Re: 4 lbs. and gaining!!!!

[Guest guest]

Wow , it must be something going around because I

got on the scale this morning and I gained 4 pounds as

well!!!! Congratulations to Connor and you of course.

Behind every great milestone a child makes is a great

parent.

How old is Connor? I still have trouble understanding

sometimes. I have to tell her to slow down and

speak clearly. I tell her that she is mumbling and

people can understand mumble. I'm not sure with

if its because she tries to say so much at the

same time but even when she does slow down, it's still

sometimes hard to know exactly what she said.

B

5 and Kelli 2 1/2

--- Kearns wrote:

>

> Dear Friends,

>

> I put Connor on the scale yesterday and about passed

> out. He's

> gained 4 lbs in one month. That is a complete

> miracle for my little

> guy! You would not believe the energy he has now.

> As far as RSS

> kids go, many of you thought he was active. Believe

> me, it's even

> better (or worse) depending on what time of day we

> are talking about.

>

> I so love our g-tube. I'm still working on a peppy

> little ode' to

> that magical piece of plastic (cheesy grin).

>

> Anyway, I'm working on getting Connor at the

> Hutcherson Early

> Learning Center here in Lynchburg. It's a school

> for children with

> special needs. I feel better for his first year at

> pre-school to be

> there where they have a nurse, a ST, a PT and OT on

> staff. Connor

> will be able to get his therapies weekly now which

> is really cool

> for him. His speech is getting so hard to

> understand. It's the

> high palette and malocclusion of the jaw working

> against him. The

> other night when we were all playing Monopoly,

> Connor asked for

> a " duh dit. " Cameron seemed to think he was asking

> for garlic. I

> couldn't figure it out at all. Connor got really

> mad because nobody

> could understand him. Finally, I asked him to show

> me in the fridge

> what it was that he wanted. He pointed to a Trix

> Yogurt. " Duh

> Dit. " We've been working on annunciation, pausing

> and closing our

> lips to form the words. Connor gets so excited he

> starts speaking

> his " language " and not many people can understand

> him.

>

> I'm also in the process of getting his I.E.P. worked

> out with the

> school district. We need additional testing to be

> done and then we

> will be assigned a slot.

>

> I'm so sorry to say that the Kearns' will not be at

> convention this

> year. We have a huge, national church convention to

> attend in

> Portland, Oregon which is happening at the same

> time. Since we are

> from the state of Oregon and most of our family

> still lives there,

> we are turning it into a family reunion of sorts.

> However, if there

> are any other RSS " family " in the area who want to

> hook up in

> Portland for lunch or visit, give me a holler. Most

> of my family

> haven't even met Connor yet so we will be driving

> around a lot and

> visiting relatives.

>

> That's all the news for now. Hope all is well with

> the extended

> crew out there. We pray for our sick one's daily

> and rejoice with

> every centimeter of growth and bit of good news that

> is shared.

> Thank you all for being here and helping us out with

> sound advice

> and sympathetic cyber-shoulders.

>

>

>

>

>

>

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