Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Hi everyone, again it has been awhile since I last posted. I read all of your posts everyday but sometimes I don't feel like I have anything to contribute. I'm still rather new at all of this and still all over the place with how I " feel " . Somedays I'm great perfectly normal except for hauling my portable O2. Other days, not so much. I have lots of gratitude for being able to still do most of what I want to do most days. Those are my good days. The not so great days I'm feeling scared and tired and sorry for myself. I do my best to stay positive. A quick recap: I was diagnosed (by way of PFTs and CT and xrays and a bronchoscopy) with PF in April of this year. I see a local pulmonary specialist. I was in the hospital for a week. Three months after this I did more PFTs and I actually improved. Two months later, now, my ability to breathe has decreased, my diffusion stats are at 29%. My doctor has referred me to a thoracic surgeon to do a VATS lung biopsy. I have researched this as much as I can, and I understand both the risks and the possibility that after doing this my treatment options may remain the same. Still I believe that this is what I need to do. I know that some of you have been through this procedure and would appreciate your opinions and suggestions to make this go as well as it possibly can. I am 55 years old and currently taking 10 mg prednisone daily and O2 24/7 at 2 lpm resting and 3-4 lpm with exersion. And 4 lpm for sleep. The doctor had me try Imuran, but I had an allergic reaction to it. Thank you all - Darlene Quote Link to comment Share on other sites More sharing options...
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