Re: back from the endo and IEP prep (kinda long)

[Guest guest]

My son, Caleb, isn't RSS, just small stature. But I still go thru

all the same stuff! Congrats on the growth spurt. He is 4 yrs. old

& has his 3rd set of tubes because of constant ear infections! His

first set at 18 mos., we took him to the local ENT. The sugery took

1 hr. instead of the regular 15 min. cuz the doc didn't have tools

small enough! When the tubes stopped working, we decided to go to a

bigger hospital. The dr. at Cedar Sinai (we live about 30 miles

outside of LA) has done the last 2 sets of tube & it takes him less

that 15 min to do the surgery! It just made me feel more

comfortable going to a dr that has more experience with small

stature kids. I hope your insurance gives you a choice.

I also have a 12 yr old son with BiPolar disorder, ADD, & Obsessive

Compulsive Disorder who is being tested next week for auditory

processing disorder! When I filled out the questionaire from the

audiologist, I was shocked at how many symptoms were the same as

ADD. I don't know the difference yet, but anything that can help,

I'm all for! His speech teacher said it is very hard to get a

school district to pay for the therapy. She said we were very

lucky. I hope you do get the evaluation.

It is so hard on the other children in the house! My middle son is

9 and stuck between these 2 special needs boys. I think

these 'normal' kids are the ones that become the doctors,

researchers, & social workers of the world. My son has developed so

much empathy & patience because of his situation in life. Don't get

me wrong, he is a pill sometimes & hates that he has to be in the

middle of all of this! But at the same time, nobody else

understands & defends the small stature & /or 'special' kids of the

world! I suggest find something about your daughter that you can

focus on- her empathy, her art work, etc. & praise her often!

Good luck! Remember you are doing the best you can for your kids!

Don't forget yourself too! You are special!

LAURA, 37 mom to 3 boys w/depression & allergies; Lexapro & Dexadrine

Trevor, 12 w/ADHD, BP, OCD, seasonal allergies, & asthma; Lamictal &

Abilify

, 9 (typical middle child & add to it brothers w/special

needs!)

Caleb, 4 w/scoliosis, small stature, allergies, asthma, 3rd set of

PE Tubes, & xtra thumbs taken off at 4 mos. of age

, dh, 43 w/ADD & depression, asthma, & allergies; Lexapro &

Dexadrine

Family spending too much on meds!!