayers.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thu, October 22, 2009 11:36:39 AMSubject: Re: Hi All - Getting a Biopsy - very nervous

Terre,Dr. Nguyen is also performing my VATS on 11/3, Please come back on on let me know about all your experience's with the doctor, hospital, procedure, ect. I hope everything goes well for you, I think we are in good hands. Again good luck, and dont forget that Morphine button. Thanks, Dave> > > >> > > > Hi, this is my first post. I am a 43 year old Male in Miami, FL. I> > > have been seeing my Pulmonologist for a year now and have had cat scans> > > every 3 months, blood tests, PFT - which they said showed normal> > > function, Bronchoscopy, a BAL and a hyposensitivity panel that showed> > > normal ranges except for Thermoactinomyces Vulgaris score of 26 (normal> > > is <13). I do not have any symptoms, maybe just a litle tired. The PF> > > was found by accident, had a CT of the abdomen and the radiologist> > > reported abnormal appearance of the lungs could be expression of> > > interstitial PR. Pulmonologist is not sure what is causing all the> > > inflamation in my lungs and the ground glass opacification in the lower> > > lobes. The lung cat scans show no

significant change over the year. My> > > doctor wants a diagnosis. She sent me to a Lung Sergeon who examined me> > > and also wants to do the biopsy. I have a Video-assisted Thoracic> > > Surgery(wedge resection)for the biopsy in 2 weeks.> > > >> > > > Can anyone please give me their thoughts or experience on this> > > operation.> > > > Thanks, Dave> > > >> > >> >>