Re: Doc won't change Periactin dose

[Guest guest]

Hi ,

I'm afraid that I don't have any advice with the Periactin since

it didn't work out for us (terrible side effects).

As to Autumn's height, yes it is small for a one year old but

that's just the way our kids are made. More importantly is what is

her weight to height ratio?

The CDC has many growth charts and the good news is that we don't

need a special RSS chart for weight to height since it has nothing

to do with age.

I went ahead and plotted Autumn and she's right at the 3rd

percentile weight for height. That's not too bad! I believe that

Dr. H had said at the convention last summer that she doesn't like

to see RSS kids go above the 25th percentile weight for height

(Someone correct me if I'm wrong here!) for insulin resistance

issues. So although she's small and could stand to gain more weight

at least she's on the charts.

Here's a link to the CDC growth charts

www.cdc.gov/growthcharts/

Hope this helps some!

Leah, mom to 9 years and Olivia 5 years, 19lbs, 34 " , RSS, OI

>

> Hi. I posted earlier about the Periactin not increasing Autumn's

> appetite. It was originally 1/2 tsp twice a day, then upped to

1/2

> tsp 3 times. Still no change. I asked if I could do 3/4 tsp.

twice

> a day because 1/2 didn't work no matter how often it was given. I

> was told it either works or it doesn't and a higher dose wouldn't

> make a difference. I'm not satisfied with that answer and we have

an

> appt with the geneticist tomorrow morning. Should I mention this

to

> him and see what he says? It is the GI and assistant that are

doing

> the Periactin and dosing. Also, how concerned should I be with

her

> at a little over 14lbs and 11 1/2 mos old? Is that good? She was

> born 5lbs 6 oz and 18 1/2 inches...she now just made it to about

26

> inches. They are more concerned because she was 11 1/2 lbs at 6

> months and has only gained 2 1/2lbs and 2 1/2 inches in 5 1/2

months.

> Is that normal? They talk about a feeding tube if Periactin

doesn't

> work. Is that necessary?

>

>

> Any info appreciated.

>

> thanks again for all of your help

>

> mom to Autumn, 2 crazy boys, and one baby on the way