Re: From Jen - stories, tantrums, body odor....

[Guest guest]

I unfortunately don't know a lot! I can tell you that through the

blood test, the endos look for pubertal indicators and I can't

recall the names of those tests -- Jodi, is it LH/FSH or something

strange like that? That would determine if the child is in

GONARDARCHE (and what others call puberty).

Puberty technically has two processes, the first being adrenarche.

When the adrenal gland produces androgens, and simultaneously during

this process, small amounts of androgens are converted into estrogen

(and it is this estrogen that begins advancing the child's bone

age). It is thought that RSS kids are somehow extra sensitive to

estrogen.

I have been told by experts that the blood test lab test that they

believe is the strongest marker for adrenarche is the DHEA test.

Actual name is way too long, but endos will know it is DHEA.

So I would make sure that at the appt, you ask the doctor what your

child's DHEA levels have been for the last couple of years. For

years, 's were around 60-70. Jan 2004 they moved to about

140 or so (Dr. H called that pre-adrenarche) and this year they went

to 320 or something like that.

However, is NOT in gonadarche at this point.

Hopefully, someone will remember what the names of the pubertal

blood tests are. Your doctor may have been referring to those

tests -- ask about the DHEA levels. JEnn

> Jenn,

> My daughter is 8. We are seeing signs of adrenarche and have an

appt with

> her endo in 2 weeks. What should we ask him to look for? Last

summer we thought

> we had a problem (breast development, body odor,) and they did a

test which

> showed no hormone activity. I couldn't believe it. Now I know it's

happening.

> We feel that we hqve a good endo - no problems yet - but he is

way too busy.

> He's the only Ped endo in N E Oklahoma. What do we look for, ask,

etc.? Mikey

> is 50 lbs, 50 in., has been on growth hormone for 5 years.She has

been

> growing at the rate of 4 in per year - no other problems. Finally

eats well. We

> thought we were " home free " . Guess not. Since I have seen your

posts about

> I thought you might have some advice. Mikey was born full

term, 3.8

> lbs,15 inches.Thanks Ellen - mother and grandmother to

Mikey

>

>

>

[Guest guest]

Ellen,

Make sure that they do a bone age. My son is not showing signs of

adrenarche but does have increased estrogen levels and I know Dr. H

wants to have another bone age done. You really want to make sure that

her bone age is not advancing too quickly.

Pattie

> Jenn,

> My daughter is 8. We are seeing signs of adrenarche and have an appt

with

> her endo in 2 weeks. What should we ask him to look for? Last summer

we thought

> we had a problem (breast development, body odor,) and they did a

test which

> showed no hormone activity. I couldn't believe it. Now I know it's

happening.

> We feel that we hqve a good endo - no problems yet - but he is way

too busy.

> He's the only Ped endo in N E Oklahoma. What do we look for, ask,

etc.? Mikey

> is 50 lbs, 50 in., has been on growth hormone for 5 years.She has been

> growing at the rate of 4 in per year - no other problems. Finally

eats well. We

> thought we were " home free " . Guess not. Since I have seen your

posts about

> I thought you might have some advice. Mikey was born full

term, 3.8

> lbs,15 inches.Thanks Ellen - mother and grandmother to Mikey

>

>

>