Re: Re: Hearing Loss

[Guest guest]

Hello,

Thanks

na birthday was great. She brought home the school birthday bear and had us

put it at the table when we sang Happy Birthday to her. She is too funny. She

got many gifts, some i put in the cellar to save for the year to come. She has

12 aunts and uncles between us and each one tries to out do the other. It bad

when her aunt out does Santa Claus. She gets all excited then nervous so under

the table she went when everyone came in the same room. I told them all next

year savings bonds please our apartment doesn't fit everything.

We went to her annual appointment. She is now 27lbs and 34.75 inches. Standing

up was 34 but i like the laying down one better. Her pedi said she has won a

conley gold medal for gaining 4.5lbs in a year. She has only grown over an inch

and a half. But some better than none. We go back to the endo in February.

Hopefully then we can begin our next endevour. He wants us to try stopping the

Pedisure and see if she can gain with out it. I'm really nervous because that is

the one thing i can get her to have at least twice a day. I will try it for a

while but if it doesn't work then what? Has any one else had to take theier

kid off pedisure? We were giving it to avoid a feeding tube. So far it has

worked.

Marcy na mom 27lb yes!!! 34.75inches and growing!!!

Briggs wrote:

Hi Marcy

Happy belated birthday to na!! How was her birthday?

B

Marcy Conley wrote:

Hello,

na will be 4 January 5th. She is 26.5 lbs and 33.68 inches ( i hope more we

go on the 4th) She was at 22lbs forever it seemed. Since birth she was feed by

syringe the first months then bottle, we changed her fomula every few months

because or reflux. They told me her dad was small she would be but everytime we

went to the doctors they would say when she turns 4 we need to look at taking

out the tonsils because they are enlarged. I thought could that be why daughter

gags and would not but anything near her mouth. finally one of the doctors in

the practice sent us to see Dr. Cunningham. We had to wait 3-4 months to see him

then when we did he took xrays blood and said these need to come out, so i

figured we would have to wait another 4 months but with in a week they were out.

He had her on an Iv the whole time so incase she did have RS her levels would be

fine. he talked to her. I can not say enough for this man, he explained

everthing in details what would happen held my hand

called the house to see how she was doing. I know there are many good doctors

and many bad like the one that told me don't worry she will just be small then

on her second birthday say i think some thing is wrong here......

Briggs wrote:

Hi Marcy,

You know since we were supposed to do that and didn't

because of her heart surgery she has not been back to

the ENT and in fact he has now retired. So I know

have to get her file from him and the next ear

infection I'm requesting she gets a referral for a new

ENT and at that point hopefully they will be able to

see about her adnoids. When she was 4 months old the

ENT had to have her x-rayed because she was so small

he couldn't see.

How old is na? The ENT only recommed have

her adnoids out and tubes in, nothing with her

tonsils.

B

4 3/4 RSS and Kelli 2 NON RSS

--- Marcy Conley wrote:

>

> Hello,

> ,

> Did the ENT check her adnoids again? na doctor

> kept telling us she will grow into them and then we

> will take them out. After she had her adnoids,

> tonsils out she actually will try to eat more than

> before. the ENT was unbelievable to her. He said if

> I came sooner he would of taken them out before she

> learn to eat so she would eat better. Her ear

> infections have slowed down too.

>

> Briggs wrote:

>

> Hi,

>

> had a hearing test done and it had shown that

> she has a very slight hearing loss on the right side

> and none on the left. The test was done because she

> was having re-current ear infections and it was

> about the sixth one in a row (from 1/04 - 6/04 she

> had one every month). At the time we had no idea of

> RSS. We just knew she was small for her age. Her ENT

> from the first time he saw her at 4 months old was

> asking if her peds were aware of how small she was

> and I told him yes they are. She was originally seen

> at 4 months for snoring, and it turned out after an

> x-ray, that she has enlarged adnoids and the ENT

> wanted to wait to see if she " grew into them. " After

> all the ear infections her ENT had the hearing test

> performed and with the results we were getting ready

> to schedule her to have tubes but that's when we

> found out about the hole in her heart.

>

> So not sure if my post helps because it appears her

> slight hearing loss was from ear infections and OH

> YEAH the test was done while she was on the

> antibiotic but the person conducting the study (I

> forget her title) said that she had been on the

> antibiotic long enough that her still being treated

> for the ear infection had anything to do with the

> results.

>

> B

>

>

> kim taylor wrote:

> Hi its kim t, i had hearing loss as a child, i used

> to lipread and my dad was the only one who realised

> i was deaf as i wuld always look at peoples lips

> rather than their eyes and wouldn't agknowledge

> anyone if they called me and i wasn't facing them, i

> don't know if it was related to rss back then but i

> had several sets of gromits(tubes) inserted over the

> years and my hearing is a1 now.

>

> Hillary nsen wrote:My parents were told when I

> was diagnosed that hearing loss was a possibility,

> but neither of my parents ever remember the doctors

> providing an explanation

> for this. I also wanted to add that there was a news

> story out maybe six

> months to a year ago about how shorter adults in

> general (although I don't

> think the study qualified between " typically " short

> and " atypically short) seem

> to be at a higher risk for hearing loss. I wish I

> could remember more details,

> but I'm not sure that I read any of the articles

> that I saw. Does anyone else

> remember this?

>

> ~Hillary

> 22, RSS

>

>