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Re: IT'S BEEN A YEAR!!!!-kathy

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hey kathy!!

that is so great!!!

happy early birthday to willie!!! have fun at lego land!!! hope to

chat with you soon!!

jodie c

> ,

>

> Congratulations on your year w/o the hospital! That's excellent.

> I've been wanting to write an excited IT " S BEEN A YEAR kind of

email

> myself. For us, it's been a year since we traveled from California

to NYC to see

> Dr Harbison and get what none of the dozen or so doctors we'd seen

here could

> give us- a diagnosis. Willie is 4 in 2 weeks and one year ago , at

3, weighed

> 18 lbs and I was a freak show. Now, he's 25 lbs and on track! He

just

> reached 34 inches and we're celebrating with a trip to Legoland.

We went last year

> and they wouldn't let him on any of the rides. At the convention,

we won the

> Legoland tickets in the silent auction and so we'll go and he'll

stand under

> that YOU MUST BE THIS TALL sign with pride. Thank you everyone on

this

> listserve for all the info that has gotten us this far in a year.

> Happy New Year!

> Kathy (Jack, 6,non-RSS and Willie,RSS, almost 4, 25 lbs, 34

inches,

> Periactin, Zantac, Prilosec, ST, soon ght)

>

>

>

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