Re: OT Part 2-what's going on?

[Guest guest]

Janelle,

I wouldn't want to be the one to advise in the wrong way. I just want

you to know that we are here to read your post if you need us to listen.

I seem to be one who over worries also, and feel so silly afterwards, but

I always say what if................

Anyway, keep us posted on .

[[[[[[[[[[[[]]]]]]]]]]]

Thats a hug for him.

(LJs mom) in New York

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[Guest guest]

I would insist on seeing a pediatric neuroligst pronto! I haven't been

following all of your posts, but if you've already done this, call

him/her again and describe what's been happening. Do not let your

pediatrician talk you out of insisting on a referral to a neurologist for

your son. I would do this ASAP if you've already experienced a seizure

with him.

Good luck.

( & Malachi's mom)

[Guest guest]

> Part 2- Tonight woke crying every 30 min for about 3 hours.

I

> picked him up the last few times and each time I did he felt limper

> and limper. Am I going crazy? Maybe he was just falling more and

more

> asleep? His eyes stayed closed. We were ready to go to the ER, but

> thought, what would they do? After a half hour or so, he calmed down

> and drifted off to a very restless sleep. Couldn't get comfortable

on

> my shoulder.

This sounds exactly like me when I eat something I should not have

eaten. For me primarily something high phenol

http://home.pacbell.net/cscomp/phenol.htm

I will be sooooooo tired but unable to fall asleep. I will wake up

every 20-30 minutes, generally cursing the fact that I ate whatever it

was that I ate. I will take drugs [like anti-histamines] but still

not be able to fall asleep. I will be so limp each time, and

sometimes cry, because I am exhausted but cannot fall asleep and keep

waking up. My eyes will stay closed because I am soooooo tired. This

does go on for about 2-3 hours, then I do have a restless sleep.

We decided to wait and call pedi tomorrow. Although his

> reg. pedi is on vacation for 2 weeks. Darn. We started to feel

silly.

> What if he just has gas or is teething? We are almost 100% sure

> something happened 10 days ago when we suspected a seizure. But,

> maybe tonight he was just very , very tired-he did miss his

afternoon

> nap(just like last time when we suspected a seizure occurred), but

he

> has missed naps before and not woke crying and been less responsive.

> I don't remember my first born ever feeling so limp and crying but

> not very responsive.

I don't remember too much of your previous description about the

" incident " , but it did sound like a seizure to me. I have seizures

also, which have never been controlled by medications but they are

much better when gf and low phenol.

But I think if YOU believe it was probably a seizure, and YOU are

concerned about this last night, then YOU know your child best. Take

him to the ped and request testing by a pediatric neurologist. You

are NOT silly for being concerned about your child.

Dana